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. 2022 Dec;28(1):260-269.
doi: 10.1080/13814788.2022.2153827.

Patient involvement in the encounter between general practice and patients with a chronic disease. Results of a scoping review focusing on type 2 diabetes and obstructive pulmonary disease

Signe Beck Titlestad  1 , Michael Marcussen  1 , Marie Sandstød Rasmussen  1 , Birgitte Nørgaard  1
Affiliations

Patient involvement in the encounter between general practice and patients with a chronic disease. Results of a scoping review focusing on type 2 diabetes and obstructive pulmonary disease

Signe Beck Titlestad et al. Eur J Gen Pract. 2022 Dec.

Abstract

Introduction: Research has shown improved health outcomes when patients are involved in managing their health conditions and when their individual needs are considered.

Objectives: This scoping review aimed to map the existing research regarding chronic disease patients' involvement in their encounters with general practice, with a specific focus on patients with Type 2 diabetes (TD2) or chronic obstructive pulmonary disease (COPD) and from the perspectives of both general practitioners and patients.

Methods: Studies of any design, date, and language were included. A systematic search was conducted using the following databases: Medline, CINAHL, PsycInfo, Scopus, and EMBASE from August until October 2020 and renewed September 2021. Data were systematically charted by the following study characteristics: bibliographic aims; study aims; setting; area of interest; results; conclusion.

Results: Eighteen studies were included; they conducted qualitative methods, surveys or mixed methods. From the patients' perspectives, the importance of being more involved in treatment discussions during consultations as well as a friendly environment, was underscored. A good relationship and relational continuity make it easier for patients to be more involved in treatment decisions. From the general practitioner (GP) perspectives, they mentioned their high workload, long-standing relationships, knowledge about the patients and prepared patients as factors influencing their ability to involve patients in treatment discussions.

Conclusion: A good GP-patient relationship was considered an important aspect to providing and facilitating for involvement of patients with COPD or TD2. Scoping review registration: https://osf.io/ynqt2.

Keywords: COPD; GP’s perspective; Patient involvement; TD2; general practice; patient perspectives.

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Conflict of interest statement

No potential conflict of interest was reported by the author(s).

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Figure 1.
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References

    1. Boote J, Wong R, Booth A. ‘Talking the talk or walking the walk?’ A bibliometric review of the literature on public involvement in health research published between 1995 and 2009. Health Expect. 2015;18(1):44–57. Epub 2012/10/05. - PMC - PubMed
    1. Pii KH, Schou LH, Piil K, et al. Current trends in patient and public involvement in cancer research: a systematic review. Health Expect. 2019;22(1):3–20. Epub 2018/11/01. - PMC - PubMed
    1. British Medical Association. Patient and public involvement: a tool kit for GPs. London: British Medical Association; 2015. [cited 2022 November28]. Available from: https://www.bma.org.uk/media/1938/bma-patient-and-public-involvement-201...
    1. Kennedy AP, Rogers AE.. Improving patient involvement in chronic disease management: the views of patients, GPs and specialists on a guidebook for ulcerative colitis. Patient Educ Couns. 2002;47(3):257–263. Epub 2002/06/29. - PubMed
    1. Shay LA, Lafata JE.. Where is the evidence? A systematic review of shared decision making and patient outcomes. Med Decis Making. 2015;35(1):114–131. Epub 2014/10/30. - PMC - PubMed

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