Osteogenesis Imperfecta Is More Than a Pediatric Disorder-There Is a Need for Adult Care Evidence to Guide Clinicians

Lars Folkestad^{1

2}, Jannie Dahl Hald^{3

4}, Laura Tosi⁵, Cathleen Raggio⁶, Oliver Semler⁷, Bente Langdahl³, Stuart H Ralston⁸

Affiliations

¹ Department of Endocrinology, Odense University Hospital, 5000 Odense C, Denmark.
² Department of Clinical Research, University of Southern Denmark, 5000 Odense C, Denmark.
³ Department of Internal Medicine and Endocrinology, Aarhus University Hospital, 8200 Aarhus N, Denmark.
⁴ Centre for Rare Diseases, Pediatric and Adolescent Medicine, Aarhus University Hospital, 8200 Aarhus N, Denmark.
⁵ Division of Orthopaedics & Sports Medicine, Children's National Hospital, Washington, DC 20010, USA.
⁶ Department of Orthopedics, Hospital for Special Surgery, New York, NY 10021, USA.
⁷ Faculty of Medicine and University Hospital Cologne, Department of Pediatrics, University of Cologne, 50931 Cologne, Germany.
⁸ Centre for Genomic and Experimental Medicine, Institute of Genetics and Cancer, University of Edinburgh, Edinburgh EH4 2XU, UK.

Editorial

Lars Folkestad et al. J Clin Endocrinol Metab. 2024.

. 2024 Jan 18;109(2):e866-e867.

doi: 10.1210/clinem/dgad423.

Lars Folkestad^{1

2}, Jannie Dahl Hald^{3

4}, Laura Tosi⁵, Cathleen Raggio⁶, Oliver Semler⁷, Bente Langdahl³, Stuart H Ralston⁸

¹ Department of Endocrinology, Odense University Hospital, 5000 Odense C, Denmark.
² Department of Clinical Research, University of Southern Denmark, 5000 Odense C, Denmark.
³ Department of Internal Medicine and Endocrinology, Aarhus University Hospital, 8200 Aarhus N, Denmark.
⁴ Centre for Rare Diseases, Pediatric and Adolescent Medicine, Aarhus University Hospital, 8200 Aarhus N, Denmark.
⁵ Division of Orthopaedics & Sports Medicine, Children's National Hospital, Washington, DC 20010, USA.
⁶ Department of Orthopedics, Hospital for Special Surgery, New York, NY 10021, USA.
⁷ Faculty of Medicine and University Hospital Cologne, Department of Pediatrics, University of Cologne, 50931 Cologne, Germany.
⁸ Centre for Genomic and Experimental Medicine, Institute of Genetics and Cancer, University of Edinburgh, Edinburgh EH4 2XU, UK.

No abstract available

Keywords: DXA; HRpQCT; aging; bone disease; clinical trials; collagen; osteogenesis imperfecta.

Comment on

Approach to the Patient: Pharmacological Therapies for Fracture Risk Reduction in Adults With Osteogenesis Imperfecta.
Liu W, Lee B, Nagamani SCS, Nicol L, Rauch F, Rush ET, Sutton VR, Orwoll E. Liu W, et al. J Clin Endocrinol Metab. 2023 Jun 16;108(7):1787-1796. doi: 10.1210/clinem/dgad035. J Clin Endocrinol Metab. 2023. PMID: 36658750 Free PMC article. Review.