" Left Behind and Ignored": Increasing Awareness and Accessibility of Resources for Alzheimer's Disease and Related Dementias in the Deaf Community

doi:10.1177/00333549221110298

. 2023 Jul-Aug;138(4):573-577.

doi: 10.1177/00333549221110298. Epub 2022 Aug 1.

" Left Behind and Ignored": Increasing Awareness and Accessibility of Resources for Alzheimer's Disease and Related Dementias in the Deaf Community

Poorna Kushalnagar^{1

2}, Donalda Ammons¹, Alina Engelman³, Shilpa Hanumantha², Jaime Wilson⁴

Affiliations

¹ Center for Deaf Health Equity, Gallaudet University, Washington, DC, USA.
² School of Health and Human Services, Gallaudet University, Washington, DC, USA.
³ Department of Public Health, California State University, East Bay, Hayward, CA, USA.
⁴ Wilson Clinical Services, Seattle, WA, USA.

PMID: 35915974
PMCID: PMC10291161
DOI: 10.1177/00333549221110298

" Left Behind and Ignored": Increasing Awareness and Accessibility of Resources for Alzheimer's Disease and Related Dementias in the Deaf Community

Poorna Kushalnagar et al. Public Health Rep. 2023 Jul-Aug.

. 2023 Jul-Aug;138(4):573-577.

doi: 10.1177/00333549221110298. Epub 2022 Aug 1.

Authors

Poorna Kushalnagar^{1

2}, Donalda Ammons¹, Alina Engelman³, Shilpa Hanumantha², Jaime Wilson⁴

Affiliations

¹ Center for Deaf Health Equity, Gallaudet University, Washington, DC, USA.
² School of Health and Human Services, Gallaudet University, Washington, DC, USA.
³ Department of Public Health, California State University, East Bay, Hayward, CA, USA.
⁴ Wilson Clinical Services, Seattle, WA, USA.

PMID: 35915974
PMCID: PMC10291161
DOI: 10.1177/00333549221110298

No abstract available

Keywords: Alzheimer’s disease; deaf; dementia; hearing loss; sign language.

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Conflict of interest statement

The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

References

1. Ammons D, Engelman A, Kushalnagar P.Quality of life and needs of deaf informal caregivers of loved ones with Alzheimer’s and related dementia. Gerontol Geriatr Med. 2020;6:2333721420966518. doi:10.1177/2333721420966518 - DOI - PMC - PubMed
1. BOLD Infrastructure for Alzheimer’s Act, HR 4256, 115th Cong (2018). Pub L No 115-406. Accessed December 30, 2020. https://uscode.house.gov/statutes/pl/115/406.pdf
1. Centers for Disease Control and Prevention. BOLD Infrastructure for Alzheimer’s Act. Accessed December 30, 2020. https://www.cdc.gov/aging/bold/index.html
1. Ferguson-Coleman E, Johnston A, Young A, Brown F, de Sainte Croix R, Redfern P.How do we know what we don’t know? Exploring deaf people’s experiences of supporting their deaf family member living with dementia. Dementia (London). 2020;19(5):1381-1396. doi:10.1177/1471301218798993 - DOI - PubMed
1. Harry KM, Malcarne VL, Branz P, Fager M, Garcia BD, Sadler GR.Evaluating a skin cancer education program for the deaf community. J Cancer Educ. 2012;27(3):501-506. doi:10.1007/s13187-012-0367-7 - DOI - PMC - PubMed

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[1] Ammons D, Engelman A, Kushalnagar P.Quality of life and needs of deaf informal caregivers of loved ones with Alzheimer’s and related dementia. Gerontol Geriatr Med. 2020;6:2333721420966518. doi:10.1177/2333721420966518 - DOI - PMC - PubMed

[2] Ammons D, Engelman A, Kushalnagar P.Quality of life and needs of deaf informal caregivers of loved ones with Alzheimer’s and related dementia. Gerontol Geriatr Med. 2020;6:2333721420966518. doi:10.1177/2333721420966518 - DOI - PMC - PubMed

[3] BOLD Infrastructure for Alzheimer’s Act, HR 4256, 115th Cong (2018). Pub L No 115-406. Accessed December 30, 2020. https://uscode.house.gov/statutes/pl/115/406.pdf

[4] BOLD Infrastructure for Alzheimer’s Act, HR 4256, 115th Cong (2018). Pub L No 115-406. Accessed December 30, 2020. https://uscode.house.gov/statutes/pl/115/406.pdf

[5] Centers for Disease Control and Prevention. BOLD Infrastructure for Alzheimer’s Act. Accessed December 30, 2020. https://www.cdc.gov/aging/bold/index.html

[6] Centers for Disease Control and Prevention. BOLD Infrastructure for Alzheimer’s Act. Accessed December 30, 2020. https://www.cdc.gov/aging/bold/index.html

[7] Ferguson-Coleman E, Johnston A, Young A, Brown F, de Sainte Croix R, Redfern P.How do we know what we don’t know? Exploring deaf people’s experiences of supporting their deaf family member living with dementia. Dementia (London). 2020;19(5):1381-1396. doi:10.1177/1471301218798993 - DOI - PubMed

[8] Ferguson-Coleman E, Johnston A, Young A, Brown F, de Sainte Croix R, Redfern P.How do we know what we don’t know? Exploring deaf people’s experiences of supporting their deaf family member living with dementia. Dementia (London). 2020;19(5):1381-1396. doi:10.1177/1471301218798993 - DOI - PubMed

[9] Harry KM, Malcarne VL, Branz P, Fager M, Garcia BD, Sadler GR.Evaluating a skin cancer education program for the deaf community. J Cancer Educ. 2012;27(3):501-506. doi:10.1007/s13187-012-0367-7 - DOI - PMC - PubMed

[10] Harry KM, Malcarne VL, Branz P, Fager M, Garcia BD, Sadler GR.Evaluating a skin cancer education program for the deaf community. J Cancer Educ. 2012;27(3):501-506. doi:10.1007/s13187-012-0367-7 - DOI - PMC - PubMed

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" Left Behind and Ignored": Increasing Awareness and Accessibility of Resources for Alzheimer's Disease and Related Dementias in the Deaf Community

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" Left Behind and Ignored": Increasing Awareness and Accessibility of Resources for Alzheimer's Disease and Related Dementias in the Deaf Community

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