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. 2022;31(8):2202-2214.
doi: 10.1007/s10826-022-02336-8. Epub 2022 Jul 14.

A Qualitative Examination of the Impact of the COVID-19 Pandemic on Individuals with Neuro-developmental Disabilities and their Families

David B Nicholas  1 , Wendy Mitchell  1 , Jill Ciesielski  1 , Arisha Khan  2 , Lucyna Lach  2   3
Affiliations

A Qualitative Examination of the Impact of the COVID-19 Pandemic on Individuals with Neuro-developmental Disabilities and their Families

David B Nicholas et al. J Child Fam Stud. 2022.

Abstract

Individuals with neuro-developmental disabilities (NDD) have been profoundly affected by the COVID-19 pandemic. Based on focus groups with 24 service providers supporting this population, using an Interpretive Description approach, we examined perceived impacts of the pandemic on individuals with NDD and their families. The results highlight pandemic-related experiences which include: service reduction, the need for financial supports, relying on natural supports, and school-related challenges. Interruptions in services have resulted in intensified mental health issues for individuals with NDD and family caregivers, with particular concern for those with added social determinants of health-related barriers. Mitigating factors have also emerged, such as resilience and technology utilization to facilitate communication. Recommendations for resource flexibility and sufficiency as well as navigational support are offered.

Keywords: COVID-19 pandemic; Families; Neuro-developmental disabilities; Qualitative; Service disruption; Social determinants of health.

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Conflict of interest statement

Conflict of InterestThe authors declare no competing interests.

Figures

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Fig. 1
Shifts, impacts and generative responses
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