Innovating for a Just and Equitable Future in Genomic and Precision Medicine Research
- PMID: 37353052
- PMCID: PMC10339710
- DOI: 10.1080/15265161.2023.2215201
Innovating for a Just and Equitable Future in Genomic and Precision Medicine Research
Comment on
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Is It Just for a Screening Program to Give People All the Information They Want?Am J Bioeth. 2023 Jul;23(7):34-42. doi: 10.1080/15265161.2023.2207510. Epub 2023 May 12. Am J Bioeth. 2023. PMID: 37171853
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The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.Am J Bioeth. 2023 Jul;23(7):9-16. doi: 10.1080/15265161.2023.2207502. Epub 2023 May 19. Am J Bioeth. 2023. Update in: Am J Bioeth. 2023 Jul;23(7):74-76. doi: 10.1080/15265161.2023.2207533. PMID: 37204137 Free PMC article. Updated.
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Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.Am J Bioeth. 2023 Jul;23(7):17-26. doi: 10.1080/15265161.2023.2207500. Epub 2023 May 19. Am J Bioeth. 2023. PMID: 37204146 Free PMC article.
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Promoting Equality in the Governance of Heritable Human Genome Editing through Ubuntu: Reflecting on a South African Public Engagement Study.Am J Bioeth. 2023 Jul;23(7):43-49. doi: 10.1080/15265161.2023.2207524. Epub 2023 May 19. Am J Bioeth. 2023. PMID: 37204147
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Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine.Am J Bioeth. 2023 Jul;23(7):27-33. doi: 10.1080/15265161.2023.2207515. Epub 2023 May 23. Am J Bioeth. 2023. PMID: 37220019
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The Other Side of the Self-Advocacy Coin: How For-Profit Companies Can Divert the Path to Justice in Rare Disease.Am J Bioeth. 2023 Jul;23(7):88-91. doi: 10.1080/15265161.2023.2207521. Am J Bioeth. 2023. PMID: 37339288 No abstract available.
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Narrative Equity in Genomic Screening at the Population Level.Am J Bioeth. 2023 Jul;23(7):121-123. doi: 10.1080/15265161.2023.2207548. Am J Bioeth. 2023. PMID: 37339300 No abstract available.
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Ethical, Legal, and Social Implications of Genomics Research: Implications for Building a More Racially Diverse Bioethics Workforce.Am J Bioeth. 2023 Jul;23(7):106-108. doi: 10.1080/15265161.2023.2207519. Am J Bioeth. 2023. PMID: 37339311 Free PMC article. No abstract available.
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Critiquing the Critique of Advocacy.Am J Bioeth. 2023 Jul;23(7):97-99. doi: 10.1080/15265161.2023.2208073. Am J Bioeth. 2023. PMID: 37339318 Free PMC article. No abstract available.
References
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- Bonkowski E, and Smith H. 2023. The other side of the self-advocacy coin: How for-profit companies can divert the path to justice in rare disease. American Journal of Bioethics. - PubMed
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- Centers for Disease Control and Prevention. 2022. “What is health equity?” https://www.cdc.gov/healthequity/whatis/ (accessed April 14, 2023).
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- Chancel L, and Piketty T. 2021. Global income inequality, 1820–2020: The persistence and mutation of extreme inequality. Journal of the European Economic Association 19 (6):3025–62. doi: 10.1093/jeea/jvab047. - DOI
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- Chapman-Davis E, Zhou ZN, Fields JC, Frey MK, Jordan B, Sapra KJ, Chatterjee-Paer S, Carlson AD, and Holcomb KM. 2021. Racial and ethnic disparities in genetic testing at a hereditary breast and ovarian cancer center. Journal of General Internal Medicine 36 (1):35–42. doi: 10.1007/s11606-020-06064-x. - DOI - PMC - PubMed
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