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. 2023 Jan;22(1):172-178.
doi: 10.1016/j.jcf.2022.07.004. Epub 2022 Jul 13.

Development and outcomes of a patient driven cystic fibrosis quality of care improvement project

Jacquelien J Noordhoek  1 , Joshena Jeyaratnam  2 , Domenique Zomer  3 , Vincent A M Gulmans  3 , Cornelis K van der Ent  2 , Harry G M Heijerman  2
Affiliations
Free article

Development and outcomes of a patient driven cystic fibrosis quality of care improvement project

Jacquelien J Noordhoek et al. J Cyst Fibros. 2023 Jan.
Free article

Abstract

The Dutch CF Foundation (NCFS) developed a quality improvement program, to assess and improve quality of care in all CF centers in The Netherlands. Criteria to assess quality of care from the patient perspective were defined, and quality of care was assessed by patients via online surveys and site visits. Recommendations were addressed to all centers to improve quality of care. Most recommendations were related to communicational issues. All centers were given the quality mark of the patient organisation, although two of them needed extra time to meet the lower limit of the core set of criteria. After two years, over 75 % of the recommendations given to the centers were fully or partly implemented, showing a high efficacy of the program.

Keywords: Patient involvement quality mark; Patient participation; Patient perspective; Quality of care.

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Conflict of interest statement

Declaration of Competing Interest All Authors declare not to have any conflict of interest.