The sound of silence: where are the voices of patients in eczema guideline development?

Affiliations

¹ Global Parents for Eczema Research, Santa Barbara, CA, USA.
² Atopisk Eksem Forening, Frederikssund, Denmark.
³ National Eczema Society, London, UK.
⁴ Nottingham Support Group for Carers of Children with Eczema, Nottingham, UK.
⁵ ANDeA, Associazione Nazionale Dermatite Atopica, Prato, Italy.
⁶ Santa Lucia Foundation IRCCS, Rome, Italy.
⁷ Canadian Skin Patient Alliance, Ottawa, ON, Canada.
⁸ Eczema Association of Australasia, Cleveland, QLD, Australia.
⁹ Association Française de l'Eczéma, Redon, France.
¹⁰ Eczema Support Australia, Hope Island, QLD, Australia.
¹¹ International Topical Steroid Awareness Network, Dacula, GA, USA.
¹² Dutch Association for People with Atopic Dermatitis, Nijkerk, the Netherlands.

Korey Capozza et al. Br J Dermatol. 2022 Dec.

. 2022 Dec;187(6):1005-1006.

doi: 10.1111/bjd.21822. Epub 2022 Sep 2.

¹ Global Parents for Eczema Research, Santa Barbara, CA, USA.
² Atopisk Eksem Forening, Frederikssund, Denmark.
³ National Eczema Society, London, UK.
⁴ Nottingham Support Group for Carers of Children with Eczema, Nottingham, UK.
⁵ ANDeA, Associazione Nazionale Dermatite Atopica, Prato, Italy.
⁶ Santa Lucia Foundation IRCCS, Rome, Italy.
⁷ Canadian Skin Patient Alliance, Ottawa, ON, Canada.
⁸ Eczema Association of Australasia, Cleveland, QLD, Australia.
⁹ Association Française de l'Eczéma, Redon, France.
¹⁰ Eczema Support Australia, Hope Island, QLD, Australia.
¹¹ International Topical Steroid Awareness Network, Dacula, GA, USA.
¹² Dutch Association for People with Atopic Dermatitis, Nijkerk, the Netherlands.

No abstract available

References

1. Arents BWM, van Zuuren EJ, Vermeulen S et al. Global Guidelines in Dermatology Mapping Project (GUIDEMAP), a systematic review of atopic dermatitis clinical practice guidelines: are they clear, unbiased, trustworthy and evidence based (CUTE)? Br J Dermatol 2022; 186:792–802. - PMC - PubMed
1. Graham R, Mancher M, Miller Wolman D, Greenfield S, Steinberg E, eds. Clinical Practice Guidelines We Can Trust. Washington DC: The National Academic Press, 2011. - PubMed
1. Armstrong MJ, Rueda JD, Gronseth GS, Mullins CD. Framework for enhancing clinical practice guidelines through continuous patient engagement. Health Expect 2017; 20:3–10. - PMC - PubMed
1. Schünemann H, Brożek J, Guyatt G et al. GRADE Handbook. Available at: https://gdt.gradepro.org/app/handbook/handbook.html (last accessed 16 August 2022).
1. National Institute of Health and Care Excellence . The guideline development process – an overview for stakeholders, the public and the NHS (third edition). Available at: https://www.nice.org.uk/guidance/cg57/documents/the‐guideline‐developmen... (last accessed 16 August 2022).