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Editorial
. 2022 Jun 1;4(2):93-101.
doi: 10.1089/aut.2022.0017. Epub 2022 Jun 9.

Autistic Perspectives on the Future of Clinical Autism Research

Heta Pukki  1 , Jorn Bettin  2 , Avery Grey Outlaw  3 , Joshua Hennessy  4 , Kabie Brook  4 , Martijn Dekker  5 , Mary Doherty  6 , Sebastian C K Shaw  7 , Jo Bervoets  8 , Silke Rudolph  5 , Thibault Corneloup  9 , Kylieanne Derwent  10 , Onemoo Lee  11 , Yadira Garcia Rojas  12 , Wenn Lawson  13 , Monica Vidal Gutierrez  14 , Kosjenka Petek  15 , Myria Tsiakkirou  5 , Annikka Suoninen  16 , Jo Minchin  17 , Rainer Döhle  18 , Silke Lipinski  19 , Heini Natri  20 , Emma Reardon  21 , Giovanna Villarreal Estrada  12 , Ovidiu Platon  22 , Nick Chown  23 , Ayaya Satsuki  24 , Damian Milton  25 , Nick Walker  26 , Ondrej Roldan  27 , Bárbara Herrán  28 , Citlali Limón Cañedo  29 , Sue McCowan  7 , Mona Johnson  7 , Eleanor Jane Turner  7 , Jessy Lammers  9 , Wn-Ho Yoon  11
Affiliations
Editorial

Autistic Perspectives on the Future of Clinical Autism Research

Heta Pukki et al. Autism Adulthood. .
No abstract available

Keywords: autism research; autistic people's priorities; collaborative participation; neurodiversity paradigm; participatory research.

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Conflict of interest statement

H.P. is an employee of Suomen Autismikirjon Yhdistys, a non-profit NGO that promotes the empowerment of autistic people. M.D., S.C.K.S., N.C., and M.J. are all part of a John and Lorna Wing Foundation funded research project based at London South Bank University, exploring National Health Service (UK) General Practitioners' knowledge, attitudes, and practices regarding annual health checks for autistic adults and autism training. M.D. is a member of AIMS-2-Trials Autism Representatives Steering Committee. S.M. is a member of the Royal College of Psychiatrists' Autism Group (promoting the importance of autism to the psychiatric profession) and Disabilities Equality Action Plan Working Group. Other authors declared no conflicting interests.

References

    1. Lord C, Charman T, Havdahl A, et al. . The Lancet Commission on the future of care and clinical research in autism. Lancet. 2022;399(10321):271–334. - PubMed
    1. The Global Autistic Task Force on Autism Research. An open letter to the Lancet Commission on the future of care and clinical research in autism. https://eucap.eu/2022/02/14/open-letter-to-lancet-commission/ Accessed February 14, 2022.
    1. Roche L, Adams D, Clark M. Research priorities of the autism community: A systematic review of key stakeholder perspectives. Autism. 2021;25(2):336–348. - PubMed
    1. Pellicano E, Dinsmore A, Charman T. What should autism research focus upon? Community views and priorities from the United Kingdom. Autism. 2014;18(7):756–770. - PMC - PubMed
    1. Australian Autism Research Council. Research report on focus groups to identify research questions for community informed priority areas. https://www.autismcrc.com.au/aarc Accessed February 2, 2022.

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