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. 2022 Mar 17;3(2):e191.
doi: 10.1097/PG9.0000000000000191. eCollection 2022 May.

Real-world Follow-up Practice of Children With Coeliac Disease: A Cross-sectional Study From Western Sweden

Jennie Oskarsson  1 , Anna Myleus  2 , Karl Mårild  3   4
Affiliations

Real-world Follow-up Practice of Children With Coeliac Disease: A Cross-sectional Study From Western Sweden

Jennie Oskarsson et al. JPGN Rep. .

Abstract

Coeliac disease (CD) is one of the most common chronic diseases of childhood. Follow-up of CD aims to ensure dietary adherence and prevent disease complications, but there are few real-world data on how its management in children is conducted. This study aimed to survey the follow-up practice of pediatric CD in Western Sweden. Two web-based surveys were distributed to all 22 pediatric outpatient clinics rendering answers from 48 physicians and 12 dietitians. Overall, clinical practice was similar throughout the region and in line with national and international CD guidelines, including an annual to biannually follow-up frequency and dietary adherence assessment through unstructured interviewing and serology measurements. The study identified possible areas of improvement, such as implementing a formal transition process to adult care and the use of validated questionaries to assess dietary adherence. Additionally, a positive attitude towards electronic-health technologies (eHealth) as part of CD follow-up was identified.

Keywords: adherence; celiac disease; children; follow-up.

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Conflict of interest statement

The study was supported by a grant to investigator K.M. from the Swedish state under the agreement between the Swedish government and the country councils, the ALF-agreement (ALFGBG-771121). The funders had no role in the design and conduct of the study or in the management, analysis, and interpretation of the data. The remaining authors report no conflicts of interest.

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