Setting the top 10 eating disorder research and translation priorities for Australia

Phillip Aouad¹, Ashlea Hambleton¹, Peta Marks¹, Danielle Maloney^{1

2}, Shannon Calvert³, Belinda Caldwell⁴, Siân A McLean⁵, Beth Shelton⁶, Katherine Cowan⁷, John Feneley⁸, Genevieve Pepin⁹, Susan Paxton¹⁰, Michelle Williams¹¹, Thy Meddick¹², Sarah Squire¹³, Ian Hickie¹⁴, Frances Kay Lambkin¹⁵, Stephen Touyz¹, Sarah Maguire¹

Affiliations

¹ InsideOut Institute for Eating Disorders, Central Clinical School, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.
² Sydney Local Health District, NSW Health, Sydney, NSW, Australia.
³ Private Lived Experience Consultant, Perth, WA, Australia.
⁴ Eating Disorders Victoria, Melbourne, VIC, Australia.
⁵ School of Psychology and Public Health, La Trobe University, Melbourne, VIC, Australia.
⁶ National Eating Disorders Collaboration, Sydney, NSW, Australia.
⁷ James Lind Alliance, Southampton, UK.
⁸ NSW Health, Sydney, NSW, Australia.
⁹ School of Health & Social Development, Faculty of Health, Deakin University, Geelong, VIC, Australia.
¹⁰ Department of Psychology and Counselling, La Trobe University, Melbourne, VIC, Australia.
¹¹ Royal Hobart Hospital, Tasmanian Health Service, Hobart, TAS, Australia.
¹² Mental Health Alcohol and Other Drugs Branch, Clinical Excellence Queensland, Brisbane, QLD, Australia.
¹³ Butterfly Foundation, Sydney, NSW, Australia.
¹⁴ Brain and Mind Centre, The University of Sydney, Sydney, NSW, Australia.
¹⁵ School of Medicine and Public Health, University of Newcastle, Newcastle, NSW, Australia.

PMID: 36196038
DOI: 10.1177/00048674221128754

Setting the top 10 eating disorder research and translation priorities for Australia

Phillip Aouad et al. Aust N Z J Psychiatry. 2023 Sep.

. 2023 Sep;57(9):1281-1291.

doi: 10.1177/00048674221128754. Epub 2022 Oct 4.

Authors

Affiliations

¹ InsideOut Institute for Eating Disorders, Central Clinical School, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.
² Sydney Local Health District, NSW Health, Sydney, NSW, Australia.
³ Private Lived Experience Consultant, Perth, WA, Australia.
⁴ Eating Disorders Victoria, Melbourne, VIC, Australia.
⁵ School of Psychology and Public Health, La Trobe University, Melbourne, VIC, Australia.
⁶ National Eating Disorders Collaboration, Sydney, NSW, Australia.
⁷ James Lind Alliance, Southampton, UK.
⁸ NSW Health, Sydney, NSW, Australia.
⁹ School of Health & Social Development, Faculty of Health, Deakin University, Geelong, VIC, Australia.
¹⁰ Department of Psychology and Counselling, La Trobe University, Melbourne, VIC, Australia.
¹¹ Royal Hobart Hospital, Tasmanian Health Service, Hobart, TAS, Australia.
¹² Mental Health Alcohol and Other Drugs Branch, Clinical Excellence Queensland, Brisbane, QLD, Australia.
¹³ Butterfly Foundation, Sydney, NSW, Australia.
¹⁴ Brain and Mind Centre, The University of Sydney, Sydney, NSW, Australia.
¹⁵ School of Medicine and Public Health, University of Newcastle, Newcastle, NSW, Australia.

PMID: 36196038
DOI: 10.1177/00048674221128754

Abstract

Objectives: People with eating disorders, as well as their caregivers, experience high symptom burden, reduced quality of life and increased risk of early mortality. A lack of resources, disjointed vision and limited uptake of the evidence have limited the translation and implementation of research into practice. Little is known about what stakeholders (people with a lived experience, caregivers, health care professionals, researchers and policymakers) see as the most important research priorities. This study aimed to identify Australia's top 10 consensus-derived research and translation priorities for eating disorders.

Methods: Participants (n = 606) included people with a lived experience, carers, health care professionals (clinicians) and researchers working in eating disorders. The methodology aligned with the James Lind Alliance priority setting process, which involved oversight by a co-design advisory committee and utilised a national online interim priority setting survey and co-design workshops to identify the top 10 research and translation priorities.

Results: The initial national consultations elicited 1210 issues from 480 individuals. From this, 606 participants shortlisted 59 plain language questions in order of personal priority. In total, 16 questions were consistently ranked as important. As a final step, 24 individuals (with equal representation from all 4 stakeholder groups) attended the final prioritisation workshop to co-establish the top 10 research and translation priorities.

Conclusion: The findings highlight the need for people with a lived experience, carers, health professionals and researchers to work collaboratively to develop co-designed research and translation activities that address the key areas of early intervention, prevention, understanding the aetiology of eating disorders and effective treatment of people experiencing eating disorders.

Keywords: Anorexia nervosa; Australia; bulimia nervosa; eating disorders; policy; priorities; research.

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Setting the top 10 eating disorder research and translation priorities for Australia

Affiliations

Setting the top 10 eating disorder research and translation priorities for Australia

Authors

Affiliations

Abstract

MeSH terms

LinkOut - more resources

Full Text Sources

Research Materials