Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together

doi:10.1080/15265161.2023.2207513

Comment

. 2023 Jul;23(7):55-58.

doi: 10.1080/15265161.2023.2207513.

Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together

Affiliations

¹ Mayo Clinic.
² Case Western Reserve University.
³ University of Miamis.
⁴ ETH Zurich.
⁵ Stanford University School of Medicine.
⁶ Genetic Alliance.
⁷ University of Toronto.
⁸ Uppsala University.
⁹ University of Pennsylvania Perelman School of Medicine.

PMID: 37339310
PMCID: PMC10441003
DOI: 10.1080/15265161.2023.2207513

Comment

Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together

Megan A Allyse et al. Am J Bioeth. 2023 Jul.

. 2023 Jul;23(7):55-58.

doi: 10.1080/15265161.2023.2207513.

Authors

Affiliations

¹ Mayo Clinic.
² Case Western Reserve University.
³ University of Miamis.
⁴ ETH Zurich.
⁵ Stanford University School of Medicine.
⁶ Genetic Alliance.
⁷ University of Toronto.
⁸ Uppsala University.
⁹ University of Pennsylvania Perelman School of Medicine.

PMID: 37339310
PMCID: PMC10441003
DOI: 10.1080/15265161.2023.2207513

No abstract available

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Comment on

The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.
Conley JM, Cadigan RJ, Davis AM, Juengst ET, Kuczynski K, Major R, Stancil H, Villa-Palomino J, Waltz M, Henderson GE. Conley JM, et al. Am J Bioeth. 2023 Jul;23(7):9-16. doi: 10.1080/15265161.2023.2207502. Epub 2023 May 19. Am J Bioeth. 2023. Update in: Am J Bioeth. 2023 Jul;23(7):74-76. doi: 10.1080/15265161.2023.2207533. PMID: 37204137 Free PMC article. Updated.

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Building Better Medicine: Translational Justice and the Quest for Equity in US Healthcare.
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Riggan KA, Feys R, Kokayi A, Meagher KM, Michie M, Musunuru K, Ormond KE, Schelhaas AJ, Yap JQ, Isasi R, Allyse MA. Riggan KA, et al. Am J Bioeth. 2024 Aug;24(8):43-45. doi: 10.1080/15265161.2024.2361880. Epub 2024 Aug 19. Am J Bioeth. 2024. PMID: 39158441 No abstract available.

References

1. Conley J, Cadigan JR, Davis AM, Juengset ET, Kuczynski K, Major R, et al. The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research. American Journal of Bioethics. 2023;In Press. - PMC - PubMed
1. Allyse M, Bombard Y, Isasi R, Michie M, Musunuru K, Ormond KE. What do we do now?: Responding to claims of germline gene editing in humans. Genetics in Medicine. 2019. Oct;21(10):2181–3. - PubMed
1. Parens E, Johnston J. Introduction to Human Flourishing in an Age of Gene Editing. In: Parens E, Johnston J, editors. Human Flourishing in an Age of Gene Editing [Internet]. Oxford University Press; 2019. [cited 2023 Apr 4]. p. 0. Available from: 10.1093/oso/9780190940362.003.0001 - DOI
1. Michie M, Allyse M. Gene modification therapies: views of parents of people with Down syndrome. Genetics in Medicine. 2019. Feb 1;21(2):487–92. - PMC - PubMed
1. Riordan NH, Arias LGJ, Coronado R, Riordan NH, Arias LGJ, Coronado R. Possibilities and limitations in current translational stem cell research. In: Ethics of International Stem Cell Treatments and the Risk-Benefit of Helping Patients [Internet]. IntechOpen; 2022. [cited 2023 Apr 4]. Available from: https://www.intechopen.com/online-first/84576

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[1] Conley J, Cadigan JR, Davis AM, Juengset ET, Kuczynski K, Major R, et al. The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research. American Journal of Bioethics. 2023;In Press. - PMC - PubMed

[2] Conley J, Cadigan JR, Davis AM, Juengset ET, Kuczynski K, Major R, et al. The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research. American Journal of Bioethics. 2023;In Press. - PMC - PubMed

[3] Allyse M, Bombard Y, Isasi R, Michie M, Musunuru K, Ormond KE. What do we do now?: Responding to claims of germline gene editing in humans. Genetics in Medicine. 2019. Oct;21(10):2181–3. - PubMed

[4] Allyse M, Bombard Y, Isasi R, Michie M, Musunuru K, Ormond KE. What do we do now?: Responding to claims of germline gene editing in humans. Genetics in Medicine. 2019. Oct;21(10):2181–3. - PubMed

[5] Parens E, Johnston J. Introduction to Human Flourishing in an Age of Gene Editing. In: Parens E, Johnston J, editors. Human Flourishing in an Age of Gene Editing [Internet]. Oxford University Press; 2019. [cited 2023 Apr 4]. p. 0. Available from: 10.1093/oso/9780190940362.003.0001 - DOI

[6] Parens E, Johnston J. Introduction to Human Flourishing in an Age of Gene Editing. In: Parens E, Johnston J, editors. Human Flourishing in an Age of Gene Editing [Internet]. Oxford University Press; 2019. [cited 2023 Apr 4]. p. 0. Available from: 10.1093/oso/9780190940362.003.0001 - DOI

[7] Michie M, Allyse M. Gene modification therapies: views of parents of people with Down syndrome. Genetics in Medicine. 2019. Feb 1;21(2):487–92. - PMC - PubMed

[8] Michie M, Allyse M. Gene modification therapies: views of parents of people with Down syndrome. Genetics in Medicine. 2019. Feb 1;21(2):487–92. - PMC - PubMed

[9] Riordan NH, Arias LGJ, Coronado R, Riordan NH, Arias LGJ, Coronado R. Possibilities and limitations in current translational stem cell research. In: Ethics of International Stem Cell Treatments and the Risk-Benefit of Helping Patients [Internet]. IntechOpen; 2022. [cited 2023 Apr 4]. Available from: https://www.intechopen.com/online-first/84576

[10] Riordan NH, Arias LGJ, Coronado R, Riordan NH, Arias LGJ, Coronado R. Possibilities and limitations in current translational stem cell research. In: Ethics of International Stem Cell Treatments and the Risk-Benefit of Helping Patients [Internet]. IntechOpen; 2022. [cited 2023 Apr 4]. Available from: https://www.intechopen.com/online-first/84576

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Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together

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Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together

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