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. 2023 Jun;35(3):235-246.
doi: 10.1521/aeap.2023.35.3.235.

PrEP Persistence Support and Monitoring in Areas of High HIV Burden in the Midwestern United States

Moira C McNulty  1   2 , Jared Kerman  1   2 , Samantha A Devlin  1   2 , Maria Pyra  1   2   3   4 , Laura Rusie  3 , Kate Curoe  5 , Liz Thompson  3   6 , Joseph A Mason  1   2 , Eleanor E Friedman  1   2 , A Ziggy Uvin  1   2   7 , C Hendricks Brown  8 , John Schneider  1   2 , Rupa Patel  5   9
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PrEP Persistence Support and Monitoring in Areas of High HIV Burden in the Midwestern United States

Moira C McNulty et al. AIDS Educ Prev. 2023 Jun.

Abstract

Monitoring pre-exposure prophylaxis (PrEP) metrics can guide service delivery yet does not occur routinely. We developed a survey to understand current practices for monitoring PrEP at PrEP-providing organizations in Illinois and Missouri. The survey was distributed from September through November 2020; 26 organizations participated. Most respondents indicated ongoing efforts to screen for PrEP eligibility (66.7%), link to care (87.5%), and retain clients in care (70.8%); 70.8% reported collecting data on PrEP initiation, 41.7% on retention in care, and 37.5% on missed visits. Barriers to monitoring PrEP metrics included lack of IT support (69.6%), manual processes (69.6%), and lack of staff resources (65.2%). Most respondents offered clients support for PrEP retention and adherence and wanted to expand interventions for PrEP persistence, yet fewer monitored corresponding metrics. To enhance PrEP implementation, organizations should improve monitoring and evaluation of PrEP metrics along the entire continuum and respond with appropriate services to support clients.

Keywords: EHE; Ending the HIV Epidemic; HIV; PrEP; PrEP care continuum; adherence; persistence; pre-exposure prophylaxis.

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Figures

Figure 1.
Figure 1.
PrEP continuum of care with persistence as a marker of both retention in care (including regular STI and HIV testing) and adherence to PrEP. Adapted from Liu et al., 2012 and Nunn et al., 2017.
See this image and copyright information in PMC

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