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Observational Study
. 2022 Nov 10;17(11):e0277267.
doi: 10.1371/journal.pone.0277267. eCollection 2022.

The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?

Mariela Acuña Mora  1   2 , Carina Sparud-Lundin  1 , Eva Fernlund  3   4 , Shalan Fadl  5 , Kazamia Kalliopi  6 , Annika Rydberg  7 , Åsa Burström  8 , Katarina Hanseus  9 , Philip Moons  1   10   11 , Ewa-Lena Bratt  1   12
Affiliations
Observational Study

The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?

Mariela Acuña Mora et al. PLoS One. .

Erratum in

Abstract

Background: Theoretical literature and cross-sectional studies suggest empowerment is associated with other patient-reported outcomes (PROs). However, it is not known if patient empowerment is leading to improvements in other PROs or vice versa.

Aims: The present study aimed to examine the direction of effects between patient empowerment and PROs in young persons with congenital heart disease (CHD).

Methods: As part of the STEPSTONES-CHD trial, adolescents with CHD from seven pediatric cardiology centers in Sweden were included in a longitudinal observational study (n = 132). Data were collected when patients were 16 (T0), 17 (T1) and 18 ½ years old (T2). The Gothenburg Young Persons Empowerment Scale (GYPES) was used to measure patient empowerment. Random intercepts cross-lagged panel models between patient empowerment and PROs (communication skills; patient-reported health; quality of life; and transition readiness) were undertaken.

Results: We found a significant cross-lagged effect of transition readiness over patient empowerment between T1 and T2, signifying that a higher level of transition readiness predicted a higher level of patient empowerment. No other significant cross-lagged relationships were found.

Conclusion: Feeling confident before the transition to adult care is necessary before young persons with CHD can feel in control to manage their health and their lives. Clinicians interested in improving patient empowerment during the transitional period should consider targeting transition readiness.

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Conflict of interest statement

The authors have declared that no competing interests exist.

Figures

Fig 1
Fig 1. Random intercepts cross-lagged model tested.
Fig 2
Fig 2. Simplified results from the random intercept cross-lagged panel models.
This figure only shows the within person effects. * p≤0.05; ** p≤0.01; *** p≤0.001.
See this image and copyright information in PMC

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