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. 2024 Mar;24(2):318-329.
doi: 10.1016/j.acap.2023.06.032. Epub 2023 Jul 11.

Equity Concerns Across Pediatric Research Recruitment: An Analysis of Research Staff Interviews

Elliott Mark Weiss  1 , Kathryn M Porter  2 , Tara R Sullivan  3 , Laura J Sotelo Guerra  4 , Emily E Anderson  5 , Nanibaa' A Garrison  6 , Laura Baker  4 , Jodi M Smith  7 , Stephanie A Kraft  8
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Equity Concerns Across Pediatric Research Recruitment: An Analysis of Research Staff Interviews

Elliott Mark Weiss et al. Acad Pediatr. 2024 Mar.

Abstract

Background and objectives: Difficulty recruiting individuals from minoritized and underserved populations for clinical research is well documented and has health equity implications. Previously, we reported findings from interviews with research staff about pediatric research recruitment processes. Respondents raised equity concerns related to recruitment and enrollment of participants from minoritized, low resourced, and underserved populations. We therefore decided to perform a secondary coding of the transcripts to examine equity-related issues systematically.

Methods: We conducted a process of secondary coding and analysis of interviews with research staff involved in recruitment for pediatric clinical research. Through consensus we identified codes relevant to equity and developed a conceptual framework including 5 stages of research.

Results: We analyzed 28 interviews and coded equity-related items. We report 6 implications of our findings. First, inequitable access to clinical care is an upstream barrier to research participation. Second, there is a need to increase research opportunities where underserved and under-represented populations receive care. Third, increasing research team diversity can build trust with patients and families, but teams must ensure adequate support of all research team members. Fourth, issues related to consent processes raise institutional-level opportunities for improvement. Fifth, there are numerous study procedure-related barriers to participation. Sixth, our analysis illustrates that individuals who speak languages other than English face barriers across multiple stages.

Conclusions: Research staff members identified equity-related concerns and recommended potential solutions across 5 stages of the research process, which may guide those endeavoring to improve research recruitment for pediatric patients from minoritized and underserved populations.

Keywords: equity; inclusion; minority health; pediatric research; research methods.

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Conflict of interest statement

Declaration of Competing Interest The authors have no conflicts of interest relevant to this article to disclose.

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References

    1. Paskett ED, Reeves KW, McLaughlin JM, et al. Recruitment of minority and underserved populations in the United States: the Centers for Population Health and Health Disparities experience. Contemp Clin Trials. Nov 2008;29(6):847–61. doi:10.1016/j.cct.2008.07.006 - DOI - PMC - PubMed
    1. Sotto-Santiago S Time to Reconsider the Word Minority in Academic Medicine. Journal of Best Practices in Health Professions Diversity. 2019;12(1):72–78.
    1. Wingrove-Haugland E, McLeod J. Not “Minority” but “Minoritized”. Teaching Ethics. 2021;21(1):1–11.
    1. Brewster RCL, Steinberg JR, Magnani CJ, et al. Race and Ethnicity Reporting and Representation in Pediatric Clinical Trials. Pediatrics. Apr 01 2023;151(4)doi:10.1542/peds.2022-058552 - DOI - PubMed
    1. Natale JE, Lebet R, Joseph JG, et al. Racial and Ethnic Disparities in Parental Refusal of Consent in a Large, Multisite Pediatric Critical Care Clinical Trial. J Pediatr. 05 2017;184:204–208.e1. doi:10.1016/j.jpeds.2017.02.006 - DOI - PubMed

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