N-of-1 Analytics Makerspace: A Prototype for Cystic Fibrosis Self-Care and Co-Care

Abstract

We have designed a prototype N-of-1 analytics makerspace, which is a collaborative work environment that provides a space for different stakeholders in healthcare to learn new skills and work together on projects that can improve individual patient care and the effectiveness of healthcare systems. Our prototype was designed to study the use of antibiotics in self-management for children with cystic fibrosis in Sweden but is intended to be disease agnostic and potentially include other complex medical conditions in the future.

Keywords: N-of-1; Patient-controlled real world data; cystic fibrosis; knowledge commons; learning networks.