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. 2023 May 30:6:e44750.
doi: 10.2196/44750.

Information and Communication Technologies to Support the Provision of Respite Care Services: Scoping Review

Affiliations

Information and Communication Technologies to Support the Provision of Respite Care Services: Scoping Review

Aimee R Castro et al. JMIR Nurs. .

Abstract

Background: Respite care is one of the most frequently requested support services by family caregivers. Yet, too often, respite care services are inaccessible, due in part to families' lack of knowledge regarding available services and a lack of service flexibility. Information and communication technologies (ICTs) may help to improve the flexibility of services available and families' knowledge of such services. However, an understanding of the use of ICTs and research in this area is lacking.

Objective: The objective of this study was to provide a comprehensive overview of the academic literature on ICTs for supporting the provision of respite care services.

Methods: A scoping review study was conducted. Six library databases were systematically searched for relevant literature. Key data were extracted into a summary chart. Text and quantitative data were coded using descriptive qualitative content analysis techniques, and the results were collated and summarized into a comprehensive narrative.

Results: A total of 23 papers describing 15 unique ICT programs exploring the potential of ICTs to support respite care services met the inclusion criteria. ICTs supported the provision of respite care by facilitating information-sharing with families and providers, recruiting and training respite care providers, and coordinating services. Key design considerations for developing respite care ICTs were trustworthiness and participatory design methods. Implementation considerations included designing for complementarity with existing services, assessing the appropriate timing for introducing the ICT-based services, and ensuring adequate promotion strategies to raise awareness about the services.

Conclusions: There is limited but promising research on the potential of ICTs to support the provision of respite care services. Further research should be conducted to advance the results of this review, ultimately aiming to build ICTs that can improve the quality of, and access to, respite care services.

Keywords: caregivers; eHealth; health services accessibility; home care services; mHealth; respite care; short break care.

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Conflict of interest statement

Conflicts of Interest: None declared.

Figures

Figure 1
Figure 1
This flowchart outlines the results of the screening process. ICT: Information and communication technology.

References

    1. Rose MS, Noelker LS, Kagan J. Improving policies for caregiver respite services. Gerontologist. 2015;55(2):302–308. doi: 10.1093/geront/gnu120. https://academic.oup.com/gerontologist/article/55/2/302/655643 gnu120 - DOI - PubMed
    1. Whitmore KE, Snethen J. Respite care services for children with special healthcare needs: parental perceptions. J Spec Pediatr Nurs. 2018;23(3):e12217. doi: 10.1111/jspn.12217. https://onlinelibrary.wiley.com/doi/abs/10.1111/jspn.12217 - DOI - DOI - PMC - PubMed
    1. Buscemi V, Font A, Viladricht C. Focus on relationship between the caregivers unmet needs and other caregiving outcomes in cancer palliative care. Psicooncología. 2010;7(1):109–125. https://psycnet.apa.org/record/2010-13367-007
    1. Robinson CA, Bottorff JL, McFee E, Bissell LJ, Fyles G. Caring at home until death: enabled determination. Support Care Cancer. 2017;25(4):1229–1236. doi: 10.1007/s00520-016-3515-5. https://link.springer.com/article/10.1007/s00520-016-3515-5 s00520-016-3515-5 - DOI - DOI - PubMed
    1. Shaw C, McNamara R, Abrams K, Cannings-John R, Hood K, Longo M, Myles S, O'Mahony S, Roe B, Williams K. Systematic review of respite care in the frail elderly. Health Technol Assess. 2009;13(20):1–224. doi: 10.3310/hta13200. https://orca.cardiff.ac.uk/id/eprint/29094/ - DOI - PubMed

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