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. 2023 Feb 23;20(5):3963.
doi: 10.3390/ijerph20053963.

Visibility as a Key Dimension to Better Health-Related Quality of Life and Mental Health: Results of the European Union Funded "ME-WE" Online Survey Study on Adolescent Young Carers in Switzerland

Elena Guggiari  1   2 , Marianne Fatton  3 , Saul Becker  4 , Feylyn Lewis  5 , Giulia Casu  6 , Renske Hoefman  7 , Elizabeth Hanson  8   9 , Sara Santini  10 , Licia Boccaletti  11 , Henk Herman Nap  12 , Valentina Hlebec  13 , Alexandra Wirth  2 , Agnes Leu  1   3
Affiliations

Visibility as a Key Dimension to Better Health-Related Quality of Life and Mental Health: Results of the European Union Funded "ME-WE" Online Survey Study on Adolescent Young Carers in Switzerland

Elena Guggiari et al. Int J Environ Res Public Health. .

Abstract

This paper examines the health-related quality of life (HRQL) and mental health of adolescent young carers (AYCs) aged 15-17 in Switzerland, based on data collected within the Horizon 2020 project 'Psychosocial support for promoting mental health and well-being among AYCs in Europe' (ME-WE). It addresses the following questions: (1) Which characteristics of AYCs are associated with lower HRQL and with higher level of mental health problems? (2) Do AYCs who are less visible and less supported report a lower HRQL and more mental health issues than other AYCs? A total of 2343 young people in Switzerland, amongst them 240 AYCs, completed an online survey. The results show that female AYCs and AYCs with Swiss nationality more often reported having mental health issues than their male and non-Swiss counterparts. Furthermore, the findings show a significant association between receiving support for themselves and visibility from their school or employer and the HRQL. Moreover, AYCs who reported that their school or employer knew about the situation also reported fewer mental health issues. These findings can inform recommendations for policy and practice to develop measures aimed at raising the visibility of AYCs, which is the first step for planning AYC tailored support.

Keywords: AYCs characteristics; HRQL; adolescent young carers (AYCs); mental health; support; visibility; well-being.

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Conflict of interest statement

The authors declare no conflict of interest.

References

    1. Becker S. Young carers. In: Davies M., editor. The Blackwell Encyclopedia of Social Work. 3rd ed. Blackwell; Oxford, UK: 2000. p. 378.
    1. Lewis F.M., Becker S., Parkhouse T., Joseph S., Hlebec V., Mrzel M., Brolin R., Casu G., Boccaletti L., Santini S., et al. The first cross-national study of adolescent young carers aged 15–17 in six European countries. [(accessed on 29 December 2022)];Int. J. Care Caring. 2022 doi: 10.1332/239788222X16455943560342. Available online: https://nottingham-repository.worktribe.com/output/7534326/the-first-cro.... - DOI
    1. Hanson E., Barbabella F., Magnusson L., Brolin R., Svensson M., Yghemonos S., Hlebec V., Bolko I., Boccaletti L., Casu G., et al. Research and Innovation for and with Adolescent Young Carers to Influence Policy and Practice—The European Union Funded “ME-WE” Project. Int. J. Environ. Res. Public Health. 2022;19:9932. doi: 10.3390/ijerph19169932. - DOI - PMC - PubMed
    1. Becker S., Aldridge J., Dearden C. Young Carers and Their Families. Blackwell Science; Oxford, UK: 1998.
    1. Carers Association of Australia . Young Carers Research Project: Final Report. Commonwealth Department of Family and Community Services, Australian Government; Canberra, Australia: 2002.

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