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. 2022 Jul 22;12(1):12512.
doi: 10.1038/s41598-022-16596-3.

The French EVAL-PLH cohort of persons with polyhandicap

Ilyes Hamouda  1 , Marie-Christine Rousseau  1   2 , Any Beltran Anzola  1 , Marie-Anastasie Aim  3 , Thierry Billette de Villemeur  4   5 , Pascal Auquier  1 , Karine Baumstarck  6 ; EVAL-PLH group
Collaborators, Affiliations

The French EVAL-PLH cohort of persons with polyhandicap

Ilyes Hamouda et al. Sci Rep. .

Abstract

Polyhandicap is characterized by a combination of profound intellectual disability and serious motor deficit, resulting in the extreme restriction of autonomy and communication. The aim of the EVAL-PLH (EVALuation PoLyHandicap) study is to identify the impact of socioeconomic, environmental, and epidemiological determinants on the health status of the persons with polyhandicap and the daily lives of their caregivers. EVAL-PLH is a prospective cohort study. The study involved persons with severe polyhandicap (who were cared for at reeducation centers, residential facilities, and one specialized pediatric/neurological department of a university hospital), their familial caregivers and the institutional caregivers. Data collection included sociodemographics, heath status, and psychocomportemental information. Data have been collected at 2 points (2015-2016 and 2020-2021). The French EVAL-PLH cohort is the first cohort study focusing on persons with polyhandicap, their families, and the health care workers caring for them. The sustainability of the device is essential to assist patients, families, clinicians, and health decision-making authorities in the optimization of care management.

Trial registration: ClinicalTrials.gov NCT02400528.

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Conflict of interest statement

The authors declare no competing interests.

Figures

Figure 1
Figure 1
The POLYRENE project.
See this image and copyright information in PMC

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