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. 2023 May 8:17:26323524231170885.
doi: 10.1177/26323524231170885. eCollection 2023.

Compassionate communities: How to assess their benefit? A protocol of a collaborative study between different countries

Valentina González-Jaramillo  1 , Alicia Krikorian  2 , Vilma Tripodoro  3   4 , Margarita Jorge  3 , Sofia C Zambrano  5 , Francy López  2 , Maria Clara Vélez  2 , Tatiana Noguera  2 , Sebastián Orellana  3 , Silvina Montilla  3 , Andri Christen-Cevallos Rosero  6 , Steffen Eychmüller  6
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Compassionate communities: How to assess their benefit? A protocol of a collaborative study between different countries

Valentina González-Jaramillo et al. Palliat Care Soc Pract. .

Abstract

Background: Communities and local governments invest in compassionate communities (CCs) a great deal of time, money, effort, and work. However, it is not known whether the CCs are having the effect they are expected to have, so the value of continuing with these initiatives is unknown, and there is a need for a model for evaluating CCs to solve the question.

Objectives: To identify a set of core outcomes or benefits that should be measured to assess the impact of the CCs.

Design: Multiple-methods study involving three communities, each in a different country (Argentina, Colombia, and Switzerland).

Methods and analysis: To identifying the set of core outcomes, which is the first step in developing the CC evaluation model, five phases will follow: online meetings, literature review, fieldwork, Delphi survey, and social transfer. We will involve members of the local communities of Bern, Buenos Aires, and Medellin at three different levels: (1) citizens (e.g. patients, caregivers, and family members), (2) organizations and institutions involved in the program implementation (e.g. health care organizations, churches, non-governmental organizations, and schools), and (3) political and governmental sectors.

Ethics: The study will be conducted following existing international regulations and guidance such as the Declaration of Helsinki. The ethics committee of Pallium Latin America and the ethics committee of the canton of Bern considered our application exempt from the need for approval. Ethics approval in Bern and Buenos Aires is in the process of being obtained. The ethics committee of the Pontifical Bolivarian University approved this protocol.

Discussion: We expect that this project will help bridge the gap in knowledge regarding the measurable impact of the CCs and enhance more CC development.

Keywords: compassionate communities; palliative care; public health.

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Conflict of interest statement

The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
Study phases.
See this image and copyright information in PMC

References

    1. Abba K, Lloyd-Williams M, Horton S. Discussing end of life wishes: the impact of community interventions? BMC Palliat Care 2019; 18: 26. - PMC - PubMed
    1. Kirshbaum M, Carey I, Conrad L. Talking about dying and death. BMJ Support Palliat Care 2011; 1: 266.
    1. Breen LJ, Kawashima D, Joy K, et al.. Grief literacy: a call to action for compassionate communities. Death Stud 2022; 46: 425–433. - PubMed
    1. Kellehear A. Compassionate cities: public health and end-of-life care. London: Routledge, 2015.
    1. Clair R, Gordon M, Kroon M, et al.. The effects of social isolation on well-being and life satisfaction during pandemic. Hum Soc Sci Commun 2021; 8: 28.