Diabetes-Related Stigma among Adolescents: Emotional Self-Efficacy, Aggressiveness, Self-Care, and Barriers to Treatment Compliance

Abstract

Recent studies indicate that over 60% of adolescents with type 1 diabetes (T1D) experience diabetes-related stigma (DRS). DRS may affect their emotional self-efficacy (ESE), behavior, and self-care while increasing barriers to comply with physical and mental health treatment. We examined differences in ESE, aggressiveness, self-care, and barriers to comply with treatment among 51 T1D youths (aged 12-17 years) with (G1; n = 35) and without (G2; n = 16) any history of DRS enrolled in a depression treatment study. Using a MANOVA followed by individual univariate analyses, we compared groups in continuous variables, and to conduct comparisons in categorical variables, we used Chi-square tests. MANOVA results were significant, F(5, 45) = 3.20, p = .015. G1 reported lower scores than G2 on ESE, perception of the potential therapeutic impact of group sessions, and family support to comply with insulin treatment. G1 caregivers perceived their offspring as more aggressive and affected by barriers to treatment adherence than their counterparts. G1 members showed a higher proportion of cases with body mass index problems, non-compliance with their meal plan, and multiple episodes of hypoglycemia. Compared to G2, a lower percentage of adolescents in G1 met the recommended glycemic control levels. Our findings support the relationship of DRS with a lower ESE, more behavioral problems, difficulties in food-related self-care, and more barriers to comply with the treatment of diabetes and emotional problems in adolescents. They suggest the need for large-scale education to prevent DRS and psychosocial interventions to combat its impact in adolescents.

Keywords: adolescents; diabetes; emotional self-efficacy; self-care; stigma.