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. 2022 Nov 11;11(11):CD007297.
doi: 10.1002/14651858.CD007297.pub3.

Shared decision-making interventions for people with mental health conditions

Yumi Aoki  1   2 , Yukari Yaju  3 , Tomohiro Utsumi  4   5 , Leigh Sanyaolu  6 , Marianne Storm  7   8 , Yoshikazu Takaesu  2   9 , Koichiro Watanabe  2 , Norio Watanabe  10 , Edward Duncan  11 , Adrian Gk Edwards  6
Affiliations

Shared decision-making interventions for people with mental health conditions

Yumi Aoki et al. Cochrane Database Syst Rev. .

Abstract

Background: One person in every four will suffer from a diagnosable mental health condition during their life. Such conditions can have a devastating impact on the lives of the individual and their family, as well as society. International healthcare policy makers have increasingly advocated and enshrined partnership models of mental health care. Shared decision-making (SDM) is one such partnership approach. Shared decision-making is a form of service user-provider communication where both parties are acknowledged to bring expertise to the process and work in partnership to make a decision. This review assesses whether SDM interventions improve a range of outcomes. This is the first update of this Cochrane Review, first published in 2010.

Objectives: To assess the effects of SDM interventions for people of all ages with mental health conditions, directed at people with mental health conditions, carers, or healthcare professionals, on a range of outcomes including: clinical outcomes, participation/involvement in decision-making process (observations on the process of SDM; user-reported, SDM-specific outcomes of encounters), recovery, satisfaction, knowledge, treatment/medication continuation, health service outcomes, and adverse outcomes.

Search methods: We ran searches in January 2020 in CENTRAL, MEDLINE, Embase, and PsycINFO (2009 to January 2020). We also searched trial registers and the bibliographies of relevant papers, and contacted authors of included studies. We updated the searches in February 2022. When we identified studies as potentially relevant, we labelled these as studies awaiting classification.

Selection criteria: Randomised controlled trials (RCTs), including cluster-randomised controlled trials, of SDM interventions in people with mental health conditions (by Diagnostic and Statistical Manual of Mental Disorders (DSM) or International Classification of Diseases (ICD) criteria).

Data collection and analysis: We used standard methodological procedures expected by Cochrane. Two review authors independently screened citations for inclusion, extracted data, and assessed risk of bias. We used GRADE to assess the certainty of the evidence.

Main results: This updated review included 13 new studies, for a total of 15 RCTs. Most participants were adults with severe mental illnesses such as schizophrenia, depression, and bipolar disorder, in higher-income countries. None of the studies included children or adolescents. Primary outcomes We are uncertain whether SDM interventions improve clinical outcomes, such as psychiatric symptoms, depression, anxiety, and readmission, compared with control due to very low-certainty evidence. For readmission, we conducted subgroup analysis between studies that used usual care and those that used cognitive training in the control group. There were no subgroup differences. Regarding participation (by the person with the mental health condition) or level of involvement in the decision-making process, we are uncertain if SDM interventions improve observations on the process of SDM compared with no intervention due to very low-certainty evidence. On the other hand, SDM interventions may improve SDM-specific user-reported outcomes from encounters immediately after intervention compared with no intervention (standardised mean difference (SMD) 0.63, 95% confidence interval (CI) 0.26 to 1.01; 3 studies, 534 participants; low-certainty evidence). However, there was insufficient evidence for sustained participation or involvement in the decision-making processes. Secondary outcomes We are uncertain whether SDM interventions improve recovery compared with no intervention due to very low-certainty evidence. We are uncertain if SDM interventions improve users' overall satisfaction. However, one study (241 participants) showed that SDM interventions probably improve some aspects of users' satisfaction with received information compared with no intervention: information given was rated as helpful (risk ratio (RR) 1.33, 95% CI 1.08 to 1.65); participants expressed a strong desire to receive information this way for other treatment decisions (RR 1.35, 95% CI 1.08 to 1.68); and strongly recommended the information be shared with others in this way (RR 1.32, 95% CI 1.11 to 1.58). The evidence was of moderate certainty for these outcomes. However, this same study reported there may be little or no effect on amount or clarity of information, while another small study reported there may be little or no change in carer satisfaction with the SDM intervention. The effects of healthcare professional satisfaction were mixed: SDM interventions may have little or no effect on healthcare professional satisfaction when measured continuously, but probably improve healthcare professional satisfaction when assessed categorically. We are uncertain whether SDM interventions improve knowledge, treatment continuation assessed through clinic visits, medication continuation, carer participation, and the relationship between users and healthcare professionals because of very low-certainty evidence. Regarding length of consultation, SDM interventions probably have little or no effect compared with no intervention (SDM 0.09, 95% CI -0.24 to 0.41; 2 studies, 282 participants; moderate-certainty evidence). On the other hand, we are uncertain whether SDM interventions improve length of hospital stay due to very low-certainty evidence. There were no adverse effects on health outcomes and no other adverse events reported.

Authors' conclusions: This review update suggests that people exposed to SDM interventions may perceive greater levels of involvement immediately after an encounter compared with those in control groups. Moreover, SDM interventions probably have little or no effect on the length of consultations. Overall we found that most evidence was of low or very low certainty, meaning there is a generally low level of certainty about the effects of SDM interventions based on the studies assembled thus far. There is a need for further research in this area.

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Conflict of interest statement

YA: co‐authorship of the included study Aoki 2019a YY: none declared TU: has received lecture fees from Eisai. YT: has received lecture fees from Otsuka Pharmaceutical, Meiji Seika Pharma, Eli Lilly, Eisai, Mitsubishi Tanabe Pharma, MSD, and Yoshitomi Pharmaceutical, and has received research funding from Otsuka Pharmaceutical, Meiji Seika Pharma, MSD, and Eisai; and co‐authorship of the included study Aoki 2019a. NW: has received royalties from Sogensha, Medical Review, and Akatsuki for writings. KW: has received manuscript fees or speaker’s honoraria from Daiichi Sankyo, Eisai, Eli Lilly, GlaxoSmithKline, Janssen Pharmaceutical, Kyowa Pharmaceutical, Meiji Seika Pharma, Mitsubishi Tanabe Pharma, MSD, Otsuka Pharmaceutical, Pfizer, Shionogi, Sumitomo Dainippon Pharma, Takeda Pharmaceutical, Yoshitomi, and has received research/grant support from Astellas Pharma, Daiichi Sankyo, Eisai, MSD, Mitsubishi Tanabe Pharma, Meiji Seika Pharma, Otsuka Pharmaceutical, Pfizer, Shionogi, Sumitomo Dainippon Pharma, and is a consultant of Eisai, Eli Lilly, Kyowa Pharmaceutical, Otsuka Pharmaceutical, Pfizer, Sumitomo Dainippon Pharma, Taisho Toyama Pharmaceutical, and Takeda Pharmaceutical; and co‐authorship of the included study Aoki 2019a. ED: none declared LS: none declared MS: none declared AE: none declared

Those members of the review author team who co‐authored the included study Aoki 2019a did not select, extract data, or appraise the risk of bias for this study. GRADE ratings for the assessment of the overall certainty of the evidence for each outcome were led by review authors other than YA, TY, and KW (authors on the Aoki 2019a trial).

Figures

1
1
PRISMA study flow diagram for initial search in January 2020
2
2
PRISMA study flow diagram for update search in February 2022
3
3
Risk of bias graph: review authors' judgements about each risk of bias item presented as percentages across all included studies
4
4
Risk of bias summary: review authors' judgements about each risk of bias item for each included study
1.1
1.1. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 1: Clinical outcomes ‐ psychiatric symptoms
1.2
1.2. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 2: Clinical outcomes ‐ depression (1 to 6 months)
1.3
1.3. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 3: Clinical outcomes ‐ depression (1 to 6 months) ‐ sensitivity analysis removing low‐quality studies
1.4
1.4. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 4: Clinical outcomes ‐ depression (6 months or more)
1.5
1.5. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 5: Clinical outcomes ‐ depression (6 months or more) ‐ sensitivity analysis removing low‐quality studies
1.6
1.6. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 6: Clinical outcomes ‐ depression remission  (1 to 6 months)
1.7
1.7. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 7: Clinical outcomes ‐ depression remission (6 months or more)
1.8
1.8. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 8: Clinical outcomes ‐ depression response (1 to 6 months)
1.9
1.9. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 9: Clinical outcomes ‐ depression response (6 months or more)
1.10
1.10. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 10: Clinical outcomes ‐ readmission rates (1 to 6 months)
1.11
1.11. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 11: Clinical outcomes ‐ readmission rates (6 months or more)
1.12
1.12. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 12: Participation ‐ observations on the process of SDM
1.13
1.13. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 13: Participation ‐ SDM‐specific user‐reported outcomes from encounters (immediately after intervention)
1.14
1.14. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 14: Participation ‐ SDM‐specific user‐reported outcomes from encounters (6 months or more)
1.15
1.15. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 15: Recovery
1.16
1.16. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 16: Satisfaction ‐ overall users' satisfaction immediately after intervention
1.17
1.17. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 17: Satisfaction ‐ overall users' satisfaction at hospital discharge
1.18
1.18. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 18: Satisfaction ‐ overall users' satisfaction in 6 months or more
1.19
1.19. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 19: Satisfaction ‐ users' satisfaction with received information: right amount of information (categorical)
1.20
1.20. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 20: Satisfaction ‐ users' satisfaction with received information: information given was clear (categorical)
1.21
1.21. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 21: Satisfaction ‐ users' satisfaction with received information: information given was helpful (categorical)
1.22
1.22. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 22: Satisfaction ‐ users' satisfaction with received information: strongly desire to receive information this way for other treatment decisions (categorical)
1.23
1.23. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 23: Satisfaction ‐ users' satisfaction with received information: strongly recommend the way information was shared to others (categorical)
1.24
1.24. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 24: Satisfaction ‐ carer satisfaction
1.25
1.25. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 25: Satisfaction ‐ healthcare professional satisfaction
1.26
1.26. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 26: Satisfaction ‐ healthcare professional satisfaction (categorical)
1.27
1.27. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 27: Knowledge
1.28
1.28. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 28: Treatment continuation ‐ clinic visits (1 to 6 months)
1.29
1.29. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 29: Treatment continuation ‐ clinic visits (6 months or more)
1.30
1.30. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 30: Medication continuation (1 to 6 months)
1.31
1.31. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 31: Medication continuation (1 to 6 months) (categorical)
1.32
1.32. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 32: Medication continuation (6 months or more)
1.33
1.33. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 33: Medication continuation (6 months or more) (categorical)
1.34
1.34. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 34: Carer participation
1.35
1.35. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 35: Relationship between service users and healthcare professionals, assessed by users
1.36
1.36. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 36: Relationship between service users and healthcare professionals, assessed by healthcare professionals
1.37
1.37. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 37: Health service use outcomes ‐ length of consultation
1.38
1.38. Analysis
Comparison 1: Shared decision‐making versus control, Outcome 38: Health service use outcomes ‐ length of hospital stay
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References

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Bauer 2014 {published data only}
    1. Bauer AM, Parker MM, Schillinger D, Katon W, Adler N, Adams AS, et al. Associations between antidepressant adherence and shared decision-making, patient-provider trust, and communication among adults with diabetes: diabetes study of Northern California (DISTANCE). Journal of General Internal Medicine 2014;29(8):1139-47. [DOI: 10.1007/s11606-014-2845-6] [PMID: ] - DOI - PMC - PubMed
Bauer 2016 {published data only}
    1. Bauer MS, Miller C, Kim B, Lew R, Weaver K, Coldwell C, et al. Partnering with health system operations leadership to develop a controlled implementation trial. Implementation Science 2016;11:22. [DOI: 10.1186/s13012-016-0385-7] [PMID: ] - DOI - PMC - PubMed
Becker 2016 {published data only}
    1. Becker MP, Christensen BK, Cunningham CE, Furimsky I, Rimas H, Wilson F, et al. Preferences for early intervention mental health services: a discrete-choice conjoint experiment. Psychiatric Services 2016;67(2):184-91. [DOI: 10.1176/appi.ps.201400306] [PMID: ] - DOI - PubMed
Bieber 2017 {published data only}
    1. Bieber C, Gschwendtner K, Müller N, Eich W. Shared decision making (SDM) - patient and physician as a Team [Partizipative Entscheidungsfindung (PEF) – Patient und Arzt als Team]. Rehabilitation (Stuttg) 2017;56(3):198-213. [DOI: 10.1055/s-0043-106018] [PMID: ] - DOI - PubMed
    1. Bieber C, Gschwendtner K, Mueller N, Eich W. Shared Decision Making (SDM) Patient and Physician as a Team. Diabetologie und stoffwechsel 2019;14(4):277-291.
Boehmer 2014 {published data only}
    1. Boehmer KR, Egginton JS, Branda ME, Kryworuchko J, Bodde A, Montori VM, et al. Missed opportunity? Caregiver participation in the clinical encounter. A videographic analysis. Patient Education and Counseling 2014;96(3):302-7. [DOI: 10.1016/j.pec.2014.05.016] [PMID: ] - DOI - PubMed
Bonin 2020 {published data only}
    1. Bonin JP, Lavoie-Tremblay M, Lesage A, Briand C, Piat M. Situation of families of mentally ill persons in a context of change in mental health system: a time for stakeholders and families collaboration. European Psychiatry 2020;27(Suppl 1):P-590.
Brenes 2018 {published data only}
    1. Brenes GA, Divers J, Miller ME, Danhauer SC. A randomized preference trial of cognitive-behavioral therapy and yoga for the treatment of worry in anxious older adults. Contemporary Clinical Trials Communications 2018;10:169-76. [DOI: 10.1016/j.conctc.2018.05.002] [PMID: ] - DOI - PMC - PubMed
Brinkman 2013 {published data only}
    1. Brinkman WB, Hartl Majcher J, Poling LM, Shi G, Zender M, Sucharew H, et al. Shared decision-making to improve attention-deficit hyperactivity disorder care. Patient Education and Counseling 2013;93(1):95-101. [DOI: 10.1016/j.pec.2013.04.009] [PMID: ] - DOI - PMC - PubMed
Brodney 2021 {published data only}
    1. Brodney S, Valentine KD, Sepucha K. Psychometric evaluation of a decision quality instrument for medication decisions for treatment of depression symptoms. BMC Medical Informatics and Decision Making 2021;21(1):252. [DOI: 10.1186/s12911-021-01611-w] [PMID: ] - DOI - PMC - PubMed
Brogan 2010 {published data only}
    1. Brogan A, Hevey D, Pignatti R. Anorexia, bulimia, and obesity: shared decision making deficits on the Iowa Gambling Task (IGT). Journal of the International Neuropsychological Society 2010;16(4):711-5. [DOI: 10.1017/S1355617710000354] [PMID: ] - DOI - PubMed
Bruner 2011 {published data only}
    1. Bruner P, Waite R, Davey MP. Providers' perspectives on collaboration. International Journal of Integrated Care 2011;11:e123. [PMID: ] - PMC - PubMed
Büchi 2010 {published data only}
    1. Büchi S, Straub S, Schwager U. Shared decision-making and individualized goal setting - a pilot trial using PRISM (Pictorial Representation of Illness and Self Measure) in psychiatric inpatients ["Shared decision making" und individualisierte Therapiezielsetzung - eine Pilotuntersuchung mit PRISM (Pictorial Representation of Illness and Self Measure) bei stationären Psychiatriepatienten]. Praxis 2010;99(24):1467-77. [DOI: 10.1024/1661-8157/a000320] [PMID: ] - DOI - PubMed
Burn 2019 {published data only}
    1. Burn E, Conneely M, Leverton M, Giacco D. Giving patients choices during involuntary admission: a new intervention. Frontiers in Psychiatry 2019;10:433. [DOI: 10.3389/fpsyt.2019.00433] [PMID: ] - DOI - PMC - PubMed
Butler 2015 {published data only}
    1. Butler AM, Weller B, Titus C. Relationships of shared decision making with parental perceptions of child mental health functioning and care. Administration and Policy in Mental Health and Mental Health Services Research 2015;42(6):767-74. [DOI: 10.1007/s10488-014-0612-y] [PMID: ] - DOI - PMC - PubMed
Campbell 2014 {published data only}
    1. Campbell SR, Holter MC, Manthey TJ, Rapp CA. The effect of CommonGround software and decision support center. American Journal of Psychiatric Rehabilitation 2014;17(2):166-80.
    1. Campbell SR. The effect of the CommonGround software and the decision support center on psychiatric patient-centered communication. Dissertation Abstracts International; section A: humanities and social sciences 2010;70(12):4853.
Carey 2020 {published data only}
    1. Carey M, Sanson-Fisher R, Zwar N, Mazza D, Meadows G, Piterman L, et al. Improving depression outcomes among Australian primary care patients: protocol for a cluster randomised controlled trial. BMJ Open 2020;10(2):e032057. [DOI: 10.1136/bmjopen-2019-032057] [PMID: ] - DOI - PMC - PubMed
Carlini 2017 {published data only}
    1. Carlini DJ. Transcranial magnetic stimulation and antidepressant medication for the treatment of major depression: a cost-effectiveness comparison to assist patient-physician decision making. Dissertation Abstracts International; section A: humanities and social sciences 2017;78(5):[no pagination].
Chakraborty 2009 {published data only}
    1. Chakraborty K, Avasthi A, Kumar S, Grover S. Attitudes and beliefs of patients of first episode depression towards antidepressants and their adherence to treatment. Social Psychiatry and Psychiatric Epidemiology 2009;44(6):482-8. [DOI: 10.1007/s00127-008-0468-0] [PMID: ] - DOI - PubMed
Chakraborty 2016 {published data only}
    1. Chakraborty B, Ghosh P, Moodie EE, Rush AJ. Estimating optimal shared-parameter dynamic regimens with application to a multistage depression clinical trial. Biometrics 2016;72(3):865-76. [DOI: 10.1111/biom.12493] [PMID: ] - DOI - PMC - PubMed
Cheng 2021 {published data only}
    1. Cheng KY, Yen CF. The social support, mental health, psychiatric symptoms, and functioning of persons with schizophrenia participating in peer co-delivered vocational rehabilitation: a pilot study in Taiwan. BMC Psychiatry 2021;21(1):268. [DOI: 10.1186/s12888-021-03277-0] [PMID: ] - DOI - PMC - PubMed
Choi 2017 {published data only}
    1. Choi J, Lysaker PH, Bell MD, Dixon L, Margolies P, Gold M, et al. Decisional informatics for psychosocial rehabilitation: a feasibility pilot on tailored and fluid treatment algorithms for serious mental illness. Journal of Nervous and Mental Disease 2017;205(11):867-72. [DOI: 10.1097/NMD.0000000000000747] [PMID: ] - DOI - PMC - PubMed
Christopher 2012 {published data only}
    1. Christopher PP, Leykin Y, Appelbaum PS, Holtzheimer PE 3rd, Mayberg HS, Dunn LB. Enrolling in deep brain stimulation research for depression: influences on potential subjects' decision making. Depression and Anxiety 2012;29(2):139-46. [DOI: 10.1002/da.20916] [PMID: ] - DOI - PubMed
Clark 2011 {published data only}
    1. Clark L, Dombrovski AY, Siegle GJ, Butters MA, Shollenberger CL, Sahakian BJ, et al. Impairment in risk-sensitive decision-making in older suicide attempters with depression. Psychology and Aging 2011;26(2):321-30. [DOI: 10.1037/a0021646] [PMID: ] - DOI - PMC - PubMed
Cooper 2013 {published data only}
    1. Cooper LA, Ghods Dinoso BK, Ford DE, Roter DL, Primm AB, Larson SM, et al. Comparative effectiveness of standard versus patient-centered collaborative care interventions for depression among African Americans in primary care settings: the BRIDGE Study. Health Services Research 2013;48(1):150-74. [DOI: 10.1111/j.1475-6773.2012.01435.x] [PMID: ] - DOI - PMC - PubMed
Cooper 2014 {published data only}
    1. Cooper JA, Gorlick MA, Denny T, Worthy DA, Beevers CG, Maddox WT. Training attention improves decision making in individuals with elevated self-reported depressive symptoms. Cognitive, Affective, & Behavioral Neuroscience 2014;14(2):729-41. [DOI: 10.3758/s13415-013-0220-4] [PMID: ] - DOI - PMC - PubMed
Cooper 2015 {published data only}
    1. Cooper M, Wild C, Van Rijn B, Ward T, McLeod J, Cassar S, et al. Pluralistic therapy for depression: acceptability, outcomes and helpful aspects in a multi-site study. Counselling Psychology Review 2015;30(1):6-20.
Coventry 2015 {published data only}
    1. Coventry P, Lovell K, Dickens C, Bower P, Chew-Graham C, McElvenny D, et al. Integrated primary care for patients with mental and physical multimorbidity: cluster randomised controlled trial of collaborative care for patients with depression comorbid with diabetes or cardiovascular disease. BMJ 2015;350:h638. [DOI: 10.1136/bmj.h638] [PMID: ] - DOI - PMC - PubMed
Curtis 2018 {published data only}
    1. Curtis JR, Downey L, Back A, Nielsen E, Treece P, Engelberg R. A patient and clinician communication-priming intervention increases patient-reported goals-of-care discussions between patients with serious illness and clinicians: a randomized trial. Palliative Medicine 32;2018(1):9. - PMC - PubMed
Davis 2011 {published data only}
    1. Davis SM, Stroup TS, Koch GG, Davis CE, Rosenheck RA, Lieberman JA. Time to all-cause treatment discontinuation as the primary outcome in the Clinical Antipsychotic Trials of Intervention Effectiveness (CATIE) schizophrenia study. Statistics in Biopharmaceutical Research 2011;3(2):253-65. [DOI: 10.1198/sbr.2011.10013] [PMID: ] - DOI - PMC - PubMed
Deegan 2010 {published data only}
    1. Deegan PE. A web application to support recovery and shared decision making in psychiatric medication clinics. Psychiatric Rehabilitation Journal 2010;34(1):23-8. [DOI: 10.2975/34.1.2010.23.28] [PMID: ] - DOI - PubMed
Deen 2012 {published data only}
    1. Deen D, Lu WH, Weintraub MR, Maranda MJ, Elshafey S, Gold MR. The impact of different modalities for activating patients in a community health center setting. Patient Education and Counseling 2012;89(1):178-83. [DOI: 10.1016/j.pec.2012.04.012] [PMID: ] - DOI - PubMed
De Haan 2011 {published data only}
    1. De Haan HA, Joosten EA, Wijdeveld AG, Boswinkel PB, Van der Palen J, De Jong CA. Cognitive behavioural treatment is as effective in high- as in low-scoring alexithymic patients with substance-related disorders. Psychotherapy and Psychosomatics 2011;80(4):254-5. [DOI: 10.1159/000322030] [PMID: ] - DOI - PubMed
De Jong 2019 {published data only}
    1. De Jong RK, Snoek H, Staal WG, Klip H. The effect of patients' feedback on treatment outcome in a child and adolescent psychiatric sample: a randomized controlled trial. European Child & Adolescent Psychiatry 2019;28(6):819-34. [DOI: 10.1007/s00787-018-1247-4] [PMID: ] - DOI - PMC - PubMed
Delman 2015 {published data only}
    1. Delman J, Clark JA, Eisen SV, Parker VA. Facilitators and barriers to the active participation of clients with serious mental illnesses in medication decision making: the perceptions of young adult clients. Journal of Behavioral Health Services & Research 2015;42(2):238-53. [DOI: 10.1007/s11414-014-9431-x] [PMID: ] - DOI - PubMed
Dillon 2017 {published data only}
    1. Dillon EC, Stults CD, Wilson C, Chuang J, Meehan A, Li M, et al. An evaluation of two interventions to enhance patient-physician communication using the observer OPTION5 measure of shared decision making. Patient Education and Counseling 2017;100(10):1910-7. [DOI: 10.1016/j.pec.2017.04.020] [PMID: ] - DOI - PubMed
Dixon 2012 {published data only}
    1. Dixon LB, Cohen AN, Drapalski A, Glynn SM, Medoff D, Fang LJ. Effectiveness of a patient-centered strategy to increasing use of evidenced-based interventions that involve families in the care of persons with SMI. Journal of Mental Health Policy and Economics 2012;15(Suppl 1):S8.
Donker 2009 {published data only}
    1. Donker T, Van Straten A, Riper H, Marks I, Andersson G, Cuijpers P. Implementation of internet-based preventive interventions for depression and anxiety: role of support? The design of a randomized controlled trial. Trials 2009;10:59. [DOI: 10.1186/1745-6215-10-59] - DOI - PMC - PubMed
Dopheide 2020 {published data only}
    1. Dopheide JA. Pharmacists: essential partners in shared decision-making for schizophrenia and schizoaffective disorder. American Journal of Health-System Pharmacy 2020;77(24):2023-4. - PubMed
Drake 2015 {published data only}
    1. Drake RE, Green AI. A call for creativity in dual diagnosis research. Journal of Dual Diagnosis 2015;11(2):93-6. [DOI: 10.1080/15504263.2015.1027125] [PMID: ] - DOI - PubMed
DRKS00007956 {published data only}
    1. DRKS00007956. Decision-making under risk in patients with schizophrenia. drks.de/drks_web/navigate.do?navigationId=trial.HTML&TRIAL_ID=DRKS00... (first received 1 April 2015).
DRKS00017653 {published data only}
    1. DRKS00017653. Nocebo effects by providing informed consent in shared decision making? Not necessarily: a randomized pilot-trial. drks.de/drks_web/navigate.do?navigationId=trial.HTML&TRIAL_ID=DRKS00... (first received 30 August 2018).
Druss 2010 {published data only}
    1. Druss BG, Esenwein SA, Compton MT, Rask KJ, Zhao L, Parker RM. A randomized trial of medical care management for community mental health settings: the primary care access, referral, and evaluation (PCARE) study. American Journal of Psychiatry 2010;167(2):151-9. [DOI: 10.1176/appi.ajp.2009.09050691] [PMID: ] - DOI - PMC - PubMed
Dwight‐Johnson 2010 {published data only}
    1. Dwight-Johnson M, Lagomasino IT, Hay J, Zhang L, Tang L, Green JM, et al. Effectiveness of collaborative care in addressing depression treatment preferences among low-income Latinos. Psychiatric Services 2010;61(11):1112-8. [DOI: 10.1176/ps.2010.61.11.1112] [PMID: ] - DOI - PubMed
Easter 2017 {published data only}
    1. Easter MM, Swanson JW, Robertson AG, Moser LL, Swartz MS. Facilitation of psychiatric advance directives by peers and clinicians on assertive community treatment teams. Psychiatric Services 2017;68(7):717-23. [DOI: 10.1176/appi.ps.201600423] [PMID: ] - DOI - PubMed
Edbrooke‐Childs 2016 {published data only}
    1. Edbrooke-Childs J, Jacob J, Argent R, Patalay P, Deighton J, Wolpert M. The relationship between child- and parent-reported shared decision making and child-, parent-, and clinician-reported treatment outcome in routinely collected child mental health services data. Clinical Child Psychology and Psychiatry 2016;21(2):324-38. [DOI: 10.1177/1359104515591226] [PMID: ] - DOI - PubMed
Edbrooke‐Childs 2019 {published data only}
    1. Edbrooke-Childs J, Edridge C, Averill P, Delane L, Hollis C, Craven MP, et al. A feasibility trial of power up: smartphone app to support patient activation and shared decision making for mental health in young people. JMIR mHealth and uHealth 2019;7(6):e11677. [DOI: 10.2196/11677] [PMID: ] - DOI - PMC - PubMed
    1. NCT02552797. The Development and Piloting of 'Power Up': A Tool for Young People With Internalising/Emotional Disorders to Make Shared Decisions in Child and Adolescent Mental Health Services (CAMHS) (Power Up). In: clinicaltrials.gov/ct2/show/NCT02552797. (first received 17 September 2015).
Family Medicine Forum Research Proceedings 2014 {published data only}
    1. Family Medicine Forum. Family Medicine Forum Research Proceedings 2014. Canadian Family Physician 2015;61(2):[no pagination].
Farrelly 2011 {published data only}
    1. Farrelly S, Thornicroft G, Birchwood M, Marshall M, Szmukler G, Waheed W. CRIMSON: RCT of joint crisis plans for individuals with psychosis. Psychiatrische Praxis 2011;38(Suppl):S01. [DOI: 10.1055/s-0031-1277812] - DOI
Fiks 2011 {published data only}
    1. Fiks AG, Hughes CC, Gafen A, Guevara JP, Barg FK. Contrasting parents' and pediatricians' perspectives on shared decision-making in ADHD. Pediatrics 2011;127(1):e188-96. [DOI: 10.1542/peds.2010-1510] [PMID: ] - DOI - PMC - PubMed
Finnerty 2018 {published data only}
    1. Finnerty MT, Layman DM, Chen Q, Leckman-Westin E, Bermeo N, Ng-Mak DS, et al. Use of a web-based shared decision-making program: impact on ongoing treatment engagement and antipsychotic adherence. Psychiatric Services 2018;69(12):1215-21. [DOI: 10.1176/appi.ps.201800130] [PMID: ] - DOI - PubMed
Finnerty 2019 {published data only}
    1. Finnerty M, Austin E, Chen Q, Layman D, Kealey E, Ng-Mak D, et al. Implementation and use of a client-facing web-based shared decision-making system (MyCHOIS-CommonGround) in two specialty mental health clinics. Community Mental Health Journal 2019;55(4):641-50. [DOI: 10.1007/s10597-018-0341-x] [PMID: ] - DOI - PMC - PubMed
Fisher 2018 {published data only}
    1. Fisher A, Sharpe L, Anderson J, Manicavasagar V, Juraskova I. Development and pilot of a decision-aid for patients with bipolar II disorder and their families making decisions about treatment options to prevent relapse. PLoS One 2018;13(7):e0200490. [DOI: 10.1371/journal.pone.0200490] [PMID: ] - DOI - PMC - PubMed
Fisher 2020 {published data only}
    1. Fisher A, Keast R, Costa D, Sharpe L, Manicavasagar V, Anderson J, et al. Improving treatment decision-making in bipolar II disorder: a phase II randomised controlled trial of an online patient decision-aid. BMC Psychiatry 2020;20(1):447. [DOI: ] [PMID: ] - PMC - PubMed
Flückiger 2012 {published data only}
    1. Flückiger C, Del Re AC, Wampold BE, Znoj H, Caspar F, Jörg U. Valuing clients' perspective and the effects on the therapeutic alliance: a randomized controlled study of an adjunctive instruction. Journal of Counseling Psychology 2012;59(1):18-26. [DOI: 10.1037/a0023648] [PMID: ] - DOI - PubMed
Fortney 2010 {published data only}
    1. Fortney JC, Pyne JM, Steven CA, Williams JS, Hedrick RG, Lunsford AK, et al. A Web-based clinical decision support system for depression care management. American Journal of Managed Care 2010;16(11):849-54. [DOI: ] [PMID: ] - PMC - PubMed
Furukawa 2018 {published data only}
    1. Furukawa TA, Efthimiou O, Weitz ES, Cipriani A, Keller MB, Kocsis JH, et al. Cognitive-behavioral analysis system of psychotherapy, drug, or their combination for persistent depressive disorder: personalizing the treatment choice using individual participant data network metaregression. Psychotherapy and Psychosomatics 2018;87(3):140-53. [DOI: 10.1159/000489227] [PMID: ] - DOI - PubMed
Gandi 2010 {published data only}
    1. Gandi JC, Wai PS. Impact of partnership in coping in mental health recovery: an experimental study at the Federal Neuro-Psychiatric Hospital, Kaduna. International Journal of Mental Health Nursing 2010;19(5):322-30. [DOI: 10.1111/j.1447-0349.2010.00682.x] [PMID: ] - DOI - PubMed
Gioia 2014 {published data only}
    1. Gioia D, Autrey S, Drapalski AL, Glynn S, Cohen AN, Dixon LB. Veterans' views of a shared decision-making process: a qualitative substudy of REORDER. American Journal of Psychiatric Rehabilitation 2014;17(4):348‐64 .
Glick 2011 {published data only}
    1. Glick ID, Correll CU, Altamura AC, Marder SR, Csernansky JG, Weiden PJ, et al. Mid-term and long-term efficacy and effectiveness of antipsychotic medications for schizophrenia: a data-driven, personalized clinical approach. Journal of Clinical Psychiatry 2011;72(12):1616-27. [DOI: 10.4088/JCP.11r06927] [PMID: ] - DOI - PubMed
Goff 2010 {published data only}
    1. Goff DC, Hill M, Freudenreich O. Strategies for improving treatment adherence in schizophrenia and schizoaffective disorder. Journal of Clinical Psychiatry 2010;71(Suppl 2):20-6. [DOI: 10.4088/JCP.9096su1cc.04] [PMID: ] - DOI - PubMed
Goulding 2018 {published data only}
    1. Goulding A, Allerby K, Ali L, Waern M. Person-centered psychosis care (PCPC) in an inpatient setting: patient outcomes. Schizophrenia Bulletin 2018;44(Suppl 1):S426.
Gray 2010 {published data only}
    1. Gray R, White J, Schulz M, Abderhalden C. Enhancing medication adherence in people with schizophrenia: an international programme of research. International Journal of Mental Health Nursing 2010;19(1):36-44. [DOI: 10.1111/j.1447-0349.2009.00649.x] [PMID: ] - DOI - PubMed
Grootens 2019 {published data only}
    1. Grootens KP, Van Thiel V, Hartong E. 'How harmful is your mania to you or others?' Sharing decisions about antidepressant treatment in bipolar depression. Tijdschrift Voor Psychiatrie 2019;61(2):78-80 . - PubMed
Grote 2015 {published data only}
    1. Grote NK, Katon WJ, Russo JE, Lohr MJ, Curran M, Galvin E, et al. Collaborative care for perinatal depression in socio-economically disadvantaged women: a randomized trial. Depression and Anxiety 2015;32(11):821-34. [PMID: 10.1002/da.22405] [PMID: ] - DOI - PMC - PubMed
Gunlicks‐Stoessel 2016 {published data only}
    1. Gunlicks-Stoessel M, Mufson L, Westervelt A, Almirall D, Murphy S. A pilot SMART for developing an adaptive treatment strategy for adolescent depression. Journal of Clinical Child & Adolescent Psychology 2016;45(4):480-94. [DOI: 10.1080/15374416.2015.1015133] [PMID: ] - DOI - PMC - PubMed
Gvirts 2018 {published data only}
    1. Gvirts HZ, Lewis YD, Dvora S, Feffer K, Nitzan U, Carmel Z, et al. The effect of methylphenidate on decision making in patients with borderline personality disorder and attention-deficit/hyperactivity disorder. International Clinical Psychopharmacology 2018;33(4):233-7. [DOI: 10.1097/YIC.0000000000000219] [PMID: ] - DOI - PubMed
Hahn 2009 {published data only}
    1. Hahn SR. Adherence to antidepressant medication: patient-centered shared decision making communication to improve adherence. CNS Spectrums 2019;14(S14):6-9. [DOI: 10.1017/s1092852900024640] [PMID: ] - DOI - PubMed
Hamann 2014 {published data only}
    1. Hamann J, Maris N, Iosifidou P, Mendel R, Cohen R, Wolf P, et al. Effects of a question prompt sheet on active patient behaviour: a randomized controlled trial with depressed outpatients. International Journal of Social Psychiatry 2014;60(3):227-35. [DOI: 10.1177/0020764013482311] [PMID: ] - DOI - PubMed
Handelzalts 2010 {published data only}
    1. Handelzalts JE, Keinan G. The effect of choice between test anxiety treatment options on treatment outcomes. Psychotherapy Research 2010;20(1):100-12. [DOI: 10.1080/10503300903121106] [PMID: ] - DOI - PubMed
Hayes 2019 {published data only}
    1. Hayes D, Edbrooke-Childs J, Town R, Wolpert M, Midgley N. Barriers and facilitators to shared decision making in child and youth mental health: clinician perspectives using the Theoretical Domains Framework. European Child & Adolescent Psychiatry 2019;28(5):655-66. [DOI: 10.1007/s00787-018-1230-0] [PMID: ] - DOI - PMC - PubMed
He 2016 {published data only}
    1. He Y, Gewirtz A, Lee S, Morrell N, August G. A randomized preference trial to inform personalization of a parent training program implemented in community mental health clinics. Translational Behavioral Medicine 2016;6(1):73-80. [DOI: 10.1007/s13142-015-0366-4] [PMID: ] - DOI - PMC - PubMed
Hell 2021 {published data only}
    1. Hell ME, Miller WR, Nielsen B, Mejldal A, Nielsen AS. The impact of free choice in alcohol treatment. Primary outcomes of the self-match study. Drug and Alcohol Dependence 2021;221:108587. [DOI: 10.1016/j.drugalcdep.2021.108587] [PMID: ] - DOI - PubMed
Henderson 2013 {published data only}
    1. Henderson C, Brohan E, Clement S, Williams P, Lassman F, Schauman O, et al. Decision aid on disclosure of mental health status to an employer: feasibility and outcomes of a randomised controlled trial. British Journal of Psychiatry 2013;203(5):350-7. [DOI: 10.1192/bjp.bp.113.128470] [PMID: ] - DOI - PubMed
Henderson 2018 {published data only}
    1. Henderson C. Planning ahead for acute mental health crises: methods and outcomes. European Psychiatry 2018;48(Suppl):S71.
Heres 2012 {published data only}
    1. Heres S. What are the clinical implications of long-acting antipsychotics for psychiatrists? European Neuropsychopharmacology 2012;22(Suppl 2):S449.
Hessinger 2018 {published data only}
    1. Hessinger JD, London MJ, Baer SM. Evaluation of a shared decision-making intervention on the utilization of evidence-based psychotherapy in a VA outpatient PTSD clinic. Psychological Services 2018;15(4):437-41. [DOI: 10.1037/ser0000141] [PMID: ] - DOI - PubMed
Hoffman 2014 {published data only}
    1. Hoffman RM, McNaughton-Collins M. The superiority of patient engagement and shared decision-making in noninferiority trials. Journal of General Internal Medicine 2014;29(1):16-7. [DOI: 10.1007/s11606-013-2593-z] [PMID: ] - DOI - PMC - PubMed
Hohl‐Radke 2018 {published data only}
    1. Hohl-Radke F, Enzmann A, Kaiser W. Therapy satisfaction in establishing a modular system to amend therapy for patients in psychosis. Swiss Archives of Neurology, Psychiatry and Psychotherapy 2018;169(5):151-5.
Holzhüter 2020 {published data only}
    1. Holzhüter F, Hamann J. Nocebo effects by providing informed consent in shared decision making? Not necessarily: a randomized pilot-trial using an open-label placebo approach. BMC Medical Ethics 2020;21(1):97. [DOI: 10.1186/s12910-020-00541-y] [PMID: ] - DOI - PMC - PubMed
Hopp 2011 {published data only}
    1. Hopp L. Evidence, patient preferences and patient-centred care. International Journal of Evidence-Based Healthcare 2011;9(4):335-6. [DOI: 10.1111/j.1744-1609.2011.00183.x] [PMID: ] - DOI - PubMed
Howard 2009 {published data only}
    1. Howard L, Flach C, Leese M, Byford S, Killaspy H, Cole L, et al . Effectiveness and cost-effectiveness of admissions to women's crisis houses compared with traditional psychiatric wards: pilot patient-preference randomised controlled trial. British Journal of Psychiatry. Supplement 2010;53:s32-40. [DOI: 10.1192/bjp.bp.110.081083] [PMID: ] - DOI - PubMed
    1. Howard LM, Flach C, Leese M, Byford S, Killaspy H, Cole L, et al. Effectiveness and cost-effectiveness of admissions to women's crisis houses compared with traditional psychiatric wards: pilot patient-preference randomised controlled trial. Archives of Women's Mental Health 2011;2(Suppl):S147. - PubMed
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Hsu 2013 {published data only}
    1. Hsu C, Liss DT, Westbrook EO, Arterburn D. Incorporating patient decision aids into standard clinical practice in an integrated delivery system. Medical Decision Making 2013;33(1):85-97. [DOI: 10.1177/0272989X12468615] [PMID: ] - DOI - PubMed
Huijbregts 2013 {published data only}
    1. Huijbregts KM, De Jong FJ, Van Marwijk HW, Beekman AT, Adèr HJ, Hakkaart-van Roijen L, et al. A target-driven collaborative care model for Major Depressive Disorder is effective in primary care in the Netherlands. A randomized clinical trial from the depression initiative. Journal of Affective Disorders 2013;146(3):328-37. [DOI: 10.1016/j.jad.2012.09.015] [PMID: ] - DOI - PubMed
Hunkeler 2012 {published data only}
    1. Hunkeler EM, Hargreaves WA, Fireman B, Terdiman J, Meresman JF, Porterfield Y, et al. A web-delivered care management and patient self-management program for recurrent depression: a randomized trial. Psychiatric Services 2012;63(11):1063-71. [DOI: 10.1176/appi.ps.005332011] [PMID: ] - DOI - PubMed
ISRCTN11230559 {published data only}
    1. ISRCTN11230559. Decision aid for young people who self-harm (DASH). www.isrctn.com/ISRCTN11230559 (first received 22 May 2015).
ISRCTN14184328 {published data only}
    1. ISRCTN14184328. Ready for SDM - evaluation of a multidisciplinary training module in shared decision making. www.isrctn.com/ISRCTN14184328 (first received 9 May 2018).
ISRCTN16140131 {published data only}
    1. ISRCTN16140131. Testing an implementation strategy to help primary care providers provide mental health medications for veterans with PTSD (PROMPT trial). doi.org/10.1186/ISRCTN16140131 (first received 6 March 2019).
ISRCTN38536761 {published data only}
    1. ISRCTN38536761. Counselling parents in youth mental health care: a design for structured communication of diagnosis and treatment options. www.isrctn.com/ISRCTN38536761 (first received 11 May 2011).
ISRCTN51103766 {published data only}
    1. ISRCTN51103766. A web-based tool to support shared decision making between clinicians and patients in routine outcome monitoring. www.isrctn.com/ISRCTN51103766 (first received 8 August 2013).
Johnson 2012 {published data only}
    1. Johnson JR, Engelberg RA, Downey L, Cooke CR, Nielsen EL, Treece PD, et al. Trust in physicians predicts family members' preferred role in decision-making in ICUs. American Journal of Respiratory and Critical Care Medicine 2012;185:A5208.
Joosten 2009 {published data only}
    1. Joosten EA, Jong CA, Weert-van Oene GH, Sensky T, Staak CP. Shared decision-making reduces drug use and psychiatric severity in substance-dependent patients. Psychotherapy and Psychosomatics 2009;78(4):245-53. [DOI: 10.1159/000219524] [PMID: ] - DOI - PubMed
Joosten 2011a {published data only}
    1. Joosten EA, De Jong CA, De Weert-van Oene GH, Sensky T, Van der Staak CP. Shared decision-making: increases autonomy in substance-dependent patients. Substance Use & Misuse 2011;46(8):1037-8. [DOI: 10.3109/10826084.2011.552931] [PMID: ] - DOI - PubMed
Joosten 2011b {published data only}
    1. Joosten EA, De Weert-Van Oene GH, Sensky T, Van Der Staak CP, De Jong CA. Treatment goals in addiction healthcare: the perspectives of patients and clinicians. International Journal of Social Psychiatry 2011;57(3):263-76. [DOI: 10.1177/0020764009354835] [PMID: ] - DOI - PubMed
Jørgensen 2014 {published data only}
    1. Jørgensen R, Licht RW, Lysaker PH, Munk-Jørgensen P, Buck KD, Jensen SO, et al. Effects on cognitive and clinical insight with the use of guided self-determination in outpatients with schizophrenia: a randomized open trial. European Psychiatry 2015;30(5):655-63. [DOI: 10.1016/j.eurpsy.2014.12.007] [PMID: ] - DOI - PubMed
    1. Jørgensen R, Munk-Jørgensen P, Lysaker PH, Buck KD, Hansson L, Zoffmann V. Overcoming recruitment barriers revealed high readiness to participate and low dropout rate among people with schizophrenia in a randomized controlled trial testing the effect of a guided self-determination intervention. BMC Psychiatry 2014;14:28. [DOI: 10.1186/1471-244X-14-28] [PMID: ] - DOI - PMC - PubMed
Kageyama 2014 {published data only}
    1. Kageyama M, Yokoyama K, Nakamura Y, Kobayashi S, Nishina Y, Oshima I. Factors related to adoption of a family peer-education program on mental disorders. Dissemination research of the Omotenashi-Family Experiences Learning Program. Nihon Koshu Eisei Zasshi 2014;61(10):625-36. [PMID: ] - PubMed
Kaminskiy 2019 {published data only}
    1. Kaminskiy E, Finlay M. It does take two to tango: an applied conversation analysis of interactions between a psychiatrist and service-users discussing medication. Health Communication 2019;34(13):1628-36. [DOI: 10.1080/10410236.2018.1517633] [PMID: ] - DOI - PubMed
Katz 2016 {published data only}
    1. Katz EG, Hauber B, Gopal S, Fairchild A, Pugh A, Weinstein RB, et al. Physician and patient benefit-risk preferences from two randomized long-acting injectable antipsychotic trials. Patient Preference and Adherence 2016;10:2127-39. [DOI: 10.2147/PPA.S114172] [PMID: ] - DOI - PMC - PubMed
Khalifeh 2019 {published data only}
    1. Khalifeh H, Molyneaux E, Brauer R, Vigod S, Howard LM. Patient decision aids for antidepressant use in pregnancy: a pilot randomised controlled trial in the UK. BJGP Open 2019;3(4):bjgpopen19X101666. [DOI: 10.3399/bjgpopen19X101666] [PMID: ] - DOI - PMC - PubMed
Kroenke 2015 {published data only}
    1. Kroenke K. The role of decision aids in depression care. JAMA Internal Medicine 2015;175(11):1770-2. [DOI: 10.1001/jamainternmed.2015.5243] [PMID: ] - DOI - PubMed
Kwong 2013 {published data only}
    1. Kwong K, Chung H, Cheal K, Chou JC, Chen T. Depression care management for Chinese Americans in primary care: a feasibility pilot study. Community Mental Health Journal 2013;49(2):157-65. [DOI: 10.1007/s10597-011-9459-9] [PMID: ] - DOI - PubMed
Lagomasino 2017 {published data only}
    1. Lagomasino IT, Dwight-Johnson M, Green JM, Tang L, Zhang L, Duan N, et al. Effectiveness of collaborative care for depression in public-sector primary care clinics serving Latinos. Psychiatric Services 2017;68(4):353-9. [DOI: 10.1176/appi.ps.201600187] [PMID: ] - DOI - PubMed
Lara‐Cabrera 2016 {published data only}
    1. Lara-Cabrera ML, Gjerden M, Gråwe RW, Linaker OM, Steinsbekk, A. Short-term effects of a peer co-led educational programme delivered before mental health treatment: a randomised controlled trial. Patient education and counseling 2016;99(7):1257‐61. - PubMed
    1. Lara-Cabrera ML, Salvesen Ø, Nesset MB, De las Cuevas C, Iversen VC, Gråwe RW. The effect of a brief educational programme added to mental health treatment to improve patient activation: a randomized controlled trial in community mental health centres. Patient Education and Counseling 2016;99(5):760-8. [DOI: 10.1016/j.pec.2015.11.028] [PMID: ] - DOI - PubMed
Le 2014 {published data only}
    1. Le QA, Doctor JN, Zoellner LA, Feeny NC. Cost-effectiveness of prolonged exposure therapy versus pharmacotherapy and treatment choice in posttraumatic stress disorder (the Optimizing PTSD Treatment Trial): a doubly randomized preference trial. Journal of Clinical Psychiatry 2014;75(3):222-30. [DOI: 10.4088/JCP.13m08719] [PMID: ] - DOI - PubMed
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Lee 2015 {published data only}
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Liverpool 2021a {published data only}
    1. Liverpool S, Edbrooke-Childs J. Feasibility and acceptability of a digital intervention to support shared decision-making in children's and young people's mental health: mixed methods pilot randomized controlled trial. JMIR Formative Research 2021;5(3):e25235. - PMC - PubMed
Lokman 2017 {published data only}
    1. Lokman S, Volker D, Zijlstra-Vlasveld M, Smit F, Van Der Feltz-Cornelis C. Return-to-work intervention versus care as usual for sick listed employees with common mental disorders: trial-based economic evaluation shows promise. In: Journal of mental health policy and economics. Vol. 18. 2015:S26‐S27.
    1. Lokman S, Volker D, Zijlstra-Vlasveld MC, Brouwers EP, Boon B, Beekman AT, et al. Return-to-work intervention versus usual care for sick-listed employees: health-economic investment appraisal alongside a cluster randomised trial. BMJ Open 2017;7(10):e016348. [DOI: 10.1136/bmjopen-2017-016348] [PMID: ] - DOI - PMC - PubMed
Lord 2017 {published data only}
    1. Lord K, Livingston G, Cooper C. A feasibility randomised controlled trial of the DECIDE intervention: dementia carers making informed decisions. British Journal of Psychiatry Open 2017;3(1):12-4. [DOI: 10.1192/bjpo.bp.116.003509] [PMID: ] - DOI - PMC - PubMed
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Lutz 2022 {published data only}
    1. Lutz W, Deisenhofer AK, Rubel J, Bennemann B, Giesemann J, Poster K, et al. Prospective evaluation of a clinical decision support system in psychological therapy. Journal of Consulting and Clinical Psychology 2022;90(1):90-106. [DOI: 10.1037/ccp0000642] [PMID: ] - DOI - PubMed
MacInnes 2013 {published data only}
    1. MacInnes D, Kinane C, Beer D, Parrott J, Craig T, Eldridge S, et al. Study to assess the effect of a structured communication approach on quality of life in secure mental health settings (Comquol): study protocol for a pilot cluster randomized trial. Trials 2013;14:257. [DOI: 10.1186/1745-6215-14-257] [PMID: ] - DOI - PMC - PubMed
Mackay 2011 {published data only}
    1. Mackay K, Taylor M, Patel MX. Medication adherence and patient choice in mental health. British Journal of Hospital Medicine (Lond) 2011;72(1):6-7. [DOI: 10.12968/hmed.2011.72.1.6] [PMID: ] - DOI - PubMed
Maj 2021 {published data only}
    1. Maj M, Van Os J, De Hert M, Gaebel W, Galderisi S, Green MF, et al. The clinical characterization of the patient with primary psychosis aimed at personalization of management. World Psychiatry 2021;20(1):4-33. [DOI: 10.1002/wps.20809] [PMID: ] - DOI - PMC - PubMed
Malloy‐Weir 2017 {published data only}
    1. Malloy-Weir LJ, Kirk A. Development and pilot testing of a decision aid for the initiation of antipsychotic medications in persons with dementia in long-term care using a systematic approach: a study protocol. BMJ Open 2017;7(10):e018769. [DOI: 10.1136/bmjopen-2017-018769] [PMID: ] - DOI - PMC - PubMed
Marshall 2013 {published data only}
    1. Marshall WN Jr. Incompetent. Academic Pediatrics 2013;13(4):290-1. [DOI: 10.1016/j.acap.2013.05.002] [PMID: ] - DOI - PubMed
Metz 2018 {published data only}
    1. Metz M, Elfeddali I, Veerbeek M, De Beurs E, Beekman A, Van der Feltz-Cornelis C. Effectiveness of a multi-facetted blended eHealth intervention during intake supporting patients and clinicians in shared decision making: a cluster randomised controlled trial in a specialist mental health outpatient setting. PLoS One 2018;13(6):e0199795. [DOI: 10.1371/journal.pone.0199795] [PMID: ] - DOI - PMC - PubMed
    1. Metz MJ, Franx GC, Veerbeek MA, De Beurs E, Van der Feltz-Cornelis CM, Beekman AT. Shared Decision Making in mental health care using Routine Outcome Monitoring as a source of information: a cluster randomised controlled trial. BMC Psychiatry 2015;15:313. [DOI: 10.1186/s12888-015-0696-2] [PMID: ] - DOI - PMC - PubMed
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Moncrieff 2016 {published data only}
    1. Moncrieff J, Azam K, Johnson S, Marston L, Morant N, Darton K, et al. Results of a pilot cluster randomised trial of the use of a medication review tool for people taking antipsychotic medication. BMC Psychiatry 2016;16:205. [DOI: 10.1186/s12888-016-0921-7] [PMID: ] - DOI - PMC - PubMed
Mooney 2020 {published data only}
    1. Mooney LJ, Valdez J, Cousins SJ, Yoo C, Zhu Y, Hser YI. Patient decision aid for medication treatment for opioid use disorder (PtDA-MOUD): rationale, methodology, and preliminary results. Journal of Substance Abuse Treatment 2020;108:115-22. - PMC - PubMed
Mort 2013 {published data only}
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Muehlschlegel 2021 {published data only}
    1. Muehlschlegel S, Goostrey K, Flahive J, Zhang Q, Pach J, Hwang D. A two-center, parallel-arm randomized controlled feasibility trial of a goals-of-care decision aid for surrogates of severe acute brain injury patients. Neurology 2021;96(15 Suppl):2288. - PMC - PubMed
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NCT02364544 {published data only}
    1. NCT02364544. Improving care and reducing cost study. clinicaltrials.gov/show/NCT02364544 (first received 18 February 2015).
NCT02507349 {published data only}
    1. NCT02507349. Person-centered versus measurement-based care in mental health (PCORI-SDM). clinicaltrials.gov/ct2/show/NCT02507349 (first received 23 July 2015).
NCT02989805 {published data only}
    1. NCT02989805. Engaging patients with mental disorders from the ED in outpatient care. clinicaltrials.gov/show/NCT02989805 (first received 12 December 2016).
NCT03070977 {published data only}
    1. NCT03070977. Interprofessional training in a psychiatric study unit. clinicaltrials.gov/ct2/show/NCT03070977 (first received 6 March 2017).
NCT03258632 {published data only}
    1. NCT03258632. Improving outcomes among medical/surgical inpatients with alcohol use disorders. clinicaltrials.gov/show/NCT03258632 (first received 23 August 2017).
NCT03539068 {published data only}
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NCT03869177 {published data only}
    1. NCT03869177. Implementation of family involvement for persons with psychotic disorders. (IFIP). clinicaltrials.gov/ct2/show/NCT03869177 (first received 11 March 2019).
NCT04562038 {published data only}
    1. NCT04562038. Implementation of electronic shared decision-making support for early intervention. clinicaltrials.gov/show/NCT04562038 (first received 24 September 2020).
NCT04593472 {published data only}
    1. NCT04593472. SHARE: Sharing Healthcare Wishes in Primary Care. clinicaltrials.gov/ct2/show/NCT04593472 (first received 20 October 2020).
    1. SHARE: sharing healthcare wishes in primary care. trialbulletin.com/lib/entry/ct-04593472.
NCT04601194 {published data only}
    1. Goal Elicitation, Treatment Prioritization, & Electronically-Practiced Discussion for Psychiatry. trialbulletin.com/lib/entry/ct-04601194.
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NCT05156073 {published data only}
    1. Shared Decision Making About Medication Use for People With Multiple Health Problems. clinicaltrials.gov/ct2/show/NCT05156073 (first received 14 December 2021).
    1. Shared decision making about medication use for people with multiple health problems. trialbulletin.com/lib/entry/ct-05156073.
Nieboer 2011 {published data only}
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NL7775 {published data only}
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NTR4531 {published data only}
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NTR5773 {published data only}
    1. NTR5773. Bringing palliative care for dementia patients into agreement with their wishes and needs: development and evaluation of Decidem. trialsearch.who.int/Trial2.aspx?TrialID=NTR5773 (first received 1 January 2016).
NTR6352 {published data only}
    1. NTR6352. Pilot study of the effects of an E health module psychoeducation on the degree of shared decision making in people with personality disorder. trialsearch.who.int/Trial2.aspx?TrialID=NTR6352 (first received 20 January 2017).
Nuss 2018 {published data only}
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Park 2020 {published data only}
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Perestelo‐Perez 2017a {published data only}
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Perestelo‐Perez 2020 {published data only}
    1. NCT04364958. Decision Aid for Patients With Generalized Anxiety Disorder: protocol for a Randomized Controlled Trial(ECA-TAG). clinicaltrials.gov/ct2/show/NCT04364958 (first received 28 April 2020).
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Puri 2014 {published data only}
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Raffi 2018 {published data only}
    1. Raffi ER, Traeger LN, Stern TA. Engaging the resistant patient in the implementation of interventions. Primary Care Companion for CNS Disorders 2018;20(3):17f02136. [DOI: 10.4088/PCC.17f02136] [PMID: ] - DOI - PubMed
Rapoport 2018 {published data only}
    1. Rapoport MJ, Zucchero Sarracini C, Kiss A, Lee L, Byszewski A, Seitz DP, et al. Computer-based driving in dementia decision tool with mail support: cluster randomized controlled trial. Journal of Medical Internet Research 2018;20(5):e194. [DOI: 10.2196/jmir.9126] [PMID: ] - DOI - PMC - PubMed
Rickles 2017 {published data only}
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Robinson 2018 {published data only}
    1. Kreyenbuhl JA, Medoff DR, McEvoy JP, Smith TE, Hackman AL, Nossel IR, et al. The RAISE connection program: psychopharmacological treatment of people with a first episode of schizophrenia. Psychiatric Services 2016;67(12):1300-6. [DOI: 10.1176/appi.ps.201500438] [PMID: ] - DOI - PMC - PubMed
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Roe 2015 {published data only}
    1. Roe D, Drake RE, Slade M. Routine outcome monitoring: an international endeavour. International Review of Psychiatry 2015;27(4):257-60. [DOI: 10.3109/09540261.2015.1070552] [PMID: ] - DOI - PubMed
Rossom 2018 {published data only}
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Schenker 2009 {published data only}
    1. Schenker Y, Fernandez A, Lo B. Placebo prescriptions are missed opportunities for doctor-patient communication. American Journal of Bioethics 2009;9(12):48-50. [DOI: 10.1080/15265160903234144] [PMID: ] - DOI - PubMed
Schwarz 2012 {published data only}
    1. Schwarz EB, Parisi SM, Handler SM, Koren G, Cohen ED, Shevchik GJ, et al. Clinical decision support to promote safe prescribing to women of reproductive age: a cluster-randomized trial. Journal of General Internal Medicine 2012;27(7):831-8. [DOI: 10.1007/s11606-012-1991-y] [PMID: ] - DOI - PMC - PubMed
Simon 2012 {published data only}
    1. Simon D, Kriston L, Von Wolff A, Buchholz A, Vietor C, Hecke T, et al. Effectiveness of a web-based, individually tailored decision aid for depression or acute low back pain: a randomized controlled trial. Patient Education and Counseling 2012;87(3):360-8. [DOI: 10.1016/j.pec.2011.10.009] [PMID: ] - DOI - PubMed
Snynder 2013 {published data only}
    1. Snyder EA, Caprio AJ, Wessell K, Lin FC, Hanson LC. Impact of a decision aid on surrogate decision-makers' perceptions of feeding options for patients with dementia. Journal of the American Medical Directors Association 2013;14(2):114-8. [DOI: 10.1016/j.jamda.2012.10.011] [PMID: ] - DOI - PMC - PubMed
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Steinwachs 2011 {published data only}
    1. Steinwachs DM, Roter DL, Skinner EA, Lehman AF, Fahey M, Cullen B, et al. A web-based program to empower patients who have schizophrenia to discuss quality of care with mental health providers. Psychiatric Services 2011;62(11):1296-302. [DOI: 10.1176/ps.62.11.pss6211_1296] [PMID: ] - DOI - PMC - PubMed
Stirling 2012 {published data only}
    1. Stirling C, Leggett S, Lloyd B, Scott J, Blizzard L, Quinn S, et al. Decision aids for respite service choices by carers of people with dementia: development and pilot RCT. BMC Medical Informatics and Decision Making 2012;12:21. [DOI: 10.1186/1472-6947-12-21] [PMID: ] - DOI - PMC - PubMed
Stratton 2019 {published data only}
    1. Stratton E, Choi I, Calvo R, Hickie I, Henderson C, Harvey SB, et al. Web-based decision aid tool for disclosure of a mental health condition in the workplace: a randomised controlled trial. Occupational and Environmental Medicine 2019;76(9):595-602. [DOI: 10.1136/oemed-2019-105726] [PMID: ] - DOI - PubMed
Strauss 2015 {published data only}
    1. Strauss K, Benvenuto A, Battan B, Siracusano M, Terribili M, Curatolo P, et al. Promoting shared decision making to strengthen outcome of young children with autism spectrum disorders: the role of staff competence. Research in Developmental Disabilities 2015;38:48-63. [DOI: 10.1016/j.ridd.2014.11.016] [PMID: ] - DOI - PubMed
Stutz 2012 {published data only}
    1. Stutz Steiger T. From the viewpoint of the patient and professional woman [Mit dem Blick der Betroffenen und der Fachfrau]. Krankenpflege. Soins Infirmiers 2012;105(8):12-3. [PMID: ] - PubMed
Taylor 2012 {published data only}
    1. Taylor M, Millar H, Cookson J, Carson J, MacDonald L, Currid T, et al. Perceptions on concordance with bipolar medication. British Journal of Hospital Medicine (London, England : 2005) 2012;Supplement:S2-7. [PMID: ] - PubMed
Thomas 2019 {published data only}
    1. Thomas E, Suarez J, Bowen A, Salzer M, Hurford I, Dixon L, et al. Demographic, interpersonal, neurocognitive, and attitudinal predictors of shared decisionmaking among service users with early psychosis. Schizophrenia Bulletin 2019;45(Suppl 2):S303-4.
Trabut 2015 {published data only}
    1. Trabut JB. Practice of shared medical decision making in addiction. European Psychiatry 2015;30(8 Suppl):S40.
Treichler 2020 {published data only}
    1. Treichler EB, Avila A, Evans EA, Spaulding WD. Collaborative decision skills training: feasibility and preliminary outcomes of a novel intervention. Psychological Services 2020;17(1):54-64. [DOI: 10.1037/ser0000275] [PMID: ] - DOI - PubMed
Treichler 2021 {published data only}
    1. NCT04324944. Adapting and examining collaborative decision skills training among veterans with serious mental illness. clinicaltrials.gov/ct2/show/NCT04324944 (first received 27 March 2020).
    1. Treichler EB, Rabin BA, Spaulding WD, Thomas ML, Salyers MP, Granholm EL, et al. Skills-based intervention to enhance collaborative decision-making: systematic adaptation and open trial protocol for veterans with psychosis. Pilot and Feasibility Studies 2021;7(1):89. [DOI: 10.1186/s40814-021-00820-4] [PMID: ] - DOI - PMC - PubMed
Tseng 2010 {published data only}
    1. Tseng CW, Waitzfelder BE, Tierney EF, Gerzoff RB, Marrero DG, Piette JD, et al. Patients' willingness to discuss trade-offs to lower their out-of-pocket drug costs. Archives of Internal Medicine 2010;170(16):1502-4. [DOI: 10.1001/archinternmed] [PMID: ] - DOI - PMC - PubMed
Van der Krieke 2013 {published data only}
    1. NTR3105. Use of an electronic patient decision aid to support shared decision making and treatment planning in psychotic disorders. (NL: Samen Keuzes Maken). trialsearch.who.int/Trial2.aspx?TrialID=NTR3105 (first received 13 September 2011).
    1. Van der Krieke JA, Emerencia AC, Sytema S, Aiello M, Petkov N, Wiersma D. An online self-management tool for people suffering from psychosis. Schizophrenia Bulletin 2011;37:283.
    1. Van der Krieke JA, Emerencia AC, Sytema S, Wunderink L, Aiello M, Petkov N, et al. WEGWEIS: an online self-management tool for people with psychosis. Early Intervention in Psychiatry 2010;4(Suppl 1):179.
    1. Van der Krieke L, Emerencia AC, Boonstra N, Wunderink L, De Jonge P, Sytema S. A web-based tool to support shared decision making for people with a psychotic disorder: randomized controlled trial and process evaluation. Journal of Medical Internet Research 2013;15(10):e216. [DOI: 10.2196/jmir.2851] [PMID: ] - DOI - PMC - PubMed
Van der Voort 2015 {published data only}
    1. Van der Voort TY, Van Meijel B, Goossens PJ, Hoogendoorn AW, Draisma S, Beekman A, et al. Collaborative care for patients with bipolar disorder: randomised controlled trial. British Journal of Psychiatry 2015;206(5):393-400. [DOI: 10.1192/bjp.bp.114.152520] [PMID: ] - DOI - PubMed
    1. Voort TY, Meijel B, Goossens PJ, Renes J, Beekman AT, Kupka RW. Collaborative care for patients with bipolar disorder: a randomised controlled trial. BMC Psychiatry 2011;11:133. [DOI: 10.1186/1471-244X-11-133] [PMID: ] - DOI - PMC - PubMed
Van Duin 2021 {published data only}
    1. Van Duin D, Van Wamel A, De Winter L, Kroon H, Veling W, Van Weeghel J. Implementing evidence-based interventions to improve vocational recovery in early psychosis: a quality-improvement report. Psychiatric Services (Washington, D.C.) 2021;72(10):1168-77. [DOI: 10.1176/appi.ps.201900342] [PMID: ] - DOI - PubMed
Velligan 2017 {published data only}
    1. Velligan D, Fredrick M, Sierra C, Kliewer J Hillner K, Roberts D. Engagement focused care during transitions from inpatient and emergency psychiatric facilities. In: Schizophrenia bulletin. Vol. 43. 2017:S152. - PMC - PubMed
    1. Velligan DI, Fredrick MM, Sierra C, Hillner K, Kliewer J, Roberts DL, et al. Engagement-focused care during transitions from inpatient and emergency psychiatric facilities. Patient Preference and Adherence 2017;11:919-28. [DOI: 10.2147/PPA.S132339] [PMID: ] - DOI - PMC - PubMed
Vigod 2019 {published data only}
    1. Vigod SN, Dennis CL, Stewart DE, Metcalfe K, Schram C, Grigoriadis S, et al. An electronic patient decision aid for antidepressant use in pregnancy. Archives of Women's Mental Health 2019;18(2):404‐5 .
    1. Vigod SN, Hussain-Shamsy N, Stewart DE, Grigoriadis S, Metcalfe K, Oberlander TF, et al. A patient decision aid for antidepressant use in pregnancy: pilot randomized controlled trial. Journal of Affective Disorders 2019;251:91-9. [DOI: 10.1016/j.jad.2019.01.051] [PMID: ] - DOI - PubMed
Villar 2013 {published data only}
    1. Villar F, Vila-Miravent J, Celdrán M, Fernández E. The participation of patients with dementia in individualised intervention plan meetings: the impact on their well-being and the quality of life [La participación de personas con demencia en las reuniones del plan de atención individualizada: impacto en el bienestar y la calidad del cuidado ]. Revista Española de Geriatría y Gerontología 2013;48(6):259-64. [DOI: 10.1016/j.regg.2013.03.001] [PMID: ] - DOI - PubMed
Volker 2015 {published data only}
    1. Volker D, Zijlstra-Vlasveld MC, Anema JR, Beekman AT, Brouwers EP, Emons WH, et al. Effectiveness of a blended web-based intervention on return to work for sick-listed employees with common mental disorders: results of a cluster randomized controlled trial. Journal of Medical Internet Research 2015;17(5):e116. [DOI: 10.2196/jmir.4097] [PMID: ] - DOI - PMC - PubMed
Weiss 2010 {published data only}
    1. Weiss F, Vietor C, Hecke TL. Use of routine data for evaluation purposes in sickness funds - evaluation of the "TK-Patientendialog" [Verwendung von Routinedaten zu Evaluationszwecken in Krankenkassen - die Evaluation des TK-Patientendialog ]. Gesundheitswesen 2010;72(6):371-8. [DOI: 10.1055/s-0030-1249702] [PMID: ] - DOI - PubMed
Westermann 2013 {published data only}
    1. Westermann GM, Verheij F, Winkens B, Verhulst FC, Van Oort FV. Structured shared decision-making using dialogue and visualization: a randomized controlled trial. Patient Education and Counseling 2013;90(1):74-81. [DOI: 10.1016/j.pec.2012.09.014] [PMID: ] - DOI - PubMed

References to studies awaiting assessment

Fung 2021 {published data only}
    1. Fung CH, Martin JL, Liang LJ, Hays RD, Col N, Patterson ES, et al. Efficacy of a patient decision aid for improving person-centered decision-making by older adults with obstructive sleep apnea. Journal of Clinical Sleep Medicine 2021;17(2):121-8. [DOI: 10.5664/jcsm.8798] [PMID: ] - DOI - PMC - PubMed
Hamann 2020 {published data only}
    1. Hamann J, Holzhüter F, Blakaj S, Becher S, Haller B, Landgrebe M, et al. Implementing shared decision-making on acute psychiatric wards: a cluster-randomized trial with inpatients suffering from schizophrenia (SDM-PLUS). Epidemiology and Psychiatric Sciences 2020;29:e137. [DOI: 10.1017/S2045796020000505] [PMID: ] - DOI - PMC - PubMed
    1. Hamann J, Holzhüter F, Stecher L, Heres S. Shared decision making PLUS - a cluster-randomized trial with inpatients suffering from schizophrenia (SDM-PLUS). BMC Psychiatry 2017;17(1):78. [DOI: doi: 10.1186/s12888-017-1240-3] [PMID: ] - PMC - PubMed
    1. Heres S, Holzhüter F, Hamann J. Shared decision making in an acute psychiatric setting [Shared Decision Making im allgemeinpsychiatrischen Akutsetting. Eine cluster-randomisierte Studie in der Behandlung der Schizophrenie (SDMPLUS)]. Nervenheilkunde 2021;40(6):436-46.
Langer 2022 {published data only}
    1. Langer DA, Holly LE, Wills CE, Tompson MC, Chorpita BF. Shared decision-making for youth psychotherapy: a preliminary randomized clinical trial on facilitating personalized treatment. Journal of Consulting and Clinical Psychology 2022;90(1):29-38. [DOI: 10.1037/ccp0000702] [PMID: ] - DOI - PMC - PubMed
MacDonald‐Wilson 2021 {published data only}
    1. MacDonald-Wilson KL, Williams K, Nikolajski CE, McHugo G, Kang C, Deegan P, et al. Promoting collaborative psychiatric care decision-making in community mental health centers: insights from a patient-centered comparative effectiveness trial. Psychiatric Rehabilitation Journal 2021;44(1):11-21. [DOI: 10.1037/prj0000455] [PMID: ] - DOI - PubMed

References to ongoing studies

Battersby 2018 {published data only}
    1. ACTRN12617000474358. Improving cardiovascular health and quality of life in people with severe mental illness: a randomised trial of a ‘partners in health’ intervention. anzctr.org.au/TrialSearch.aspx#&&searchTxt=ACTRN12617000474358 (first received 3 March 2017).
    1. Battersby M, Kidd MR, Licinio J, Aylward P, Baker A, Ratcliffe J, et al. Improving cardiovascular health and quality of life in people with severe mental illness: study protocol for a randomised controlled trial. Trials 2018;19(1):366. [DOI: 10.1186/s13063-018-2748-7] [PMID: ] - DOI - PMC - PubMed
ISRCTN36203678 {published data only}
    1. ISRCTN36203678. DECIDE Study: shared decision making for treatment at discharge with schizophrenic inpatients. isrctn.com/ISRCTN36203678 (first received 6 July 2016).
    1. Pérez Revuelta J, Lara Ruiz-Granados I, Gonzalez Saiz F, Pascual Pãno JM, Villagran Moreno JM. DECIDE study: effectiveness of shared decision making in treatment planning at discharge of inpatient with schizophrenia: half sample interim analysis, preliminary conclusions. In: European psychiatry. Vol. 33. 2016:S278.
    1. Pérez Revuelta J, Pascual Pãno JM, Lara Ruiz-Granados I, Gonzalez Saiz F, Rodriguez Gomez C, Mongil San Juan JM, et al. DECIDE Study: effectiveness of shared decision-making in treatment planning at discharge of inpatient with schizophrenia. Experience after 20 months of the study. In: European psychiatry. Vol. 22. 2016:S617.
    1. Perez Revuelta J, Ayerbe De Celis M, Mongil San Juan JM, Rodriguez Gomez C, Villagran Moreno JM. DECIDE Study: antipsychotic treatment profile. Comparison of antipsychotic polytherapy in patients discharged after acute episode of UHSM, taking decisions shared vs. usual care strategies. In: European psychiatry. Vol. 33. 2016:S617.
    1. Villagran J, Perez Revuelta J, Pascual JM, Rodriguez C, Mongil JM, Gonzalez F. DECIDE study: effectiveness of shared decision making in treatment planning at discharge of inpatient with schizophrenia: 3 years of recruitment, full sample preliminary analysis. In: European archives of psychiatry and clinical neuroscience. Vol. 267. 2017:S88‐9.
Merle 2021 {published data only}
    1. Merle R, Pison C, Logerot S, Deschaux C, Arnol N, Roustit M, et al. Peer-driven intervention to help patients resume CPAP therapy following discontinuation: a multicentre, randomised clinical trial with patient involvement. BMJ Open 2021;11(10):e053996. - PMC - PubMed
NCT01420575 {published data only}
    1. NCT01420575. Decision aid to facilitate shared decision making during treatment in schizophrenia. clinicaltrials.gov/ct2/show/NCT01420575 (first received 19 August 2011).
NCT01657708 {published data only}
    1. NCT01657708. Implementation of shared decision making model in psychiatric rehabilitation setting. clinicaltrials.gov/ct2/show/NCT01657708 (first received 6 August 2012).
NCT01710306 {published data only}
    1. NCT01710306. Web and shared decision making for reserve/national guard women's PTSD care. clinicaltrials.gov/ct2/show/NCT01710306 (first received 19 October 2012).
NCT02716324 {published data only}
    1. NCT02716324. Communication to improve shared decision-making in ADHD (ADHD-Link). clinicaltrials.gov/ct2/show/NCT02716324 (first received 23 March 2016).
NCT03624829 {published data only}
    1. NCT03624829. Shared care and usual health care for mental and comorbid health problems. clinicaltrials.gov/ct2/show/NCT03624829 (first received 10 August 2018).
NCT03887390 {published data only}
    1. NCT03887390. Depression medication choice decision aid. clinicaltrials.gov/ct2/show/NCT03887390 (first received 25 March 2019).
NCT04175366 {published data only}
    1. NCT04175366. Shared decision making in psychiatric inpatient care (DEAL). clinicaltrials.gov/ct2/show/NCT04175366 (first received 25 November 2019).
NCT04504149 {published data only}
    1. NCT04504149. Shared decision making for PTSD in primary care (PRIMED-PTSD). clinicaltrials.gov/ct2/show/NCT04504149 (first received 7 August 2020).
NCT04902391 {published data only}
    1. NCT04902391. A patient-partnered, pan-Canadian, comparative effectiveness evaluation of an acute pediatric mental health and addiction care bundle. clinicaltrials.gov/ct2/show/NCT04902391 (first received 26 May 2021).
NTR1822 {published data only}
    1. NTR1822. Shared decision making: the effects of a decision aid for Turkish and Moroccan mental health care clients with depression on the client caregiver relationship. trialsearch.who.int/?trialid=NTR1822 (first received 1 April 2009).
NTR6737 {published data only}
    1. NTR6737. Resourcegroups: effectiveness, costs and meaning. trialsearch.who.int/?trialid=NTR6737 (first received 27 September 2017).
Samalin 2018 {published data only}
    1. NCT03245593. Shared medical decision making in the prophylactic treatment of bipolar disorder (ShareD-BD). clinicaltrials.gov/ct2/show/NCT03245593 (first received 10 August 2017).
    1. Samalin L, Honciuc M, Boyer L, Chazeron I, Blanc O, Abbar M, Llorca PM. Efficacy of shared decision-making on treatment adherence of patients with bipolar disorder: a cluster randomized trial (ShareD-BD). BMC Psychiatry . 2018 Apr ;18(1):103. [DOI: 10.1186/s12888-018-1686-y] [PMID: ] - DOI - PMC - PubMed
UMIN000020498 {published data only}
    1. UMIN000020498. Utility of Keio shared decision making (K-SDM) program for depression: an interventional study. center6.umin.ac.jp/cgi-open-bin/ctr/ctr_view.cgi?recptno=R000023667 (first received 12 January 2016).
UMIN000034397 {published data only}
    1. UMIN000034397. A multicenter, cluster randomized controlled trial to investigate the effectiveness of the treatment guideline for major depressive disorder in Japan. center6.umin.ac.jp/cgi-open-bin/ctr/ctr_view.cgi?recptno=R000038957 (first received 1 January 2019).
Vitger 2019 {published data only}
    1. NCT03554655. The efficacy of using a smartphone app to support shared decision making in people with a diagnosis of schizophrenia. clinicaltrials.gov/ct2/show/NCT03554655 (first received 13 June 2018).
    1. Vitger T, Austin SF, Petersen L, Tønder ES, Nordentoft M, Korsbek L. The Momentum trial: the efficacy of using a smartphone application to promote patient activation and support shared decision making in people with a diagnosis of schizophrenia in outpatient treatment settings: a randomized controlled single-blind trial. BMC Psychiatry 2019;19(1):185. [DOI: 10.1186/s12888-019-2143-2] [PMID: ] - DOI - PMC - PubMed
Zisman‐Ilani 2021 {published data only}
    1. NCT04373590. Decision-making and Decision Support Among Emerging Adults With First Episode Psychosis. clinicaltrials.gov/ct2/show/NCT04373590 (first received 4 May 2020).
    1. Zisman-Ilani Y, Hurford I, Bowen A, Salzer M, Thomas EC. Evaluating the feasibility of a decision aid to promote shared decision making among young adults with first-episode psychosis: protocol for a pilot study. Pilot and Feasibility Studies 2021;7(1):22. [DOI: 10.1186/s40814-020-00757-0] [PMID: ] - DOI - PMC - PubMed

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