Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2023 Jan;67(1):64-76.
doi: 10.1111/jir.12992. Epub 2022 Nov 23.

The intellectual and developmental disability shared citizenship paradigm: its cross-cultural status, implementation and confirmation

R Luckasson  1 , R L Schalock  2 , M J Tassé  3 , K A Shogren  4
Affiliations

The intellectual and developmental disability shared citizenship paradigm: its cross-cultural status, implementation and confirmation

R Luckasson et al. J Intellect Disabil Res. 2023 Jan.

Abstract

Background: Dramatic changes in societal approaches to people with intellectual and developmental disabilities (IDD), and the services and supports they receive are reflected in a new paradigm that we name the shared citizenship paradigm. The shared citizenship paradigm (1) incorporates an updated and contemporary set of values and beliefs about people with IDD and their right to participate fully in all aspects of life and society; (2) is characterised by a holistic approach to IDD, a contextual model of human functioning, disability rights principles and person-centred implementation strategies; (3) incorporates the exponential growth in knowledge about the causes and characteristics of IDD and factors influencing the elimination of barriers to positive outcomes for people with IDD; and (4) is reflected in international covenants, such as the United Nations Convention on the Rights of People with Disabilities (UNCRPD), and in international policy goals and associated personal outcome domains.

Method: We conducted a preliminary survey on the cross-cultural status of the shared citizenship paradigm with a small purposefully sampled international group of professionals known to have extensive knowledge, experience, and publications regarding their country's current IDD-related policies and practices.

Results: One or more paradigm components were evident to a moderate degree in the respondents' countries, and the paradigm is being used to provide individualised services and supports, to guide organisation transformation and systems change, and, to a lesser degree, to frame evidence-based inquiry.

Conclusions: Core components of the shared citizenship paradigm are present internationally. To further enhance implementation and confirmation of the paradigm, we propose implementation strategies and confirmation techniques.

Keywords: Cross-cultural; Innovation process; Intellectual and developmental disabilities; Paradigm evaluation; Paradigm implementation model; Shared citizenship.

PubMed Disclaimer

References

    1. Claes C., Vandenbussche H. & Lombardi M. (2016) Human rights and quality of life domains: identifying cross-cultural indicators. In: Cross-cultural quality of life: enhancing the lives of people with intellectual disability (eds R. L. Schalock & K. D. Keith), 2nd edn, pp. 167-174. American Association on Intellectual and Developmental Disabilities.
    1. Fetterman D. M., Kaftarian S. J. & Wandersman A. (2015) Empowerment evaluation: knowledge and tools for self-assessment, evaluation, and capacity building and accountability. Sage Publications.
    1. Gomez L. E., Moran L., Navas P., Verdugo M. A., Schalock R. L., Lombardi M. et al. (in press) Using the quality of life framework to operationalize and assess the UNCRPD articles and the sustainable development goals. Journal Policy and Practice in Intellectual Disabilities.
    1. Gomez L. E., Schalock R. L. & Verdugo M. A. (2021a) A new paradigm in the field of intellectual and developmental disabilities: characteristics and evaluation. Psychothemia 33, 28-35.
    1. Gomez L. E., Schalock R. L. & Verdugo M. A. (2021b) A quality of life supports model: six research-focused steps to evaluate the model and enhance research practices in the field of intellectual and developmental disabilities. Research in Developmental Disabilities 119, 104112.

LinkOut - more resources