Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2023 Jan 17;12(3):735.
doi: 10.3390/jcm12030735.

The Quality of Life among Siblings of Autistic Individuals: A Scoping Review

Affiliations

The Quality of Life among Siblings of Autistic Individuals: A Scoping Review

Giuseppe Quatrosi et al. J Clin Med. .

Abstract

Autism spectrum disorders are a heterogeneous group of neurodevelopmental disorders presenting at a tender age, defined by qualitative deficits in social interactions and communication, thus having a substantial influence on the subject's family unit. Quality of life (QoL) refers to a person's perspective of their life situation, cultural and value background, objectives, expectations, and standards. When focusing on childhood and adolescence, age-related changes should be considered. For this scoping review, the authors used three peer-review literature database sources (PubMed/MEDLINE, Scopus, and ERIC) to delve deeper into components of the QoL of non-autistic siblings of autistic individuals. At the completion of the eligibility phase, 9 studies were included out of the 96 initial records. A total of 4/9 articles (45%) compared the non-autistic siblings of autistic individuals to the siblings of non-autistic people, while 3/9 articles (33%) compared the first group to the non-autistic siblings of patients with other chronic diseases. A total of 5/9 studies adopted specific questionnaires to evaluate QoL. Results from 6/9 articles revealed that the autism condition has varying effects on non-autistic siblings' QoL. According to the considered research, non-autistic siblings of autistic individuals experienced decreased psychological well-being, less perceived social support, increased aggressiveness and conflict-proneness, and higher levels of anxiety and stress impacting their QoL. The present findings provide important implications for additional and more punctual studies in this sector. Furthermore, as being a non-autistic sibling of an autistic individual is commonly undervalued, this review advocates the need to organize and improve support services for siblings.

Keywords: QoL; autism; autism spectrum disorders; quality of life; siblings; well-being.

PubMed Disclaimer

Conflict of interest statement

The authors declare no conflict of interest.

Figures

Figure 1
Figure 1
Flowchart representing PRISMA flow diagram of studies’ screening and selection.

Similar articles

Cited by

References

    1. American Psychiatric Association . Diagnostic and Statistical Manual of Mental Disorders. 5th ed. American Psychiatric Association; Arlington, TX, USA: 2013.
    1. Sharma S.R., Gonda X., Tarazi F.I. Autism Spectrum Disorder: Classification, Diagnosis and Therapy. Pharmacol. Ther. 2018;190:91–104. doi: 10.1016/j.pharmthera.2018.05.007. - DOI - PubMed
    1. Lord C., Elsabbagh M., Baird G., Veenstra-Vanderweele J. Autism Spectrum Disorder. Lancet. 2018;392:508. doi: 10.1016/S0140-6736(18)31129-2. - DOI - PMC - PubMed
    1. Sanchack K.E., Thomas C.A. Autism Spectrum Disorder: Primary Care Principles. Am. Fam. Physician. 2016;94:972–979. - PubMed
    1. Ruggeri A., Dancel A., Johnson R., Sargent B. The Effect of Motor and Physical Activity Intervention on Motor Outcomes of Children with Autism Spectrum Disorder: A Systematic Review. Autism. 2020;24:544–568. doi: 10.1177/1362361319885215. - DOI - PubMed

Publication types

Grants and funding

LinkOut - more resources