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Review
. 2023 Aug;29(8):1922-1929.
doi: 10.1038/s41591-023-02445-x. Epub 2023 Jul 20.

Considerations for patient and public involvement and engagement in health research

Olalekan Lee Aiyegbusi  1   2   3   4   5   6 , Christel McMullan  7   8   9   10   11   12   13   14 , Sarah E Hughes  7   8   9   10   11   12 , Grace M Turner  7   9   10   13   14 , Anuradhaa Subramanian  7 , Richard Hotham  7 , Elin Haf Davies  15 , Chris Frost  15 , Yvonne Alder  16 , Lisa Agyen  16 , Lewis Buckland  16 , Jennifer Camaradou  16 , Amy Chong  16 , Felicity Jeyes  16 , Sumita Kumar  16 , Karen L Matthews  16 , Patricia Moore  16 , Jane Ormerod  16 , Gary Price  16 , Michael Saint-Cricq  16 , David Stanton  16 , Anita Walker  7   8   9   10   11   12 , Shamil Haroon  7 , Alastair K Denniston  17 , Melanie J Calvert  7   8   9   10   11   12   13   14   18   19 ; TLC Study Group
Collaborators, Affiliations
Review

Considerations for patient and public involvement and engagement in health research

Olalekan Lee Aiyegbusi et al. Nat Med. 2023 Aug.

Abstract

Patient and public involvement and engagement (PPIE) can provide valuable insights into the experiences of those living with and affected by a disease or health condition. Inclusive collaboration between patients, the public and researchers can lead to productive relationships, ensuring that health research addresses patient needs. Guidelines are available to support effective PPIE; however, evaluation of the impact of PPIE strategies in health research is limited. In this Review, we evaluate the impact of PPIE in the 'Therapies for Long COVID in non-hospitalised individuals' (TLC) Study, using a combination of group discussions and interviews with patient partners and researchers. We identify areas of good practice and reflect on areas for improvement. Using these insights and the results of a survey, we synthesize two checklists of considerations for PPIE, and we propose that research teams use these checklists to optimize the impact of PPIE for both patients and researchers in future studies.

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