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. 2023 Sep;36(5):940-950.
doi: 10.1111/jar.13132. Epub 2023 Jun 26.

The recognition, assessment and perceptions of total pain in people with profound intellectual disabilities: A mixed methods systematic review

Maeve Goodall  1 , Kate Irving  1 , Mary Nevin  1
Affiliations

The recognition, assessment and perceptions of total pain in people with profound intellectual disabilities: A mixed methods systematic review

Maeve Goodall et al. J Appl Res Intellect Disabil. 2023 Sep.

Abstract

Background: People with profound intellectual disabilities are a population with complex comorbidities. Total pain recognises the interconnectedness of aspects of pain; social, psychological, physical, emotional, spiritual. Pain is under-recognised due to communication challenges and carers perceptions. This review's purpose is to synthesise current literature and provide guidance for future research and care.

Methods: Five databases were searched in this mixed methods systematic review (Cinahl, Medline, Psycinfo, Web of Science, Scopus). Articles retrieved were reported via a PRISMA flow diagram. Quality appraisal utilised the mixed methods appraisal tool (MMAT). A convergent qualitative design was the method of data synthesis.

Results: Data from 16 included articles generated four themes; Absent voices, reductionist assessment, pain intensity, valuing expertise. Data included physical pain only.

Conclusion: Multifaceted pain needs inclusion in research. Assessment must consider the unique expressions of pain by individuals with profound intellectual disabilities. A sharing of expertise may improve pain care.

Keywords: assessment; pain; pain scales; perceptions; profound intellectual disabilities; suffering.

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References

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