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. 2023 Jul 1;115(12):1140-1150.
doi: 10.1002/bdr2.2210. Epub 2023 Jun 12.

Using a health observance event to raise awareness: An assessment of World Birth Defects Day

Danielle L Kleven  1 , Cara T Mai  2 , Eva Bermejo-Sánchez  3 , Boris Groisman  4 , Salimah Walani  5 , Jessica Peck  6 , Viviana Cosentino  7 , Lorenzo D Botto  1   8 , Simonetta Zezza  1 , Paul A Romitti  9 , Pierpaolo Mastroiacovo  1
Affiliations

Using a health observance event to raise awareness: An assessment of World Birth Defects Day

Danielle L Kleven et al. Birth Defects Res. .

Abstract

World Birth Defects Day (WorldBDDay), observed annually on March 3, was launched in 2015 to advocate for public health surveillance, research, and prevention of birth defects, along with improved care and treatment for affected individuals. Following its fifth observance in 2019, we assessed WorldBDDay by analyzing: (a) engagement and content of over 2000 WorldBDDay posts on Facebook, Twitter, and Instagram; (b) interview responses from 9 WorldBDDay charter (founding) organizations on their perceptions of strengths and areas for improvement for WorldBDDay; (c) survey responses from 61 WorldBDDay 2019 partner (participating) organizations on their WorldBDDay 2019 activities; and (d) post-2019 social media engagement. Most social media posts (60%) occurred from organizations using Twitter (80% vs. 14% for Instagram and 6% for Facebook), although posts from individuals had higher levels of engagement (e.g., likes and comments). The highest engagement occurred for posts focused on general awareness, prevention, or events. Charter organizations reported the need for existing and new partner engagement, including a designated WorldBDDay contact for regular communication and coordination of activities and prepared prevention-focused messaging. Partner organizations reported using the WorldBDDay toolkit, especially key messages and social media tips, and suggested expanding the toolkit with relevant resources. Post-2019 Twitter engagement was lower than 2019 WorldBDDay (peak event) but showed similar reach to WorldBDDay events prior to 2019. Our assessment identified WorldBDDay health observance events as an important tool to support knowledge dissemination and global community engagement around birth defects. Moving forward, engagement with more individuals and organizations may improve the reach of WorldBDDay.

Keywords: awareness day; birth defects; evaluation; health awareness day; health promotion; social media.

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Figures

FIGURE 1
FIGURE 1
Types of groups who posted WorldBDDay social media messages.
FIGURE 2
FIGURE 2
Average engagement per post across three social media platforms.
FIGURE 3
FIGURE 3
Analysis of WorldBDDay Twitter hashtag use between January 1, 2018 and April 19, 2022.
See this image and copyright information in PMC

References

    1. Alonso-Cañadas J, Galán-Valdivieso F, Saraite-Sariene L, & Caba-Pérez C (2020). Committed to health: Key factors to improve users' online engagement through Facebook. International Journal of Environmental Research and Public Health, 17(6), 1814. - PMC - PubMed
    1. Ammar A, Alojan A, Othman S, Aldossary A, Alamri N, Majrashi L, & Abosamel JM (2020). The social, psychological, educational opportunities and economical impact on spina bifida families in King Fahd University Hospital, Saudi Arabia. The Australasian Medical Journal, 3, 13.
    1. Beech M. (n.d.). COVID-19 pushes up internet use 70% and streaming more than 12%, first figures reveal [Internet]. Forbes. Retrieved November 8, 2022. https://www.forbes.com/sites/markbeech/2020/03/25/covid-19-pushes-up-int...
    1. Berry RJ, Li Z, Erickson JD, Li S, Moore CA, Wang H, Mulinare J, Zhao P, Wong LY, Gindler J, Hong SX, & Correa A (1999). Prevention of neural-tube defects with folic acid in China. China-U.S. collaborative project for neural tube defect prevention. The New England Journal of Medicine, 341(20), 1485–1490. - PubMed
    1. Christianson A, Howson C, & Modell B (2009). March of Dimes global report on birth defects. The hidden toll of dying and disabled children: Wall chart [Internet]. https://hero.epa.gov/hero/index.cfm/reference/details/reference_id/3499918

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