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. 2022 Jul 11:9:23743735221112633.
doi: 10.1177/23743735221112633. eCollection 2022.

Pancreatic Cancer From the Patient Perspective: The Time to Act is Now

Marianna Vitaloni  1 , Patrick Michl  2 , Matthias Löhr  2 , Ali Stunt  3 , Patrycja Rzadkowska  4 , Eva Backman  5 , Lama Sharara  6 , Vitor Neves  7 , Thomas Gruenberger  8 , Zorana Maravic  1
Affiliations

Pancreatic Cancer From the Patient Perspective: The Time to Act is Now

Marianna Vitaloni et al. J Patient Exp. .

Abstract

Pancreatic cancer is a disease requiring urgent attention from governments and policymakers. Recently, a state of emergency has been declared for this cancer-being the fourth most common cause of cancer deaths in the European Union, it has the lowest survival rate of all common cancers. One of the major reasons pancreatic cancer is associated with such poor outcomes is because it is usually diagnosed at a late stage. Also, investment in research for effective targeted therapies is lacking. This is the perspective of a white paper developed by Digestive Cancers Europe, an umbrella organisation representing European patient organisations. It has been developed after consultation with pancreatic cancer patients, representatives of cancer patient organisations and leading pancreatic cancer healthcare professionals. The purpose of the paper is to highlight the key urgent unmet needs in pancreatic cancer from the patient perspective, ultimately with a view to improve patient care and outcomes in this very challenging disease.

Keywords: cancer; medical education; patient engagement; patient feedback; quality improvement; quality of life.

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Conflict of interest statement

Declaration of Conflicting Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
“Red flag” signs and symptoms of pancreatic cancer.
See this image and copyright information in PMC

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