Understanding barriers to participation in group chronic disease self-management (CDSM) programs: A scoping review

Abstract

Objective: To identify factors that influence enrollment in and attendance of chronic disease self-management (CDSM) group programs.

Methods: A scoping review of peer-reviewed publications that reported on factors of enrollment or attendance in group CDSM programs for adults with any type of chronic condition. Screening was completed by two reviewers and data extraction was checked for accuracy. Data were summarized and key themes were identified in collaboration with the study team.

Results: Following screening, 52 of 2774 articles were included. Attendance rates that varied from 10.4-98.5% (mean =72.5%). There is considerable overlap between enrollment and attendance factors. These included Competing Commitments, Logistics, Personal characteristics, Perception of illness/health status, Health service provision, and Group dynamics.

Conclusions: Varied and individualized factors can facilitate or impede enrollment or attendance in group CDSM programs. Consideration of these factors and tailoring of programs is needed to facilitate patient ability to take part. Participatory co-design is a growing approach to ensure programs meet individual and community needs. More research is needed to identify the specific impact of using codesign on enrollment and attendance in group CDSM programs.

Practice implications: Including community members and service users in design and implementation may enhance CDSM program access.

Keywords: Adherence; Chronic conditions; Self-management.