Unsolved problems in CDH follow-up

doi:10.3389/fped.2022.977354

. 2022 Oct 26:10:977354.

doi: 10.3389/fped.2022.977354. eCollection 2022.

Unsolved problems in CDH follow-up

Laura Valfré¹, Andrea Conforti¹, Francesco Morini², Neil Patel³, Francesca Bevilacqua⁴, Maria Chiara Cianci², Pietro Bagolan^{1

5}, Annabella Braguglia⁶

Affiliations

¹ Neonatal Surgery Unit, Medical and Surgical Department of Fetus-Newborn-Infant, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
² Neonatal Surgery Unit, Meyer Children Hospital, Florence, Italy.
³ Department of Neonatology, Royal Hospital for Children, Glasgow, United Kingdom.
⁴ Unit of Clinical Psychology, Department of Neuroscience, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
⁵ Department of Systems Medicine, University of Tor Vergata, Rome, Italy.
⁶ Neonatal Intermediate Care Unit and Follow-Up, Medical and Surgical Department of Fetus-Newborn-Infant, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.

PMID: 36389367
PMCID: PMC9645578
DOI: 10.3389/fped.2022.977354

Unsolved problems in CDH follow-up

Laura Valfré et al. Front Pediatr. 2022.

. 2022 Oct 26:10:977354.

doi: 10.3389/fped.2022.977354. eCollection 2022.

Authors

Laura Valfré¹, Andrea Conforti¹, Francesco Morini², Neil Patel³, Francesca Bevilacqua⁴, Maria Chiara Cianci², Pietro Bagolan^{1

5}, Annabella Braguglia⁶

Affiliations

¹ Neonatal Surgery Unit, Medical and Surgical Department of Fetus-Newborn-Infant, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
² Neonatal Surgery Unit, Meyer Children Hospital, Florence, Italy.
³ Department of Neonatology, Royal Hospital for Children, Glasgow, United Kingdom.
⁴ Unit of Clinical Psychology, Department of Neuroscience, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
⁵ Department of Systems Medicine, University of Tor Vergata, Rome, Italy.
⁶ Neonatal Intermediate Care Unit and Follow-Up, Medical and Surgical Department of Fetus-Newborn-Infant, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.

PMID: 36389367
PMCID: PMC9645578
DOI: 10.3389/fped.2022.977354

Abstract

In patients affected by CDH, survival beyond the neonatal period continues to increase thanks to technological and pharmacological improvements. Conversely, patients, families and caregivers are more and more frequently facing "new" complex late comorbidities, including chronic pulmonary and cardiac dysfunctions, neurodevelopmental challenges, and specific nutritional requirements, that often require ongoing long-term medical or surgical care. Therefore, late morbidity is now a key focus in clinical care of CDH. The aims of this paper are to stress some of the most important "unsolved problems" for CDH patients at long-term follow-up.

Keywords: congenital diaphragmatic hernia (CDH); hearing loss; long-term follow-up; neurodevelopment; problems; pulmonary hypertension; thoracoscopy.

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Conflict of interest statement

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

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References

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1. Snoek KG, Capolupo I, Braguglia A, Aite L, Van Rosmalen J, Valfrè L, et al. . Neurodevelopmental outcome in high-risk congenital diaphragmatic hernia patients: an appeal for international standardization. Neonatology. (2015) 109:14–21. 10.1159/000438978 - DOI - PubMed
1. Morini F, Valfrè L, Bagolan P. Long-term morbidity of congenital diaphragmatic hernia: a plea for standardization. Semin Pediatr Surg. (2017) 26:301–10. 10.1053/j.sempedsurg.2017.09.002 - DOI - PubMed
1. Chiu PP, Ijsselstijn H. Morbidity and long-term follow-up in CDH patients. Eur J Pediatr Surg. (2012) 22:384–9. 10.1055/s-0032-1329412 - DOI - PubMed
1. Romiti A, Viggiano M, Conforti A, Valfré L, Ravà L, Ciofi Degli Atti M, et al. . Ultrasonographic assessment of mediastinal shift angle (MSA) in isolated left congenital diaphragmatic hernia for the prediction of postnatal survival. J Matern Fetal Neonatal Med. (2020) 33:1330–5. 10.1080/14767058.2018.1517329 - DOI - PubMed

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[1] Morsberger JL, Short HL, Baxter KJ, Travers C, Clifton MS, Durham MM et al. Parent reported long-term quality of life outcomes in children after congenital diaphragmatic hernia repair. J Pediatr Surg. (2019) 54:645–50. 10.1016/j.jpedsurg.2018.06.009 - DOI - PubMed

[2] Morsberger JL, Short HL, Baxter KJ, Travers C, Clifton MS, Durham MM et al. Parent reported long-term quality of life outcomes in children after congenital diaphragmatic hernia repair. J Pediatr Surg. (2019) 54:645–50. 10.1016/j.jpedsurg.2018.06.009 - DOI - PubMed

[3] Snoek KG, Capolupo I, Braguglia A, Aite L, Van Rosmalen J, Valfrè L, et al. . Neurodevelopmental outcome in high-risk congenital diaphragmatic hernia patients: an appeal for international standardization. Neonatology. (2015) 109:14–21. 10.1159/000438978 - DOI - PubMed

[4] Snoek KG, Capolupo I, Braguglia A, Aite L, Van Rosmalen J, Valfrè L, et al. . Neurodevelopmental outcome in high-risk congenital diaphragmatic hernia patients: an appeal for international standardization. Neonatology. (2015) 109:14–21. 10.1159/000438978 - DOI - PubMed

[5] Morini F, Valfrè L, Bagolan P. Long-term morbidity of congenital diaphragmatic hernia: a plea for standardization. Semin Pediatr Surg. (2017) 26:301–10. 10.1053/j.sempedsurg.2017.09.002 - DOI - PubMed

[6] Morini F, Valfrè L, Bagolan P. Long-term morbidity of congenital diaphragmatic hernia: a plea for standardization. Semin Pediatr Surg. (2017) 26:301–10. 10.1053/j.sempedsurg.2017.09.002 - DOI - PubMed

[7] Chiu PP, Ijsselstijn H. Morbidity and long-term follow-up in CDH patients. Eur J Pediatr Surg. (2012) 22:384–9. 10.1055/s-0032-1329412 - DOI - PubMed

[8] Chiu PP, Ijsselstijn H. Morbidity and long-term follow-up in CDH patients. Eur J Pediatr Surg. (2012) 22:384–9. 10.1055/s-0032-1329412 - DOI - PubMed

[9] Romiti A, Viggiano M, Conforti A, Valfré L, Ravà L, Ciofi Degli Atti M, et al. . Ultrasonographic assessment of mediastinal shift angle (MSA) in isolated left congenital diaphragmatic hernia for the prediction of postnatal survival. J Matern Fetal Neonatal Med. (2020) 33:1330–5. 10.1080/14767058.2018.1517329 - DOI - PubMed

[10] Romiti A, Viggiano M, Conforti A, Valfré L, Ravà L, Ciofi Degli Atti M, et al. . Ultrasonographic assessment of mediastinal shift angle (MSA) in isolated left congenital diaphragmatic hernia for the prediction of postnatal survival. J Matern Fetal Neonatal Med. (2020) 33:1330–5. 10.1080/14767058.2018.1517329 - DOI - PubMed

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Unsolved problems in CDH follow-up

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Unsolved problems in CDH follow-up

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