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. 2024 Oct;22(5):1048-1055.
doi: 10.1017/S1478951523000500.

The Pediatric Serious Illness Conversation Program: Understanding challenges and experiences for clinicians after advance care planning training

Megan Doherty  1   2 , Preet Gujral  2 , Maryse Frenette  3 , Nadine Lusney  4 , Camara van Breemen  4   5
Affiliations

The Pediatric Serious Illness Conversation Program: Understanding challenges and experiences for clinicians after advance care planning training

Megan Doherty et al. Palliat Support Care. 2024 Oct.

Abstract

Objectives: To explore experiences of pediatric clinicians participating in a serious illness communication program (SICP) for advance care planning (ACP), examining how the SICP supports clinicians to improve their communication and the challenges of implementing new communication tools into clinical practice.

Methods: A qualitative description study using individual interviews with a diverse group of pediatric clinicians who participated in 2.5-hour SICP training workshops at pediatric tertiary hospitals. Discussions were transcribed, coded, and arranged into overarching themes. Thematic analysis was conducted using interpretive description methodology.

Results: Fourteen clinicians from 2 Canadian pediatric tertiary hospital settings were interviewed, including nurses (36%), physicians (36%), and social workers (29%), from the fields of neonatology (36%), palliative care (29%), oncology (21%), and other pediatric specialties (14%). Key themes included specific benefits of SICP, with subthemes of connecting with families, increased confidence in ACP discussions, providing tools to improve communication, and enhanced self-awareness and self-reflection. A second theme of perceived challenges emerged, which included subthemes of not having the conversation guide readily accessible, divergent team communication practices, and particular features of the clinical environment which limited the possibility of engaging in ACP discussions with parents.

Significance of results: A structured program to enhance serious illness communication supports clinicians to develop skills and tools to increase their confidence and comfort in conducting conversations about end-of-life issues. Addressing challenges of adopting the newly learned communication practices, by providing access to digital SICP tools and conducting SICP training for clinical teams may further support clinicians to engage in ACP.

Keywords: advance care planning; children; communication; hospice care; medical education; palliative care; serious illness.

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