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. 2023 Apr 19;22(1):45.
doi: 10.1186/s12904-023-01164-x.

A pilot study on sports activities in pediatric palliative care: just do it

Irene Avagnina  1 , Anna Santini  2 , Irene Maghini  2 , Eleonora Salamon  2 , Simonetta Papa  3 , Luca Giacomelli  3 , Giorgio Perilongo  4 , Caterina Agosto  2 , Franca Benini  2
Affiliations

A pilot study on sports activities in pediatric palliative care: just do it

Irene Avagnina et al. BMC Palliat Care. .

Abstract

Background: There has been a growing interest in studying the value of physical exercise in children with disabilities or chronic health conditions because of evidence of improvement in quality of life, social acceptance, and physical functioning. However, only scant evidence exists for routine sports activities in children requiring pediatric palliative care (PPC), and in most cases, such evidence has been collected in oncological patients. The Pediatric Hospice of Padua is the referral center for PPC in the Veneto region (northern Italy). Starting from the experience of this PPC center, this pilot study aims to describe the personal experience of children and young people who practice physical activity and their caregivers' perspectives, focusing particularly on the emotional and social impact of exercise and sports practice.

Methods: Patients involved in at least one regular and structured sports activity were included in the pilot analysis. Two different ICF-CY (International Classification of Functioning, Disability and Health-Children and Youth Version) scales ("Body Function" and "Activity and Participation") were filled out to assess the children's global functional competence. Two online ad hoc questionnaires were created and administered to children, when able to respond, and caregivers.

Results: A total of 9% of patients reported being involved in a sports activity. All children who played sports did not have indications of cognitive retardation. The most practiced sport was swimming. The use of standardized methods such as ICF-CY shown that severe motor impairments do not limit sports accessibility. Questionnaires result suggest that sports are a positive experience for both children needing PPC and their parents. Children encourage other children to do sports and can find the positive side even in difficulties.

Conclusion: Since PPC is encouraged as early as the diagnosis of incurable pathologies, the inclusion of sports activities in the context of a PPC plan should be considered from the perspective of improving quality of life.

Keywords: Pediatric palliative care; Physical activity; Quality of life; Sport.

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Conflict of interest statement

The authors declare that they have no competing interests.

References

    1. World Health Organization . Cancer Pain Relief and Palliative Care in Children. Geneva: WHO; 1998.
    1. Benini F, Papadatou D, Bernadá M, Craig F, De Zen L, Downing J, et al. International Standards for Pediatric Palliative Care: from IMPaCCT to GO-PPaCS. J Pain Symptom Manage. 2022;63(5):e529–43. doi: 10.1016/j.jpainsymman.2021.12.031. - DOI - PubMed
    1. Vanderloo LM, Taylor L, Yates J, Bassett-Gunter R, Stanley M, Tucker P. Physical activity among young children with disabilities: a systematic review protocol. BMJ Open. 2022;12(8):e060140. doi: 10.1136/bmjopen-2021-060140. - DOI - PMC - PubMed
    1. Martin Ginis KA, van der Ploeg HP, Foster C, Lai B, McBride CB, Ng K, et al. Participation of people living with disabilities in physical activity: a global perspective. Lancet. 2021;398(10298):443–55. doi: 10.1016/S0140-6736(21)01164-8. - DOI - PubMed
    1. WORLD HEALTH ORGANIZATION, et al. World report on disability 2011. World Health Organization et al. 2011.Available at: https://apps.who.int/iris/handle/10665/44575