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Review
. 2023 May 4:5:1196442.
doi: 10.3389/fdgth.2023.1196442. eCollection 2023.

Virtual monitoring in CF - the importance of continuous monitoring in a multi-organ chronic condition

Affiliations
Review

Virtual monitoring in CF - the importance of continuous monitoring in a multi-organ chronic condition

Tamara Vagg et al. Front Digit Health. .

Abstract

Cystic Fibrosis (CF) is a chronic life-limiting condition that affects multiple organs within the body. Patients must adhere to strict medication regimens, physiotherapy, diet, and attend regular clinic appointments to manage their condition effectively. This necessary but burdensome requirement has prompted investigations into how different digital health technologies can enhance current care by providing the opportunity to virtually monitor patients. This review explores how virtual monitoring has been harnessed for assessment or performance of physiotherapy/exercise, diet/nutrition, symptom monitoring, medication adherence, and wellbeing/mental-health in people with CF. This review will also briefly discuss the potential future of CF virtual monitoring and some common barriers to its current adoption and implementation within CF. Due to the multifaceted nature of CF, it is anticipated that this review will be relevant to not only the CF community, but also those investigating and developing digital health solutions for the management of other chronic diseases.

Keywords: chronic condition; cystic fibrosis; remote monitoring; review; virtual monitoring.

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Conflict of interest statement

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Figures

Figure 1
Figure 1
Summary of the virtual monitoring devices and target cohorts within CF.

References

    1. Sawicki GS, Sellers DE, Robinson WM. High treatment burden in adults with cystic fibrosis: challenges to disease self-management. J Cyst Fibros. (2009) 8:91–6. 10.1016/j.jcf.2008.09.007 - DOI - PMC - PubMed
    1. Vagg T, Shanthikumar S, Morrissy D, Chapman WW, Plant BJ, Ranganathan S. Telehealth and virtual health monitoring in cystic fibrosis. Curr Opin Pulm Med. (2021) 27:544–53. 10.1097/MCP.0000000000000821 - DOI - PubMed
    1. Smyth AR, Bell SC, Bojcin S, Bryon M, Duff A, Flume P, et al. European cystic fibrosis society standards of care: best practice guidelines. J Cyst Fibros. (2014) 13:S23–S42. 10.1016/j.jcf.2014.03.010 - DOI - PubMed
    1. Shelley J, Fairclough SJ, Knowles ZR, Southern KW, McCormack P, Dawson EA, et al. A formative study exploring perceptions of physical activity and physical activity monitoring among children and young people with cystic fibrosis and health care professionals. BMC Pediatr. (2018) 18:1–16. 10.1186/s12887-018-1301-x - DOI - PMC - PubMed
    1. Curran M, Tierney AC, Collins L, Kennedy L, McDonnell C, Jurascheck AJ, et al. Steps ahead: optimising physical activity in adults with cystic fibrosis: a pilot randomised trial using wearable technology, goal setting and text message feedback. J Cyst Fibros. (2022). 10.1016/j.jcf.2022.11.002 - DOI - PubMed

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