Identifying Nursing Home Residents with Unmet Palliative Care Needs: A Systematic Review of Screening Tool Measurement Properties
- PMID: 37030323
- PMCID: PMC10156164
- DOI: 10.1016/j.jamda.2023.02.112
Identifying Nursing Home Residents with Unmet Palliative Care Needs: A Systematic Review of Screening Tool Measurement Properties
Abstract
Objectives: Despite common use of palliative care screening tools in other settings, the performance of these tools in the nursing home has not been well established; therefore, the purpose of this review is to (1) identify palliative care screening tools validated for nursing home residents and (2) critically appraise, compare, and summarize the quality of measurement properties.
Design: Systematic review of measurement properties consistent with Consensus-based Standards for the selection of health Measurement Instruments (COSMIN) guidelines.
Settings and participants: Embase (Ovid), MEDLINE (PubMed), CINAHL (EBSCO), and PsycINFO (Ovid) were searched from inception to May 2022. Studies that (1) reported the development or evaluation of a palliative care screening tool and (2) sampled older adults living in a nursing home were included.
Methods: Two reviewers independently screened, selected, extracted data, and assessed risk of bias.
Results: We identified only 1 palliative care screening tool meeting COSMIN criteria, the NECesidades Paliativas (NEC-PAL, equivalent to palliative needs in English), but evidence for use with nursing home residents was of low quality. The NEC-PAL lacked robust testing of measurement properties such as reliability, sensitivity, and specificity in the nursing home setting. Construct validity through hypothesis testing was adequate but only reported in 1 study. Consequently, there is insufficient evidence to guide practice. Broadening the criteria further, this review reports on 3 additional palliative care screening tools identified during the search and screening process but which were excluded during full-text review for various reasons.
Conclusion and implications: Given the unique care environment of nursing homes, we recommend future studies to validate available tools and develop new instruments specifically designed for nursing home use. In the meantime, we recommend that clinicians consider the evidence presented here and choose a screening instrument that best meets their needs.
Keywords: Nursing home; long-term care; palliative care; screening; systematic review.
Copyright © 2023 AMDA – The Society for Post-Acute and Long-Term Care Medicine. Published by Elsevier Inc. All rights reserved.
Conflict of interest statement
Conflicts of Interest
There are no conflicts of interest. JR reports personal fees from Amgen, outside the submitted work, and consultancy with the University of Birmingham Enterprise, outside the submitted work.
References
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- Center to Advance Palliative Care. Improving palliative care in nursing homes. 2008. [cited 2019 Jan 3]; Available from: https://media.capc.org/filer_public/95/b8/95b84a49-7151-427d-be72-200b63....
-
- Institute of Medicine, Dying in America: : Improving Quality and Honoring Individual Preferences Near the End of Life. 2015, Washington, D.C.: National Academies Press. - PubMed
-
- Center to Advance Palliative Care. Palliative care growth trend continues, according to latest Center to Advance Palliative Care analysis. 2014. [cited 2021 8/20/21]; Available from: https://www.capc.org/about/press-media/press-releases/2014-9-2/palliativ....
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