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. 2022 Oct 6;12(10):e061659.
doi: 10.1136/bmjopen-2022-061659.

Collaborative research methods and best practice with children and young people: protocol for a mixed-method review of the health and social sciences literature

Rebecca Nowland  1 , Laura Robertson  2 , Nicola Farrelly  3 , Alastair Roy  3 , Darren Sharpe  4 , Cath Harris  5 , Nora Morocza  4 , Cath Larkins  3
Affiliations

Collaborative research methods and best practice with children and young people: protocol for a mixed-method review of the health and social sciences literature

Rebecca Nowland et al. BMJ Open. .

Abstract

Introduction: Children and young people have the right to participate in research on matters that affect them, and their contribution improves research quality and insights from findings. Discrete participatory approaches are used across different disciplines. This review will provide a synthesis of existing literature from different disciplines by working with young people and adults experienced in participatory research to develop a broad definition of child and youth led research and to identify best practice.

Methods and analysis: Comprehensive searches will be conducted in eight electronic databases (PsycINFO, Medline, CINAHL, Embase, SocINDEX, ASSIA: Applied Social Sciences Index and Abstracts (Proquest), Social Care Online and SCOPUS). Grey literature reports will also be sourced using Google searching. Eligible studies will be English-language primary studies and reviews on collaborative research with children and young people (aged 5-25 years) published from 2000 onwards. Qualitative and quantitative data will be integrated in a single qualitative synthesis following the JBI convergent integrated approach. Study quality will be assessed by developed checklists based on existing participation tools cocreated with the project steering group and co-creation activities with young people.

Ethics and dissemination: Ethical approval is not required as no primary data will be collected. The review will develop guidance on best practice for collaborative research with children and young people, synthesising learnings from a wide variety of disciplines. Dissemination will be via peer-reviewed publications, presentations at academic conferences and lay summaries for various stakeholders. Opportunities for cocreation of outputs will be sought with the young researchers and the project steering committee.

Prospero registration number: CRD42021246378.

Keywords: Child & adolescent psychiatry; Community child health; PUBLIC HEALTH; QUALITATIVE RESEARCH; SOCIAL MEDICINE; STATISTICS & RESEARCH METHODS.

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Conflict of interest statement

Competing interests: None declared.

References

    1. Rouncefield-Swales A, Harris J, Carter B, et al. . Children and young people's contributions to public involvement and engagement activities in health-related research: a scoping review. PLoS One 2021;16:e0252774. 10.1371/journal.pone.0252774 - DOI - PMC - PubMed
    1. Assembly UG. Treaty Series. In: Convention on the rights of the child United nations. 1577, 1989: 1–23.
    1. Co E. Council of Europe recommendation on the participation of children and young people under the age of 18, 2012.
    1. Denegri S, Coldham T, Eglin S. Going the extra mile: improving the nation’s health and wellbeing through public involvement in research. London: NIHR, 2015.
    1. Wilson O, Daxenberger L, Dieudonne L. A rapid evidence review of young people’s involvement in health research. 3. London: Wellcome, 2020.

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