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. 2022 Sep 13;17(1):122.
doi: 10.1007/s11657-022-01163-0.

Alliance for the development of the Argentinian Hip Fracture Registry

Ezequiel Monteverde  1 , María Diehl  2 , Magdalena Saieg  3 , María Beauchamp  4 , Jorge Luis Alberto Castellini  5 , Jorge Alberto Neira  6 , Roberto Félix Klappenbach  4 , Paula Rey  7 , Matías Mirofsky  8 , Rosana Quintana  9 , Bruno Rafael Boietti  10 , María Belén Zanchetta  11 , Evangelina Giacoia  12 , Betina Lartigue  4 , Ana Silvina Abbate  13 , Arnaldo Medina  14 , Verónica Silvina Matassa  15 , Roberto Olivetto  5 , Romina Dodero  8 , Ignacio Maglio  14 , Mercedes Bordes  4 , Julio Nemerovsky  10 , Laura Bosque  4
Affiliations

Alliance for the development of the Argentinian Hip Fracture Registry

Ezequiel Monteverde et al. Arch Osteoporos. .

Abstract

Age expectancy has significantly increased over the last 50 years, as well as some age-related health conditions such as hip fractures. The development of hip fracture registries has shown enhanced patient outcomes through quality improvement strategies. The development of the Argentinian Hip Fracture Registry is going in the same direction.

Introduction: Age expectancy has increased worldwide in the last 50 years, with the population over 64 growing from 4.9 to 9.1%. As fractures are an important problem in this age group, specific approaches such as hip fracture registries (HFR) are needed. Our aim is to communicate the Argentinian HFR (AHFR) development resulting from an alliance between Fundación Trauma, Fundación Navarro Viola, and the Argentinian Network of Hip Fracture in the elderly.

Methods: Between October 2020 and May 2021, an iterative consensus process involving 5 specialty-focused meetings and 8 general meetings with more than 20 specialists was conducted. This process comprised inclusion criteria definitions, dataset proposals, website deployment with data protection and user validation, the definition of hospital-adjusted registry levels, implementation planning, and sustainability strategies.

Results: By June 2021, we were able to (1) outline data fields, including epidemiological, clinical, and functional dimensions for the pre-admission, hospitalization, discharge, and follow-up stages; (2) define three levels: basic (53 fields), intermediate (85), and advanced (99); (3) identify 21 benchmarking indicators; and (4) make a correlation scheme among fracture classifications. Simultaneously, we launched a fundraising campaign to implement the AHFR in 30 centers, having completed 18.

Conclusion: AHFR development was based on four pillars: (1) representativeness and support, (2) solid definitions from onset, (3) committed teams, and (4) stable funding. This tool may contribute to the design of evidence-based health policies to improve patient outcomes, and we hope this experience will help other LMICs to develop their own tailored-to-their-needs registries.

Keywords: Aged; Frailty; Hip fractures; Osteoporosis; Quality improvement; Registry.

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Conflict of interest statement

Ezequiel Monteverde, Magdalena Saieg, María Beauchamp, Jorge Luis Alberto Castellini, Jorge Alberto Neira, Roberto Félix Klappenbach, Matías Mirofsky, Rosana Quintana, Betina Lartigue, Ana Silvina Abbate, Arnaldo Medina, Verónica Silvina Matassa, Roberto Olivetto, Romina Dodero, Ignacio Maglio, Mercedes Bordes, Julio Nemerovsky, and Laura Bosque declare not having any conflict of interest. María Diehl is the PI of an ongoing research project that receives funding from AMGEN. Paula Rey received speaker fees from Raffo, AMGEN, Lafage, and Tecnofarma. Bruno Boietti won a research grant from AMGEN in 2019. At present, he is not receiving any financial support from any osteoporosis-related company. María Belén Zanchetta received speaker fees from Raffo, AMGEN, and Ultragenyx. Evangelina Giacoia received fees from AMGEN as an advisory board member and speaker.

Figures

Fig. 1
Fig. 1
Outline of the AHFR development
See this image and copyright information in PMC

References

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    1. United Nations. Department of Economic and Social Affairs. Sustainable development. Available at: https://sdgs.un.org/goals. Accessed 26 May 2022
    1. World Health Organization. Decade of healthy ageing 2020–2030. Available at: https://www.who.int/initiatives/decade-of-healthy-ageing. Accessed 26 May 2022
    1. Riemen AHK, Hutchinson JD (2016) The multidisciplinary management of hip fractures in older patients. Orthop Trauma 30: 117–122. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4921687/pdf/main.pdf. Accessed 26 May 2022 - PMC - PubMed

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