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Meta-Analysis
. 2024 May 1;64(5):gnad039.
doi: 10.1093/geront/gnad039.

Conceptualizing Family Caregivers' Use of Community Support Services: A Scoping Review

Hyojin Choi  1 , Maija Reblin  2 , Kristin Litzelman  1   3
Affiliations
Meta-Analysis

Conceptualizing Family Caregivers' Use of Community Support Services: A Scoping Review

Hyojin Choi et al. Gerontologist. .

Abstract

Background and objectives: Only a fraction of the 53 million caregivers in the United States use available formal community services. This scoping review synthesized the literature on the barriers and facilitators of community support service utilization by adult caregivers of a family member or friend with an illness, disability, or other limitation.

Research design and methods: We searched PubMed, CINAHL, PsycInfo, and Web of Science for quantitative and qualitative articles assessing barriers and facilitators of caregivers' access to and utilization of resources, following Preferred Reporting Items for Systematic Review and Meta-Analysis scoping review guidelines. Thematic analysis, drawing on an initial conceptualization, informed key insights around caregivers' resource navigation process.

Results: The review provides support for individual factors affecting service use. Notably, some factors-such as time restrictions and increased caregiving demands-appear to function as barriers to accessing services even as they increase caregivers' need for support. Additionally, contextual barriers including cultural factors and support of friends/family can affect caregivers' access to resources. Finally, experience with health systems and structures and the intersection with other factors can affect service utilization.

Discussion and implications: Suboptimal access to and utilization of community support services can be addressed at both the person and system level to mitigate potential inequities. Ensuring that caregivers are aware of, eligible for, and have the capacity and support to access the appropriate resources at the right time is essential for improving caregiver outcomes, reducing burnout, and supporting continued care.

Keywords: Caregiving—informal; Health care policy; Home and community-based care and services; Social services.

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Conflict of interest statement

None declared.

Figures

Figure 1.
Figure 1.
Conceptualization of caregivers’ access to and utilization of community support services.
Figure 2.
Figure 2.
Database search queries.
Figure 3.
Figure 3.
Preferred reporting items for systematic review and meta-analysis flow diagram.
Figure 4.
Figure 4.
Results of the quality assessment.
Figure 5.
Figure 5.
Results of the thematic analysis information key insights.
See this image and copyright information in PMC

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