The Use of Telehealth Among People Living With Dementia-Caregiver Dyads During the COVID-19 Pandemic: Scoping Review
- PMID: 37227755
- PMCID: PMC10251224
- DOI: 10.2196/45045
The Use of Telehealth Among People Living With Dementia-Caregiver Dyads During the COVID-19 Pandemic: Scoping Review
Abstract
Background: Telehealth has gained substantial attention during the COVID-19 pandemic, and reimbursement policies in health care settings have increased access to remote modes of care delivery. Telehealth has the potential to mitigate care concerns for people living with dementia and their family caregivers. There is a paucity of knowledge on the performance of telehealth services and user experiences, especially among caregiving dyads during the pandemic.
Objective: This study aims to describe the implementation, effectiveness, user experience, and barriers to accessing and using telehealth services for people living with dementia and their caregivers during the COVID-19 pandemic.
Methods: Following the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist, we searched 7 databases (PubMed, PsycINFO, AgeLine, CINAHL, Social Services Abstracts, Web of Science, and Scopus) and a web-based search engine (Google Scholar). The inclusion criteria for peer-reviewed English publications from March 2020 to August 2022 consisted of studies related to telehealth services for people living with dementia and their family caregivers and studies conducted during the COVID-19 pandemic.
Results: A total of 24 articles (10 quantitative and 14 qualitative studies) from 10 different countries were included. The major findings of the reviewed articles were extracted and organized into the following 4 themes: study design characteristics-strategies were adopted to improve the accessibility and experience of people living with dementia-caregiver dyads; efficacy outcomes of telehealth services-robust evidence is lacking on the comparative effectiveness of in-person services; perceived experiences of people living with dementia and caregivers-most reviewed studies reported positive experiences of using telehealth services and perceived personal and social benefits from their participants; and barriers to accessing and using telehealth services-several barriers related to individuals, infrastructure, and telehealth environments were identified.
Conclusions: Although evidence of its effectiveness is still limited, telehealth is widely accepted as a viable alternative to in-person care for high-risk groups, such as people living with dementia and their caregivers. Future research should include expanding digital access for those with limited resources and low technology literacy, adopting randomized controlled trial designs to establish the comparative effectiveness of different modes of service delivery, and increasing the sample diversity.
Keywords: COVID-19; family caregiver; mobile phone; people living with dementia; scoping review; telehealth.
©Jiaming Liang, Maria P Aranda. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 25.05.2023.
Conflict of interest statement
Conflicts of Interest: None declared.
Figures
References
-
- Pierce M. The impact of COVID-19 on people who use and provide Long-Term Care in Ireland and mitigating measures. LTCcovid.org, International Long-Term Care Policy Network, CPEC-LSE. 2020. [2023-05-06]. https://ltccovid.org/2020/04/15/the-impact-of-covid-19-on-people-who-use...
-
- Gilstrap L, Zhou W, Alsan M, Nanda A, Skinner JS. Trends in mortality rates among medicare enrollees with Alzheimer disease and related dementias before and during the early phase of the COVID-19 pandemic. JAMA Neurol. 2022 Apr 01;79(4):342–8. doi: 10.1001/jamaneurol.2022.0010. https://europepmc.org/abstract/MED/35226041 2789614 - DOI - PMC - PubMed
-
- Carpinelli Mazzi M, Iavarone A, Musella C, De Luca M, de Vita D, Branciforte S, Coppola A, Scarpa R, Raimondo S, Sorrentino S, Lualdi F, Postiglione A. Time of isolation, education and gender influence the psychological outcome during COVID-19 lockdown in caregivers of patients with dementia. Eur Geriatr Med. 2020 Dec;11(6):1095–8. doi: 10.1007/s41999-020-00413-z. https://europepmc.org/abstract/MED/33052535 10.1007/s41999-020-00413-z - DOI - PMC - PubMed
-
- Altieri M, Santangelo G. The psychological impact of COVID-19 pandemic and lockdown on caregivers of people with dementia. Am J Geriatr Psychiatry. 2021 Jan;29(1):27–34. doi: 10.1016/j.jagp.2020.10.009. https://europepmc.org/abstract/MED/33153872 S1064-7481(20)30529-7 - DOI - PMC - PubMed
-
- Borges-Machado F, Barros D, Ribeiro Ó, Carvalho J. The effects of COVID-19 home confinement in dementia care: physical and cognitive decline, severe neuropsychiatric symptoms and increased caregiving burden. Am J Alzheimers Dis Other Demen. 2020;35:1533317520976720. doi: 10.1177/1533317520976720. https://journals.sagepub.com/doi/10.1177/1533317520976720?url_ver=Z39.88... - DOI - DOI - PMC - PubMed
Publication types
MeSH terms
Grants and funding
LinkOut - more resources
Full Text Sources
Medical
