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. 2023 Mar;36(2):207-229.
doi: 10.1111/jar.13054. Epub 2022 Nov 26.

Transitions for older people with intellectual disabilities and behaviours that challenge others: A rapid scoping review

Affiliations

Transitions for older people with intellectual disabilities and behaviours that challenge others: A rapid scoping review

Elizabeth Tilley et al. J Appl Res Intellect Disabil. 2023 Mar.

Abstract

Background: People with intellectual disabilities and behaviours that challenge others are living longer. This review aimed to explore what is known about the health and social care needs, experiences, service interventions and resources of and for this population as they transition to different care contexts in the UK.

Method: A rapid scoping review of published and unpublished literature was conducted based on collaborative working with key stakeholders and using systematic methods of data searching, extraction and analysis.

Results: Consistent social work support, skilled staff, suitable accommodation, creative engagement with individuals and families to plan ahead, and timely access to quality healthcare are all required to promote successful transitions as people age, and to avoid unwanted/inappropriate transitions at points of crisis.

Conclusions: More research is needed to assess the types of services that this population can and do access as they age, the quality of those services, and the extent to which local commissioners are planning ahead for people with intellectual disabilities and behaviours that challenge others.

Keywords: ageing; behaviours that challenge others; intellectual disabilities; older people; transitions.

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Conflict of interest statement

The authors declare no conflicts of interest.

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References

Included Studies

    1. Bissell, L. , Phillips, N. , & Stenfert Kroese, B. (2005). The experience of a man with severe challenging behaviour following resettlement from hospital: A single case design. British Journal of Learning Disabilities, 33(4), 166–173. 10.1111/j.1468-3156.2005.00302.x - DOI
    1. Centre for Reviews and Dissemination (CRD) . (2009). Systematic reviews. CRD's guidance for undertaking reviews in health care. York: CRD, University of York.
    1. Forrester‐Jones, R. (2019). Confronting a looming crisis. People with learning disabilities or autism and their carers getting older. University of Bath. Retrieved from: https://www.bath.ac.uk/publications/report-confronting-a-looming-crisis/...
    1. Hubert, J. , & Hollins, S. (2010). A study of post‐institutionalised men with severe intellectual disabilities and challenging behaviour. Journal of Policy and Practice in Intellectual Disabilities, 7(3), 189–195. 10.1111/j.1741-1130.2010.00264.x - DOI
    1. Leaning, B. , & Adderley, H. (2015). From long‐stay hospitals to community care: Reconstructing the narratives of people with learning disabilities. British Journal of Learning Disabilities, 44(2), 167–171. 10.1111/bld.12139 - DOI

OTHER REFERENCES

    1. Alftberg, Å. , Johansson, M. , & Ahlström, G. (2021). Ambivalence among staff regarding ageing with intellectual disabilities: Experiences and reflections. Journal of Intellectual Disabilities, 25(2), 92–209. 10.1177/1744629519874997 - DOI - PMC - PubMed
    1. Aman, M. G. , & Singh, N. N. (1986). The aberrant behavior checklist. Slosson Educational Publications.
    1. Ballard, C. , Mobley, W. , Hardy, J. , Williams, G. , & Corbett, A. (2016). Dementia in Down's syndrome. The Lancet, 15(6), 622–636. 10.1016/S1474-4422(16)00063-6 - DOI - PubMed
    1. Banks, F. , Fielden, A. , O'Sullivan, D. , & Ingham, B. (2021). The informal culture of a direct care staff team supporting people with intellectual disabilities who present with behaviours that challenge. Tizard Learning Disability Review, 26(3), 160–168. 10.1108/TLDR-01-2021-0001 - DOI
    1. Bell, D. (2010). The impact of devolution: Long‐term care provision in the UK. York; https://www.jrf.org.uk/sites/default/files/jrf/migrated/files/impact-of-...

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