Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2022:3:871178.
doi: 10.3389/fresc.2022.871178.

Promising Practices in the Frontiers of Quality Outcome Measurement for Intellectual and Developmental Disability Services

Matthew Bogenschutz  1 , Parthenia Dinora  1 , Sarah Lineberry  1 , Seb Prohn  1 , Michael Broda  1 , Angela West  1
Affiliations

Promising Practices in the Frontiers of Quality Outcome Measurement for Intellectual and Developmental Disability Services

Matthew Bogenschutz et al. Front Rehabil Sci. 2022.

Abstract

Medicaid Home and Community-Based Services (HCBS) for people with intellectual and developmental disabilities (IDD) are vital for supporting people with IDD to live well in their communities, but there are not set standards for monitoring quality outcomes related to HCBS. In this paper, we propose promising practices for improving the quality of HCBS outcome measurement, based both in the literature and our own experience conducting an extensive U.S. state-level study. Specifically, we discuss: (1) using merged administrative datasets, (2) developing high-quality psychometrics that attend to ecological issues in measurement, (3) using advanced statistical analyses, and (4) creating immersive, user-friendly translational dissemination products. We conclude by suggesting what we see as important new frontiers for researchers to consider in order to enhance the quality of HCBS outcome measurement for people with IDD in the future.

Keywords: Home and Community Based Services; administrative datasets; advanced statistics; co-researchers with disabilities; intellectual and developmental disabilities (IDD); outcome measurement and valuation; translational dissemination.

PubMed Disclaimer

Conflict of interest statement

Conflict of Interest: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

References

    1. Cairney P, Oliver K. Evidence-based policymaking is not like evidence-based medicine, so how far should you go to bridge the divide between evidence and policy? Health Res Policy Syst. (2017) 15:2–11. 10.1186/s12961-017-0192-x - DOI - PMC - PubMed
    1. Oliver K, Innvar S, Lorenc T, Woodman J. A systemic review of barriers to and facilitators of the use of evidence by policymakers. BMC Health Serv Res. (2014) 14:2. 10.1186/1472-6963-14-2 - DOI - PMC - PubMed
    1. The Arc . Policy and Advocacy: Medicaid. (2021). Available online at: https://thearc.org/policy-advocacy/medicaid/#:~:text$=$For%20many%20peop... (accessed January 31, 2022).
    1. Larson SA, Eschenbacher HJ, Taylor B, Pettingell S, Sowers M, Bourne ML. In-Home and Residential Long-Term Supports and Services For Persons With Intellectual or Developmental Disabilities: Status and Trends Through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration; (2020). Available online at: https://ici-s.umn.edu/files/aCHyYaFjMi/risp_2017.pdf (accessed February 1, 2022).
    1. Centers for Medicare and Medicaid Services . Instructions, Technical Guide and Review Criteria. (2019). Available online at: https://wms-mmdl.cms.gov/WMS/help/35/Instructions_TechnicalGuide_V3.6.pdf (accessed February 1, 2022).

LinkOut - more resources