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. 2023 Jun 5:44:e20220075.
doi: 10.1590/1983-1447.2023.20220075.en. eCollection 2023.

Transitions experienced by mothers of children/adolescents with sickle cell disease in the context of the COVID-19 pandemic

[Article in English, Portuguese]
Luana Santana Brito  1 , Juliane Batista Costa Teixeira  1 , Aisiane Cedraz Morais  1 , Luciano Marques Dos Santos  1 , Cleuma Sueli Santos Suto  2 , Coretta Melissa Jenerette  3 , Evanilda Souza de Santana Carvalho  1
Affiliations
Free article

Transitions experienced by mothers of children/adolescents with sickle cell disease in the context of the COVID-19 pandemic

[Article in English, Portuguese]
Luana Santana Brito et al. Rev Gaucha Enferm. .
Free article

Abstract

Objective: To analyze the transitions experienced by mothers and children/adolescents with sickle cell disease after the emergence of the COVID-19 pandemic.

Method: A qualitative study involving 19 mothers of children and adolescents with sickle cell disease. Data were obtained through semi-structured interviews via WhatsApp, followed by Thematic Analysis and Descending Hierarchical Classification with the help of Interface de R pour les Analyses Multidimensionnelles de Texteset de Questionnaires and interpreted in the light of Afaf Meleis' Transition Theory.

Results: Support from family members for displacement; mothers' adherence to the routine of daily stimuli and physical exercises favored healthy transitions; lack of remote health care; low socioeconomic resources; interruption of the physiotherapy service; and maternal overload favor unhealthy transitions.

Final considerations: Efforts/movements by mothers ensure the healthy transition of children/adolescents with sickle disease during the pandemic, while supporting their unhealthy transition.

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