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. 2023 Sep;49(3):198-205.
doi: 10.1111/jorc.12443. Epub 2022 Oct 17.

Experiences of adults living with a kidney transplant-Effects on physical activity, physical function, and quality of life: A descriptive phenomenological study

Affiliations

Experiences of adults living with a kidney transplant-Effects on physical activity, physical function, and quality of life: A descriptive phenomenological study

Joe Antoun et al. J Ren Care. 2023 Sep.

Abstract

Background: Although kidney transplantation is the best treatment for kidney failure, scarce research has examined its effects on physical activity, physical function and quality of life.

Objectives: To investigate the experiences of a group of adults living with advanced kidney disease focusing on quality of life, physical activity and function and to see how findings differ in a group of kidney transplant recipients.

Approach: Individual semi-structured interviews were conducted with adults with advanced kidney disease (n = 10; 70.5 ± 8.9 years) and adults who had received a kidney transplant (n = 10; 50.7 ± 11.5 years; transplant age: 42.7 ± 20.9 months). Interviews were transcribed verbatim, thematically analysed and composite vignettes developed.

Findings: Individuals with advanced kidney disease described a sense of loss and alteration to their life plans. Kidney transplant recipients reported increased freedom, independence and a return to near normality, with improved quality of life, physical activity and function compared with their pre-transplant lives. However, transplant recipients also described living with anxiety about the health of their transplant and fear it may fail.

Conclusion: Whilst adults living with advanced kidney disease often experience a reduced quality of life, physical activity and function, kidney transplantation can help facilitate a return to pre-disease levels of physical activity, physical function and quality of life. However, transplant recipients also reported living with anxiety around their new kidney failing. This study demonstrates the variability in the lived experiences of adults living with advanced kidney disease or a kidney transplant and highlights the need for patient-centred care.

Keywords: chronic kidney disease; kidney transplant; physical activity; quality of life; well-being.

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References

REFERENCES

    1. Almutary, H., Bonner, A. & Douglas, C. (2016) Which patients with chronic kidney disease have the greatest symptom burden? A comparative study of advanced CKD stage and dialysis modality. Journal of Renal Care, 42(2), 73-82. Available from: https://doi.org/10.1111/JORC.12152
    1. Antoun, J., Brown, D.J., Jones, D.J.W., Clarkson, B.G., Shepherd, A.I., Sangala, N.C. et al. (2022a) Exploring patients' experiences of the impact of dialysis therapies on quality of life and wellbeing. Journal of Renal Care, 1-9. Available from: https://doi.org/10.1111/jorc.12416
    1. Antoun, J., Brown, D.J., Jones, D.J.W., Sangala, N.C., Lewis, R.J., Shepherd, A.I. et al. (2021) Understanding the impact of initial COVID-19 restrictions on physical activity, wellbeing and quality of life in shielding adults with end-stage renal disease in the United Kingdom dialysing at home versus in-centre and their experiences with telemedicine. International Journal of Environmental Research and Public Health, 18(6), 3144. Available from: https://doi.org/10.3390/ijerph18063144
    1. Antoun, J., Shepherd, A.I., Mcnarry, M.A., Mackintosh, K.A., Corbett, J., Sangala, N.C. et al. (2022b) Habitual physical activity and sleep in adults with end-stage renal disease. Journal of Clinical Exercise Physiology, 11, 38-43.
    1. Bradbury-Jones, C., Taylor, J. & Herber, O.R. (2014) Vignette development and administration: a framework for protecting research participants. International Journal of Social Research Methodology, 17(4), 427-440. Available from: https://doi.org/10.1080/13645579.2012.750833

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