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. 2024 Jun;18(3):950-959.
doi: 10.1007/s11764-023-01353-w. Epub 2023 Feb 23.

"You don't accept he's completely ok": a reflexive thematic analysis of parents' roles in monitoring their child's health and symptoms after finishing childhood cancer treatment

Nele Loecher  1 , Abbie Jordan  2 , Sheri L Spunt  3 , Pamela Simon  4 , Laura E Simons  5 , Gary Dahl  3   4 , Kristin Kosyluk  6 , Lauren C Heathcote  7
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"You don't accept he's completely ok": a reflexive thematic analysis of parents' roles in monitoring their child's health and symptoms after finishing childhood cancer treatment

Nele Loecher et al. J Cancer Surviv. 2024 Jun.

Abstract

Objectives/purpose: Childhood cancer survival brings continued mental and physical health challenges both for the child and for the family. In this study, we investigated how parents viewed their roles in their child's health and symptom monitoring during the survivorship period.

Methods: Twenty-one parents of childhood cancer survivors (n = 18 mothers; parent mage = 49.78 years, child mage = 18.50 years; range = 12-25 years), whose children were at least one year off-treatment (m = 3.67 years; SD = 2.25; various diagnoses), completed semi-structured interviews. Interviews were recorded, transcribed, and analyzed using reflexive thematic analysis.

Results: Analyses generated three themes which reflect roles that parents may adopt in the context of monitoring symptoms in their childhood cancer survivor. "Vigilant Mama and Papa" (theme 1) described parents who expressed a strong sense of responsibility for protecting their child's health during survivorship resulting in careful monitoring of their child's symptoms and health. "Pragmatic Mamas and Papas" (theme 2) described parents who adopted an approach to symptom and health monitoring that emphasized moving past cancer and focusing on the future. Finally, "Encouraging Mamas and Papas" (theme 3) described parents who focused on educating and preparing their child to develop an autonomous approach to health and symptom self-monitoring as they transitioned to survivorship and adulthood.

Conclusion: Parents take on varying roles in monitoring their child's symptoms and health after finishing childhood cancer treatment.

Implications for cancer survivors: Understanding the ways in which parents continue to be involved in their child's cancer journey helps researchers develop interventions to support dyadic coping in survivorship.

Keywords: Adolescents and young adult; Childhood cancer; Parent perspectives; Survivorship.

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