Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

doi:10.1186/s12877-023-03805-5

. 2023 Mar 23;23(1):168.

doi: 10.1186/s12877-023-03805-5.

Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

Carly Welch^#^{1

2

3

4}, Daisy Wilson^#^{5

6}, Avan A Sayer⁷, Miles D Witham⁷, Thomas A Jackson^{8

5

6}; UK Geriatric Medicine Core Dataset Extended Working Group

Collaborators, Affiliations

Collaborators

UK Geriatric Medicine Core Dataset Extended Working Group:
Raj Rajkumar, Jugdeep Dhesi, Mary Ni Lochlainn, Terry Aspray, Richard Dodds, James Frith, Sarah Richardson, Ellen Tullo, Alison Yarnall, Richard Walker, Emma Cunningham, Josephine Prynn, Harnish Patel, Divya Tiwari, Stephen Makin, Phyo Myint, Emily Henderson, Victoria Keevil, Katherine Walesby, Louise Allan, Jane Masoli, Terry Quinn, Andrew P Clegg, Matthew Hale, Simon Conroy, Joanne Taylor, John Gladman, Adam Gordon, Rowan Harwood, Natalie Cox, Helen Roberts

Affiliations

¹ Medical Research Council - Versus Arthritis Centre for Musculoskeletal Ageing Research, University of Birmingham and University of Nottingham, B15 2TT, Birmingham, UK. c.welch@bham.ac.uk.
² Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, B15 2TT, Birmingham, UK. c.welch@bham.ac.uk.
³ University Hospitals Birmingham NHS Foundation Trust, B15 2GW, Birmingham, UK. c.welch@bham.ac.uk.
⁴ Guy's and St Thomas' NHS Foundation Trust, St Thomas' Hospital, Westminster Bridge, London, SE1 7EH, UK. c.welch@bham.ac.uk.
⁵ Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, B15 2TT, Birmingham, UK.
⁶ University Hospitals Birmingham NHS Foundation Trust, B15 2GW, Birmingham, UK.
⁷ AGE Research Group, NIHR Newcastle Biomedical Research Centre, Newcastle University and Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK.
⁸ Medical Research Council - Versus Arthritis Centre for Musculoskeletal Ageing Research, University of Birmingham and University of Nottingham, B15 2TT, Birmingham, UK.

^# Contributed equally.

PMID: 36959622
PMCID: PMC10035483
DOI: 10.1186/s12877-023-03805-5

Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

Carly Welch et al. BMC Geriatr. 2023.

. 2023 Mar 23;23(1):168.

doi: 10.1186/s12877-023-03805-5.

Authors

Carly Welch^#^{1

2

3

4}, Daisy Wilson^#^{5

6}, Avan A Sayer⁷, Miles D Witham⁷, Thomas A Jackson^{8

5

6}; UK Geriatric Medicine Core Dataset Extended Working Group

Collaborators

UK Geriatric Medicine Core Dataset Extended Working Group:
Raj Rajkumar, Jugdeep Dhesi, Mary Ni Lochlainn, Terry Aspray, Richard Dodds, James Frith, Sarah Richardson, Ellen Tullo, Alison Yarnall, Richard Walker, Emma Cunningham, Josephine Prynn, Harnish Patel, Divya Tiwari, Stephen Makin, Phyo Myint, Emily Henderson, Victoria Keevil, Katherine Walesby, Louise Allan, Jane Masoli, Terry Quinn, Andrew P Clegg, Matthew Hale, Simon Conroy, Joanne Taylor, John Gladman, Adam Gordon, Rowan Harwood, Natalie Cox, Helen Roberts

Affiliations

¹ Medical Research Council - Versus Arthritis Centre for Musculoskeletal Ageing Research, University of Birmingham and University of Nottingham, B15 2TT, Birmingham, UK. c.welch@bham.ac.uk.
² Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, B15 2TT, Birmingham, UK. c.welch@bham.ac.uk.
³ University Hospitals Birmingham NHS Foundation Trust, B15 2GW, Birmingham, UK. c.welch@bham.ac.uk.
⁴ Guy's and St Thomas' NHS Foundation Trust, St Thomas' Hospital, Westminster Bridge, London, SE1 7EH, UK. c.welch@bham.ac.uk.
⁵ Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, B15 2TT, Birmingham, UK.
⁶ University Hospitals Birmingham NHS Foundation Trust, B15 2GW, Birmingham, UK.
⁷ AGE Research Group, NIHR Newcastle Biomedical Research Centre, Newcastle University and Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK.
⁸ Medical Research Council - Versus Arthritis Centre for Musculoskeletal Ageing Research, University of Birmingham and University of Nottingham, B15 2TT, Birmingham, UK.

^# Contributed equally.

PMID: 36959622
PMCID: PMC10035483
DOI: 10.1186/s12877-023-03805-5

Abstract

Background: There is lack of standardisation in assessment tools used in geriatric medicine research, which makes pooling of data and cross-study comparisons difficult.

Methods: We conducted a modified Delphi process to establish measures to be included within core and extended datasets for geriatric medicine research in the United Kingdom (UK). This included three complete questionnaire rounds, and one consensus meeting. Participants were selected from attendance at the NIHR Newcastle Biomedical Research Centre meeting, May 2019, and academic geriatric medicine e-mailing lists. Literature review was used to develop the initial questionnaire, with all responses then included in the second questionnaire. The third questionnaire used refined options from the second questionnaire with response ranking.

Results: Ninety-eight responses were obtained across all questionnaire rounds (Initial: 19, Second: 21, Third: 58) from experienced and early career researchers in geriatric medicine. The initial questionnaire included 18 questions with short text responses, including one question for responders to suggest additional items. Twenty-six questions were included in the second questionnaire, with 108 within category options. The third questionnaire included three ranking, seven final agreement, and four binary option questions. Results were discussed at the consensus meeting. In our position statement, the final consensus dataset includes six core domains: demographics (age, gender, ethnicity, socioeconomic status), specified morbidities, functional ability (Barthel and/or Nottingham Extended Activities of Daily Living), Clinical Frailty Scale (CFS), cognition, and patient-reported outcome measures (dependent on research question). We also propose how additional variables should be measured within an extended dataset.

Conclusions: Our core and extended datasets represent current consensus opinion of academic geriatric medicine clinicians across the UK. We consider the development and further use of these datasets will strengthen collaboration between researchers and academic institutions.

Keywords: ADL; Barthel; CFS; Frailty; Minimum dataset.

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Conflict of interest statement

The authors declare no competing interests.

Figures

**Fig. 1**
Steps involved in Delphi process in developing final position statement

See this image and copyright information in PMC

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References

1. Welch C, Geriatric Medicine Research Collaborative Growing research in geriatric medicine: a trainee perspective. Age Ageing. 2020;49(5):733–737. doi: 10.1093/ageing/afaa052. - DOI - PubMed
1. Witham MD, Roberts HC, Gladman J, Stott DJ, Aihie Sayer A, Extended Working Group from the NIHR Newcastle Biomedical Research Centre Meeting Growing research in geriatric medicine. Age Ageing. 2019;48(3):316–319. doi: 10.1093/ageing/afy220. - DOI - PubMed
1. Geriatric Medicine Research Collaborative Using social media and web-based networking in Collaborative research: protocol for the geriatric medicine research Collaborative. JMIR research protocols. 2018;7(10):e179. doi: 10.2196/resprot.9304. - DOI - PMC - PubMed
1. Abellan Van Kan G, Sinclair A, Andrieu S, Olde Rikkert M, Gambassi G, Vellas B. The geriatric minimum data set for clinical trials (GMDS) J Nutr Health Aging. 2008;12(3):197–200. doi: 10.1007/BF02982620. - DOI - PubMed
1. Stirland LE, González-Saavedra L, Mullin DS, Ritchie CW, Muniz-Terrera G, Russ TC. Measuring multimorbidity beyond counting diseases: systematic review of community and population studies and guide to index choice. BMJ. 2020;368:m160. doi: 10.1136/bmj.m160. - DOI - PMC - PubMed

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[1] Welch C, Geriatric Medicine Research Collaborative Growing research in geriatric medicine: a trainee perspective. Age Ageing. 2020;49(5):733–737. doi: 10.1093/ageing/afaa052. - DOI - PubMed

[2] Welch C, Geriatric Medicine Research Collaborative Growing research in geriatric medicine: a trainee perspective. Age Ageing. 2020;49(5):733–737. doi: 10.1093/ageing/afaa052. - DOI - PubMed

[3] Witham MD, Roberts HC, Gladman J, Stott DJ, Aihie Sayer A, Extended Working Group from the NIHR Newcastle Biomedical Research Centre Meeting Growing research in geriatric medicine. Age Ageing. 2019;48(3):316–319. doi: 10.1093/ageing/afy220. - DOI - PubMed

[4] Witham MD, Roberts HC, Gladman J, Stott DJ, Aihie Sayer A, Extended Working Group from the NIHR Newcastle Biomedical Research Centre Meeting Growing research in geriatric medicine. Age Ageing. 2019;48(3):316–319. doi: 10.1093/ageing/afy220. - DOI - PubMed

[5] Geriatric Medicine Research Collaborative Using social media and web-based networking in Collaborative research: protocol for the geriatric medicine research Collaborative. JMIR research protocols. 2018;7(10):e179. doi: 10.2196/resprot.9304. - DOI - PMC - PubMed

[6] Geriatric Medicine Research Collaborative Using social media and web-based networking in Collaborative research: protocol for the geriatric medicine research Collaborative. JMIR research protocols. 2018;7(10):e179. doi: 10.2196/resprot.9304. - DOI - PMC - PubMed

[7] Abellan Van Kan G, Sinclair A, Andrieu S, Olde Rikkert M, Gambassi G, Vellas B. The geriatric minimum data set for clinical trials (GMDS) J Nutr Health Aging. 2008;12(3):197–200. doi: 10.1007/BF02982620. - DOI - PubMed

[8] Abellan Van Kan G, Sinclair A, Andrieu S, Olde Rikkert M, Gambassi G, Vellas B. The geriatric minimum data set for clinical trials (GMDS) J Nutr Health Aging. 2008;12(3):197–200. doi: 10.1007/BF02982620. - DOI - PubMed

[9] Stirland LE, González-Saavedra L, Mullin DS, Ritchie CW, Muniz-Terrera G, Russ TC. Measuring multimorbidity beyond counting diseases: systematic review of community and population studies and guide to index choice. BMJ. 2020;368:m160. doi: 10.1136/bmj.m160. - DOI - PMC - PubMed

[10] Stirland LE, González-Saavedra L, Mullin DS, Ritchie CW, Muniz-Terrera G, Russ TC. Measuring multimorbidity beyond counting diseases: systematic review of community and population studies and guide to index choice. BMJ. 2020;368:m160. doi: 10.1136/bmj.m160. - DOI - PMC - PubMed

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Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

Collaborators

Affiliations

Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

Authors

Collaborators

Affiliations

Abstract

Conflict of interest statement

Figures

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Cited by

References

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