Disaggregation of Race and Ethnicity Group Data: Research-to-Practice Issues in Clinical Environments
- PMID: 36136351
- PMCID: PMC10939056
- DOI: 10.1001/jama.2022.17194
Disaggregation of Race and Ethnicity Group Data: Research-to-Practice Issues in Clinical Environments
Plain language summary
This Viewpoint discusses the importance of accurately categorizing and collecting race and ethnicity data, matching self-identity with race and ethnicity labels, in an effort to quantify the extent of health disparities.
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References
-
- Schneider M. Census ready to study combining race, ethnicity questions. Associated Press. Accessed August 22, 2022. https://abcnews.go.com/Lifestyle/wireStory/census-ready-studycombining-r...
-
- Orvis K. OMB launches new public listening sessions on federal race and ethnicity revision. Accessed September 18, 2022. https://www.whitehouse.gov/omb/briefing-room/2022/08/30/omb-launches-new...