. 2022 Sep 29;12(9):e062008.

doi: 10.1136/bmjopen-2022-062008.

Assessing the sensibility and utility of a short-form version of the HIV Disability Questionnaire in clinical practice settings in Canada, Ireland and the USA: a mixed methods study

Kelly K O'Brien^{1

2

3}, Patricia Solomon⁴, Soo Chan Carusone^{5

6}, Kristine M Erlandson⁷, Colm Bergin^{8

9}, Ahmed M Bayoumi^{2

10

11}, Steven E Hanna¹², Richard Harding¹³, Darren A Brown¹⁴, Jaime H Vera^{15

16}, Marta Boffito¹⁷, Carolann Murray⁶, Rachel Aubry¹⁸, Noreen O'Shea⁸, Natalie St Clair-Sullivan¹⁶, Mallory Boyd⁷, Marilyn Swinton¹⁸, Brittany Torres¹⁸, Aileen M Davis^{18

2}

Affiliations

¹ Department of Physical Therapy, University of Toronto Temerty Faculty of Medicine, Toronto, Ontario, Canada kelly.obrien@utoronto.ca.
² Institute of Health Policy, Management and Evaluation (IHPME), Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.
³ Rehabilitation Sciences Instiute (RSI), University of Toronto, Toronto, Ontario, Canada.
⁴ School of Rehabilitation Science, McMaster University Faculty of Health Sciences, Hamilton, Ontario, Canada.
⁵ McMaster Collaborative for Health and Aging, School of Nursing, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.
⁶ Casey House, Toronto, Ontario, Canada.
⁷ University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
⁸ Department of Genitourinary and Infectious Diseases (GUIDE) Clinic, St James's Hospital, Dublin, Ireland.
⁹ School of Medicine, Trinity College Dublin, Dublin, Ireland.
¹⁰ MAP Centre, St Michael's Hospital, Toronto, Ontario, Canada.
¹¹ Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
¹² Health Research Methods, Evidence and Impact, McMaster University, Hamilton, Ontario, Canada.
¹³ Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK.
¹⁴ Therapies Department, Chelsea and Westminster Hospital NHS Foundation Trust, London, UK.
¹⁵ Department of Global Health and Infection, Brighton and Sussex Medical School, Brighton, UK.
¹⁶ Brighton and Sussex University Hospitals NHS Trust, Brighton, UK.
¹⁷ Chelsea and Westminster Hospital NHS Foundation Trust, London, UK.
¹⁸ Department of Physical Therapy, University of Toronto Temerty Faculty of Medicine, Toronto, Ontario, Canada.

PMID: 36175103
PMCID: PMC10098270
DOI: 10.1136/bmjopen-2022-062008

Assessing the sensibility and utility of a short-form version of the HIV Disability Questionnaire in clinical practice settings in Canada, Ireland and the USA: a mixed methods study

Kelly K O'Brien et al. BMJ Open. 2022.

. 2022 Sep 29;12(9):e062008.

doi: 10.1136/bmjopen-2022-062008.

Authors

Affiliations

¹ Department of Physical Therapy, University of Toronto Temerty Faculty of Medicine, Toronto, Ontario, Canada kelly.obrien@utoronto.ca.
² Institute of Health Policy, Management and Evaluation (IHPME), Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.
³ Rehabilitation Sciences Instiute (RSI), University of Toronto, Toronto, Ontario, Canada.
⁴ School of Rehabilitation Science, McMaster University Faculty of Health Sciences, Hamilton, Ontario, Canada.
⁵ McMaster Collaborative for Health and Aging, School of Nursing, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.
⁶ Casey House, Toronto, Ontario, Canada.
⁷ University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
⁸ Department of Genitourinary and Infectious Diseases (GUIDE) Clinic, St James's Hospital, Dublin, Ireland.
⁹ School of Medicine, Trinity College Dublin, Dublin, Ireland.
¹⁰ MAP Centre, St Michael's Hospital, Toronto, Ontario, Canada.
¹¹ Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
¹² Health Research Methods, Evidence and Impact, McMaster University, Hamilton, Ontario, Canada.
¹³ Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK.
¹⁴ Therapies Department, Chelsea and Westminster Hospital NHS Foundation Trust, London, UK.
¹⁵ Department of Global Health and Infection, Brighton and Sussex Medical School, Brighton, UK.
¹⁶ Brighton and Sussex University Hospitals NHS Trust, Brighton, UK.
¹⁷ Chelsea and Westminster Hospital NHS Foundation Trust, London, UK.
¹⁸ Department of Physical Therapy, University of Toronto Temerty Faculty of Medicine, Toronto, Ontario, Canada.

PMID: 36175103
PMCID: PMC10098270
DOI: 10.1136/bmjopen-2022-062008

Abstract

Objectives: The Short-Form HIV Disability Questionnaire (SF-HDQ) was developed to measure the presence, severity and episodic nature of health challenges across six domains. Our aim was to assess the sensibility, utility and implementation of the SF-HDQ in clinical practice.

Design: Mixed methods study design involving semistructured interviews and questionnaire administration.

Participants: We recruited adults living with HIV and HIV clinicians in Canada, Ireland and the USA.

Methods: We electronically administered the SF-HDQ followed by a Sensibility Questionnaire (face and content validity, ease of usage, format) and conducted semistructured interviews to explore the utility and implementation of the SF-HDQ in clinical practice. The threshold for sensibility was a median score of >5/7 (adults living with HIV) and>4/7 (HIV clinicians) for ≥80% of items. Qualitative interview data were analysed using directed content analysis.

Results: Median sensibility scores were >5 (adults living with HIV; n=29) and >4 (HIV clinicians; n=16) for 18/19 (95%) items. Interview data indicated that the SF-HDQ represents the health-related challenges of living with HIV and other concurrent health conditions; captures the daily episodic nature of HIV; and is easy to use. Clinical utility included measuring health challenges and change over time, guiding referral to specialists and services, setting goals, facilitating communication and fostering a multidisciplinary approach to care. Considerations for implementation included flexible, person-centred approaches to administration, and communicating scores based on personal preferences.

Conclusions: The SF-HDQ possesses sensibility and utility for use in clinical settings with adults living with HIV and HIV clinicians in three countries.

Keywords: HIV & AIDS; QUALITATIVE RESEARCH; REHABILITATION MEDICINE.

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Conflict of interest statement

Competing interests: None declared.

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Assessing the sensibility and utility of a short-form version of the HIV Disability Questionnaire in clinical practice settings in Canada, Ireland and the USA: a mixed methods study

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Assessing the sensibility and utility of a short-form version of the HIV Disability Questionnaire in clinical practice settings in Canada, Ireland and the USA: a mixed methods study

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