Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2023 Aug 11;12(9):e220512.
doi: 10.1530/EC-22-0512.

An overview of the outreach of the 2019-2021 Endo-ERN knowledge generation webinars

Affiliations
Review

An overview of the outreach of the 2019-2021 Endo-ERN knowledge generation webinars

Violeta Iotova et al. Endocr Connect. .

Abstract

The current study aims to assess the development of the knowledge generation program of the European Reference Network on Rare Endocrine Conditions (Endo-ERN) from its start in 2019 until December 2021, with special reference to webinars. We analyzed the number of webinars and live/postevent participants and whether participation and engagement of the attendees changed over time. A total of 30 (86%) self-prepared webinars comprising 300 h of knowledge and competence sharing were broadcasted (2019 - 3; 2020 - 13; 2021 - 14). A total of six webinars were broadcasted live prior to the coronavirus disease 2019 pandemic (https://endo-ern.eu/events/webinars/). The most active main thematic group (MTG) was MTG3 Genetic Disorders of Glucose and Insulin Homeostasis with eight (27%) webinars. Two (25%) MTGs fulfilled the goal to prepare at least two to three webinars per year. Patients were actively involved in 20% of the accounted webinars as both creators and presenters. The total number of live and postevent participants was 3023. The availability of the webinars after the live broadcast increased their outreach with a larger number of postevent viewers (n = 1629, 54%). Within the formal structured evaluation of the webinars, 40-85% of the participants replied on separate occasions and helped improve content. The free webinar access is among the perceived reasons for the rapidly increasing number of total hits to the Endo-ERN website. In conclusion, for its short existence, the Endo-ERN rapidly developed educational outreach, and further efforts to attract creators and learners are warranted.

Keywords: Endo-ERN; evaluation tools; knowledge generation; main thematic group; webinars.

PubMed Disclaimer

Conflict of interest statement

The authors report no conflict of interest in connection with this work.

Figures

Figure 1
Figure 1
Distribution of webinars between the eight Endo-ERN main thematic groups (2019–2021).
Figure 2
Figure 2
Geographical distribution of the Endo-ERN webinar attendees (2019–2021).
Figure 3
Figure 3
Total attendees (live and postevent) per MTG webinar (by December 31, 2021).
Figure 4
Figure 4
Total number of the Endo-ERN website (https://endo-ern.eu/) hits (2018–2021).

Similar articles

References

    1. Pereira AM & Hiort O. Introduction to Endo-ERN-scope and mission. Endocrine 202171537–538. (10.1007/s12020-020-02602-z) - DOI - PMC - PubMed
    1. Tumiene B Graessner H Mathijssen IM Pereira AM Schaefer F Scarpa M Blay JY Dollfus H & Hoogerbrugge N. European Reference Networks: challenges and opportunities. Journal of Community Genetics 202112217–229. (10.1007/s12687-021-00521-8) - DOI - PMC - PubMed
    1. Iotova V Bertherat J Mastorakos G Hiort O Pereira AM & RARE ON. Endo-ERN on rare endocrine conditions: endo-ERN in its fifth year: a pinch of care, science, curiosity and new horizons. Endocrine Connections 202211e220082. (10.1530/EC-22-0082) - DOI - PMC - PubMed
    1. Iotova V Schalin-Jäntti C Bruegmann P Broesamle M Bratina N Tillmann V Hiort O & Pereira AM. Educational and knowledge gaps within the European reference network on rare endocrine conditions. Endocrine Connections 20211037–44. (10.1530/EC-20-0480) - DOI - PMC - PubMed
    1. Iotova V Schalin-Jäntti C Bruegmann P Broesamle M De Graaf J Bratina N Tillmann V Pereira AM & Hiort O. Access to patient oriented information-a baseline Endo-ERN survey among patients with rare endocrine disorders. Endocrine 202171542–548. (10.1007/s12020-021-02654-9) - DOI - PMC - PubMed

LinkOut - more resources