Reliance on Advocacy is the Symptom Not the Disease
- PMID: 37339294
- PMCID: PMC10389291
- DOI: 10.1080/15265161.2023.2207540
Reliance on Advocacy is the Symptom Not the Disease
Comment on
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Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.Am J Bioeth. 2023 Jul;23(7):17-26. doi: 10.1080/15265161.2023.2207500. Epub 2023 May 19. Am J Bioeth. 2023. PMID: 37204146 Free PMC article.
References
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- Farooq Faheem, Mogayzel Peter J., Lanzkron Sophie, Haywood Carlton, and Strouse John J. 2020. “Comparison of US Federal and Foundation Funding of Research for Sickle Cell Disease and Cystic Fibrosis and Factors Associated With Research Productivity.” JAMA Network Open 3 (3): e201737. 10.1001/jamanetworkopen.2020.1737. - DOI - PMC - PubMed
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- Gerido Lynette Hammond, Resnicow Kenneth, Stoffel Elena, Tomlin Tiah, Robert Cook-Deegan Melissa Cline, Coffin Amy, Holdren Jill, Majumder Mary Anderlik, and He Zhe. 2023. “Big Advocacy, Little Recognition: The Hidden Work of Black Patients in Precision Medicine.” Research Square, [Preprint] March, rs.3.rs–2340760. 10.21203/rs.3.rs-2340760/v1. - DOI - PMC - PubMed
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