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Review
. 2022 Dec 6;80(23):2239-2250.
doi: 10.1016/j.jacc.2022.09.032.

Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

Alexander R Opotowsky  1 , Kiona Y Allen  2 , Emily M Bucholz  3 , Kristin M Burns  4 , Pedro Del Nido  5 , Kathleen N Fenton  4 , Bruce D Gelb  6 , James N Kirkpatrick  7 , Shelby Kutty  8 , Linda M Lambert  9 , Keila N Lopez  10 , Laura J Olivieri  11 , Nathan M Pajor  12 , Sara K Pasquali  13 , Christopher J Petit  14 , Erica Sood  15 , John M VanBuren  16 , Gail D Pearson  4 , Shelley D Miyamoto  17
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Free article
Review

Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

Alexander R Opotowsky et al. J Am Coll Cardiol. .
Free article

Abstract

The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.

Keywords: collaborative science; congenital heart disease; lifespan; outcomes; research.

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Conflict of interest statement

Funding Support and Author Disclosures Dr Opotowsky is supported by the Heart Institute Research Core at Cincinnati Children's Hospital, and the Samuel and Molly Kaplan Fund for Adult Congenital Heart Disease. Dr Miyamoto is supported by the Children's Hospital Colorado Jack Cooper Millisor Chair in Pediatric Heart Disease. The views expressed in this manuscript are those of the authors and do not necessarily represent the views of the National Heart, Lung, and Blood Institute; the National Institutes of Health; the U.S. Department of Health and Human Services; or of other institutions. All other authors have reported that they have no relationships relevant to the contents of this paper to disclose.

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