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. 2023 Jul 3:9:23337214231185664.
doi: 10.1177/23337214231185664. eCollection 2023 Jan-Dec.

Caring for Dementia Caregivers: Understanding Caregiver Stress During the COVID-19 Pandemic

Lee Lancashire  1 , Virginia Biggar  2 , Meryl Comer  2 , Terry Frangiosa  2 , Allyson Gage  1 , Russ Paulsen  2 , Amber Roniger  2 , Jessica Wolfe  1
Affiliations

Caring for Dementia Caregivers: Understanding Caregiver Stress During the COVID-19 Pandemic

Lee Lancashire et al. Gerontol Geriatr Med. .

Abstract

More than 16 million Americans provide unpaid care for someone with Alzheimer's disease and related dementias (ADRD). During the COVID-19 pandemic, unpaid caregivers experienced increased chronic severe stress from widespread closures and social distancing. We conducted eight surveys from March 2020 to March 2021 among a cohort of over 10,000 individuals. Cross-sectional analysis was conducted to investigate frequency and ratios of groups reporting increased stress across surveys. A longitudinal analysis was also performed with the 1,030 participants who took more than one survey. We found a growing crisis among dementia caregivers: By Survey 8, current caregivers reported 2.9 times higher stress levels than the comparator group. By that time, 64% of current caregivers reported having multiple stress symptoms typically found in people experiencing severe stress. Both analyses reported increased levels of stressors over time that were more associated with certain caregiver groups. Our findings underscore the urgent need for public policy initiatives and supportive community infrastructure to support ADRD caregivers.

Keywords: ADRD; Alzheimer’s; COVID-19; dementia caregiver; severe stress.

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Conflict of interest statement

The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
Stress symptoms in Surveys 3 to 8.
Figure 2.
Figure 2.
Assessment of contributing factors to the total chi-square score using Pearson residuals. Blue circles denote positive association; red circles denote negative association. Circle size represents magnitude of effect.
Figure 3.
Figure 3.
Counts of total symptoms for participants completing all surveys.
Figure 4.
Figure 4.
Model of stress-related symptoms over time.
Figure 5.
Figure 5.
Model estimating testing for the association between total stressors over time and covariates of interest.
See this image and copyright information in PMC

References

    1. Aledeh M., Habib Adam P. (2020). Caring for dementia caregivers in times of the COVID-19 crisis: A systematic review. American Journal of Nursing Research, 8(5), 552–561. 10.12691/ajnr-8-5-8 - DOI
    1. Alzheimer’s Association. (2023). Alzheimer’s disease facts and figures. Created with data from the Alzheimer’s Association. https://www.alz.org/media/documents/alzheimers-facts-and-figures.pdf
    1. Beach S. R., Schulz R., Donovan H., Rosland A. M. (2021). Family caregiving during the COVID-19 pandemic. The Gerontologist, 61(5), 650–660. 10.1093/geront/gnab049 - DOI - PMC - PubMed
    1. Blasco-Belled A., Tejada-Gallardo C., Fatsini-Prats M., Alsinet C. (2022). Mental health among the general population and healthcare workers during the COVID-19 pandemic: A meta-analysis of well-being and psychological distress prevalence. Current Psychology. Advance online publication. 10.1007/s12144-022-02913-6 - DOI - PMC - PubMed
    1. Carbone E. A., de Filippis R., Roberti R., Rania M., Destefano L., Russo E., De Sarro G., Segura-Garcia C., De Fazio P. (2021). The mental health of caregivers and their patients with dementia during the COVID-19 pandemic: A systematic review. Frontiers in Psychology, 12, 782833. 10.3389/fpsyg.2021.782833 - DOI - PMC - PubMed

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