. 2023 May 25;22(4):339-344.

doi: 10.1093/eurjcn/zvac057.

Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS

Philip Moons^{1

2

3

4}, Koen Luyckx^{5

6}, Corina Thomet^{1

7}, Werner Budts^{8

9}, Junko Enomoto¹⁰, Maayke A Sluman^{11

12}, Hsiao-Ling Yang¹³, Jamie L Jackson¹⁴, Paul Khairy¹⁵, Stephen C Cook¹⁶, Shanthi Chidambarathanu¹⁷, Luis Alday¹⁸, Erwin Oechslin¹⁹, Katrine Eriksen²⁰, Mikael Dellborg²¹, Malin Berghammer^{3

22

23}, Bengt Johansson²⁴, Andrew S Mackie²⁵, Samuel Menahem²⁶, Maryanne Caruana²⁷, Gruschen Veldtman²⁸, Alexandra Soufi²⁹, Susan M Fernandes³⁰, Kamila White³¹, Edward Callus^{32

33}, Shelby Kutty^{34

35}, Adrienne H Kovacs¹⁹; APPROACH-IS consortium

Collaborators, Affiliations

Collaborators

APPROACH-IS consortium:
Luis Alday, Héctor Maisuls, Betina Vega, Samuel Menahem, Sarah Eaton, Qi Feng Wang, Ruth Larion, Werner Budts, Kristien Van Deyk, Silke Apers, Eva Goossens, Jessica Rassart, Koen Luyckx, Philip Moons, Gwen Rempel, Andrew Mackie, Ross Ballantyne, Kathryn Rankin, Colleen Norris, Dylan Taylor, Isabelle Vondermuhll, Jonathan Windram, Pamela Heggie, Gerri Lasiuk, Paul Khairy, Anna Proietti, Annie Dore, Lise-Andrée Mercier, François-Pierre Mongeon, François Marcotte, Reda Ibrahim, Blandine Mondésert, Marie-Claude Côté, Adrienne Kovacs, Erwin Oechslin, Mimi Bandyopadhyay, Alexandra Soufi, Sylvie Di Filippo, François Sassolas, André Bozio, Cécile Chareyras, Shanthi Chidambarathanu, Farida Farzana, Nitya Lakshmi, Edward Callus, Emilia Quadri, Massimo Chessa, Giovanna Campioni, Alessandro Giamberti, Junko Enomoto, Yoshiko Mizuno, Maryanne Caruana, Victor Grech, Sheena Vella, Anabel Mifsud, Neville Borg, Daniel Chircop, Matthew Mercieca Balbi, Rachel Vella Critien, James Farrugia, Yanika Gatt, Darlene Muscat, Katrine Eriksen, Mette-Elise Estensen, Mikael Dellborg, Malin Berghammer, Eva Mattsson, Anita Strandberg, Pia Karlström-Hallberg, Bengt Johansson, Anna-Karin Kronhamn, Markus Schwerzman, Corina Thomet, Margrit Huber, Jou-Kou Wang, Chun-Wei Lu, Hsiao-Ling Yang, Yu Chuan Hua, Barbara Mulder, Maayke Sluman, Marco Post, Els Pieper, Kathinka Peels, Marc Waskowsky, Gruschen Veldtman, Michelle Faust, Colin Lozier, Christy Reed, Jamie Hilfer, Curt Daniels, Jamie Jackson, Shelby Kutty, Carolyn Chamberlain, Sara Warta, Stephen Cook, Morgan Hindes, Ari Cedars, Kamila White, Susan Fernandes, Anitra Romfh, Kirstie MacMillen

Affiliations

¹ KU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.
² Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
³ Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
⁴ Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
⁵ School Psychology and Child and Adolescent Development, KU Leuven - University of Leuven, Leuven, Belgium.
⁶ UNIBS, University of the Free State, Bloemfontein, South Africa.
⁷ Center for Congenital Heart Disease, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland.
⁸ Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium.
⁹ KU Leuven Department of Cardiovascular Sciences, KU Leuven - University of Leuven, Leuven, Belgium.
¹⁰ Department of Education, Toyo University, Tokyo, Japan.
¹¹ Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
¹² Department of Cardiology, Jeroen Bosch Hospital, 's Hertogenbosch, the Netherlands.
¹³ School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan.
¹⁴ Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA.
¹⁵ Adult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, Montreal, Canada.
¹⁶ Adult Congenital Heart Disease Program, Indiana University Health, Indianapolis, IN, USA.
¹⁷ Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India.
¹⁸ Division of Cardiology, Hospital de Niños, Córdoba, Argentina.
¹⁹ Toronto Adult Congenital Heart Disease Program, University Health Network, University of Toronto, Toronto, Canada.
²⁰ Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway.
²¹ Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden.
²² Department of Health Sciences, University West, Trollhättan, Sweden.
²³ Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
²⁴ Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden.
²⁵ Division of Cardiology, Stollery Children's Hospital, University of Alberta, Edmonton, Canada.
²⁶ Monash Heart, Monash Medical Centre, Monash University, Melbourne, Australia.
²⁷ Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta.
²⁸ Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
²⁹ Department of Cardiac Rehabilitation, Médipôle Lyon-Villeurbanne, Lyon, France.
³⁰ Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, CA, USA.
³¹ Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, Saint Louis, MO, USA.
³² Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.
³³ Department of Biomedical Sciences for Health, Università degli Studi di Milano, Milan, Italy.
³⁴ Adult Congenital Heart Disease Center University of Nebraska Medical Center/Children's Hospital and Medical Center, Omaha, NE, USA.
³⁵ Taussig Heart Center, Johns Hopkins School of Medicine, Baltimore, MD, USA.

PMID: 35901014
DOI: 10.1093/eurjcn/zvac057

Free article

Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS

Philip Moons et al. Eur J Cardiovasc Nurs. 2023.

Free article

. 2023 May 25;22(4):339-344.

doi: 10.1093/eurjcn/zvac057.

Authors

Collaborators

APPROACH-IS consortium:
Luis Alday, Héctor Maisuls, Betina Vega, Samuel Menahem, Sarah Eaton, Qi Feng Wang, Ruth Larion, Werner Budts, Kristien Van Deyk, Silke Apers, Eva Goossens, Jessica Rassart, Koen Luyckx, Philip Moons, Gwen Rempel, Andrew Mackie, Ross Ballantyne, Kathryn Rankin, Colleen Norris, Dylan Taylor, Isabelle Vondermuhll, Jonathan Windram, Pamela Heggie, Gerri Lasiuk, Paul Khairy, Anna Proietti, Annie Dore, Lise-Andrée Mercier, François-Pierre Mongeon, François Marcotte, Reda Ibrahim, Blandine Mondésert, Marie-Claude Côté, Adrienne Kovacs, Erwin Oechslin, Mimi Bandyopadhyay, Alexandra Soufi, Sylvie Di Filippo, François Sassolas, André Bozio, Cécile Chareyras, Shanthi Chidambarathanu, Farida Farzana, Nitya Lakshmi, Edward Callus, Emilia Quadri, Massimo Chessa, Giovanna Campioni, Alessandro Giamberti, Junko Enomoto, Yoshiko Mizuno, Maryanne Caruana, Victor Grech, Sheena Vella, Anabel Mifsud, Neville Borg, Daniel Chircop, Matthew Mercieca Balbi, Rachel Vella Critien, James Farrugia, Yanika Gatt, Darlene Muscat, Katrine Eriksen, Mette-Elise Estensen, Mikael Dellborg, Malin Berghammer, Eva Mattsson, Anita Strandberg, Pia Karlström-Hallberg, Bengt Johansson, Anna-Karin Kronhamn, Markus Schwerzman, Corina Thomet, Margrit Huber, Jou-Kou Wang, Chun-Wei Lu, Hsiao-Ling Yang, Yu Chuan Hua, Barbara Mulder, Maayke Sluman, Marco Post, Els Pieper, Kathinka Peels, Marc Waskowsky, Gruschen Veldtman, Michelle Faust, Colin Lozier, Christy Reed, Jamie Hilfer, Curt Daniels, Jamie Jackson, Shelby Kutty, Carolyn Chamberlain, Sara Warta, Stephen Cook, Morgan Hindes, Ari Cedars, Kamila White, Susan Fernandes, Anitra Romfh, Kirstie MacMillen

Affiliations

¹ KU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.
² Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
³ Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
⁴ Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
⁵ School Psychology and Child and Adolescent Development, KU Leuven - University of Leuven, Leuven, Belgium.
⁶ UNIBS, University of the Free State, Bloemfontein, South Africa.
⁷ Center for Congenital Heart Disease, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland.
⁸ Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium.
⁹ KU Leuven Department of Cardiovascular Sciences, KU Leuven - University of Leuven, Leuven, Belgium.
¹⁰ Department of Education, Toyo University, Tokyo, Japan.
¹¹ Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
¹² Department of Cardiology, Jeroen Bosch Hospital, 's Hertogenbosch, the Netherlands.
¹³ School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan.
¹⁴ Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA.
¹⁵ Adult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, Montreal, Canada.
¹⁶ Adult Congenital Heart Disease Program, Indiana University Health, Indianapolis, IN, USA.
¹⁷ Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India.
¹⁸ Division of Cardiology, Hospital de Niños, Córdoba, Argentina.
¹⁹ Toronto Adult Congenital Heart Disease Program, University Health Network, University of Toronto, Toronto, Canada.
²⁰ Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway.
²¹ Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden.
²² Department of Health Sciences, University West, Trollhättan, Sweden.
²³ Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
²⁴ Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden.
²⁵ Division of Cardiology, Stollery Children's Hospital, University of Alberta, Edmonton, Canada.
²⁶ Monash Heart, Monash Medical Centre, Monash University, Melbourne, Australia.
²⁷ Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta.
²⁸ Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
²⁹ Department of Cardiac Rehabilitation, Médipôle Lyon-Villeurbanne, Lyon, France.
³⁰ Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, CA, USA.
³¹ Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, Saint Louis, MO, USA.
³² Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.
³³ Department of Biomedical Sciences for Health, Università degli Studi di Milano, Milan, Italy.
³⁴ Adult Congenital Heart Disease Center University of Nebraska Medical Center/Children's Hospital and Medical Center, Omaha, NE, USA.
³⁵ Taussig Heart Center, Johns Hopkins School of Medicine, Baltimore, MD, USA.

PMID: 35901014
DOI: 10.1093/eurjcn/zvac057

Abstract

The congenital heart disease (CHD) population now comprises an increasing number of older persons in their 6th decade of life and beyond. We cross-sectionally evaluated patient-reported outcomes (PROs) in persons with CHD aged 60 years or older, and contrasted these with PROs of younger patients aged 40-59 years and 18-39 years. Adjusted for demographic and medical characteristics, patients ≥60 years had a lower Physical Component Summary, higher Mental Component Summary, and lower anxiety (Hospital Anxiety and Depression Scale-Anxiety) scores than patients in the two younger categories. For satisfaction with life, older persons had a higher score than patients aged 40-59 years. Registration: ClinicalTrials.gov NCT02150603.

Keywords: Aging; Functioning; Heart defects, congenital; Mental health; Patient-reported outcomes; Quality of life.

PubMed Disclaimer

Conflict of interest statement

Conflict of interest: None of the authors have a conflict of interest.

Comment in

Aging with congenital heart disease: are we satisfied with life or simply enjoying 'low-bar syndrome'?
Ross S. Ross S. Eur J Cardiovasc Nurs. 2023 May 25;22(4):e32. doi: 10.1093/eurjcn/zvac110. Eur J Cardiovasc Nurs. 2023. PMID: 36449388 No abstract available.

Publication types

Actions

MeSH terms

Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions

Associated data

Actions
- Search in PubMed
- Search in ClinicalTrials.gov

LinkOut - more resources

Full Text Sources
Medical
- ClinicalTrials.gov
- MedlinePlus Health Information
Miscellaneous
- NCI CPTAC Assay Portal

Save citation to file

Email citation

Add to Collections

Add to My Bibliography

Your saved search

Create a file for external citation management software

Your RSS Feed

Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS

Collaborators

Affiliations

Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS

Authors

Collaborators

Affiliations

Abstract

Conflict of interest statement

Comment in

Publication types

MeSH terms

Associated data

LinkOut - more resources

Full Text Sources

Medical

Miscellaneous